:ybiggrin:I have been desperately trying to find out some information on inflammatory bowel disease when I came across this website. I have read a few posts and have found some very moving and some uplifting. I found the stories very useful, knowing that I’m not alone in my symptoms. I am a staff nurse and used to work on the colorectal surgical unit at my local hospital. I have since changed my job in the past year. I honestly thought I knew everything about bowel disorders, and their treatment etc . Imagine my horror when I found myself a patient on the same ward!
I have been fortunate all my life with no illness, except an under active thyroid. I have kept myself fit attending the gym and walking. I woke up one morning with an awful tenderness and gnawing pain in my [RT] upper quadrant. I had been to a party the night before and drank three glasses of wine. This lasted for two months, for a period of 2-4 weeks I had noticeable changes in my bowel habits, going 6-7 times some days, diarrhoea, no blood though and stomach cramps. My GP was convinced I had gallstones and I was admitted to hospital. I had USS which showed nothing except a fatty liver. All my observations were normal and also my bloods, except one reading of raised ALT and inflammatory markers. I also became very dizzy. Consultant came to see me and said I might have liver disease, was I scared.
I mean I have knocked the wine back in the past but only a bottle or so a week max[I am 50!] Seen a specialist who assured me that I did not have liver disease. Phew! relief. Sent home with some pain killers and an appt for hyerscan and colonoscopy. Hyderscan was normal but colonoscopy showed numerous lesions in my rectal and sigmoid colon, I had biopsies which were inconclusive. They showed a mild, chronic inflammatory bowel disease but unsure what. The DR who performed the colonoscopy said he had never seen the type of lesions before. I have to have them repeated if I have the pain again. I had the same pain about 4 years ago, had an USS then which showed nothing except a fatty liver again. I tried to ignore it and it went away, I don't think I had diarrhoea at that time. This time it took two months to go away, I just woke up one morning and the pain had gone. I am great now, I still have days of diarrhoea, I have a morning coffee and within 10 mins it goes straight through me, sometimes I go to the toilet about 4-5 times a day. I haven't lost any weight and I am back in work.
The consultant wanted to start me on a combination of medication but I declined because I feel well. I am seeing him in 16 wks. I still get twinges of pain in my Rt upper quadrant, still can't really understand that after all the lesions are nowhere near there. I do live in fear of the pain coming back, more that the diarrhoea but I'm taking each day a it comes. I'm not sure what I have but I guess it must be some form of inflammatory bowel disease. Consultants have a way of fobbing you off with medical jargon leaving you alone and afraid, so by sharing stories with each other we can learn and get tips and advice. Would love to hear from anyone.:rosette2:
I have been fortunate all my life with no illness, except an under active thyroid. I have kept myself fit attending the gym and walking. I woke up one morning with an awful tenderness and gnawing pain in my [RT] upper quadrant. I had been to a party the night before and drank three glasses of wine. This lasted for two months, for a period of 2-4 weeks I had noticeable changes in my bowel habits, going 6-7 times some days, diarrhoea, no blood though and stomach cramps. My GP was convinced I had gallstones and I was admitted to hospital. I had USS which showed nothing except a fatty liver. All my observations were normal and also my bloods, except one reading of raised ALT and inflammatory markers. I also became very dizzy. Consultant came to see me and said I might have liver disease, was I scared.
I mean I have knocked the wine back in the past but only a bottle or so a week max[I am 50!] Seen a specialist who assured me that I did not have liver disease. Phew! relief. Sent home with some pain killers and an appt for hyerscan and colonoscopy. Hyderscan was normal but colonoscopy showed numerous lesions in my rectal and sigmoid colon, I had biopsies which were inconclusive. They showed a mild, chronic inflammatory bowel disease but unsure what. The DR who performed the colonoscopy said he had never seen the type of lesions before. I have to have them repeated if I have the pain again. I had the same pain about 4 years ago, had an USS then which showed nothing except a fatty liver again. I tried to ignore it and it went away, I don't think I had diarrhoea at that time. This time it took two months to go away, I just woke up one morning and the pain had gone. I am great now, I still have days of diarrhoea, I have a morning coffee and within 10 mins it goes straight through me, sometimes I go to the toilet about 4-5 times a day. I haven't lost any weight and I am back in work.
The consultant wanted to start me on a combination of medication but I declined because I feel well. I am seeing him in 16 wks. I still get twinges of pain in my Rt upper quadrant, still can't really understand that after all the lesions are nowhere near there. I do live in fear of the pain coming back, more that the diarrhoea but I'm taking each day a it comes. I'm not sure what I have but I guess it must be some form of inflammatory bowel disease. Consultants have a way of fobbing you off with medical jargon leaving you alone and afraid, so by sharing stories with each other we can learn and get tips and advice. Would love to hear from anyone.:rosette2:
