Stomach ache back

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Catherine

Catherine

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Sarah's stomach ache is back. It come back on Saturday night after party with pain only.

Will get facel cal done today. Should we get bloods done as well?
 
Sorry to hear about the pains. Grace's started up too after having months with out one.
I would say yes to the labs, just so you can have the BIG picture looked at. That's just my humble reply.

I hope you get answers soon.
 
I think we should have blood done too then we can start pred again without messing up the results. Only 3 and half weeks to major exam. School presentation night to today.
Also ring gi in the am.
 
Definitely gets bloods done as well Catherine. :hug:

I hope things settle for Sarah but I know what a stressful time of year this is. Ugh!

Good luck!

Dusty. xxx
 
If they are up for blood and calprotectin, I agree I would get both! I hope her stomach ache eases off soon!:ghug:
 
I have the forms for both. Blood form for fbe, lft's iron studies, at least these are a starting point.
 
Sorry to hear she is having pain again. That's good that you are getting bloods and calprotectin done - best to have a clear picture of what's happening so it can be treated right. Hope it settles soon!
 
Yes on the bloodwork! I hope her stomach ache goes away soon! Poor girl, I am sure the exams are stressing her.

Hugs!
 
Don't you love it, when you get you short version of results over the phone.

Nurse they show anemia, and the really low iron

Me: is the hemoglobin below 10

Nurse: 10.6 and iron 2

Me: Can I have a copy

Nurse: Need doctor ok to print ring back Monday.
 
No! :lol:

Why is it that we always get answers like that on a bloody Friday! :voodoo:

What are your thoughts on those results Catherine?

Dusty. xxx
 
Hemoglobin level is steady as last test showed 10.7.

Iron appears to be dropping, but why would iron drop when supplement are being taken. Last test showed 5 but her iron levels have not been in range once in last 4 years.

i need the ferritin level.
 
When the blood tests were taken Sarah was told she need to drink more water before blood tests to make test easier. Mind you this was said only after they missed the vein on the first go and had to do the other arm.
 
So they have results but when do you get to hear from the doc on the next steps? I guess maybe waiting for the fecal test to come back??? Sorry you have to wait through the weekend. How is she feeling now?
 
Dusty, her ferritin level was 56 in March, hemoglobin 11.5. So stopped iron supplements.
Hemoglobin dropped to 10.5 in July, ferritin down 31 restarted iron supplement.

Iron influsion have never been mentioned, they mention blood if hemoglobin keeped dropping when it was 9.0.

Her ferritin level has been as high 156, December 2011.

They don't iron influsions if ferritin level are over 16.

She was tested for thalassaemia both beta and alpha.

Sarah feeling better.

Crohnsinct, hopefully dr ok the print out results, l look at the results decide whether we need appointment with gi. If the gp felt he could/wanted to do any thing the nurse would have said there a note on the results need to discuss with gp.

Facel test is not back.
 
I now got a print out of the results.

Ferritin 22 ug/L (15-165)
Iron 3 umol/L (7-27)
Transferrin 2.5 g/L (2.5-3.8)
Transferin Sat: 5 % (13-47)

Hemogroblin 10.6 g/dL (11.5-16.5)
MCH: 25.6 pg (27.0-32.0)
MCHC: 30.08 g/dL (32-36)

White Cell Count 5.2 (4.0 - 11.0)
Lymphocytes 0.7 (1.0-4.0)

Comment: There is a mild lymphopenia. There is a mild anaemia.

Total Protein 60g/L (65-85)
Albumin 36 g/L (38-50)

GP doesnot think these result are a cause for concern.

Will do a little more research tonight.

One good thing the stomach ache has gone away. I think Dusty is right the amount iron supplement needs to increased due to the level of activity.
 
Thanks for updating Catherine.

I can see why the GP is saying that as everything is just simmering below normal but it is everything, not a one off here or there. I may well be wrong but I just don't like that Sarah is playing catch up and the added stress that places on the body.

I don't know but I just wish that doctors would strive for a solid normal rather than settling for just below or something that just snigs into the normal range, especially when we are talking about children/adolescents/young adults.

There is an iron supplement called Globifer Forte that is a combination of haem and non haem iron and apparently has superior absorption with less side effects. I know it is available in Europe but I don't know that it is here. Maybe the doc knows of something similar that is available here??

Dusty. xxx
 
Dusty

I thinking of making an appointment with the Sports GP, maybe that will help us understand how much of this is related to the activity level.
 
I think that's a great idea! Considering her level of activity, it would certainly make sense that the activity level needs to be taken into account when looking at her results.
 
I agree that it is a fab idea to see the sports GP Catherine. :) He/she would be far in tune with how exercise affects iron levels etc when the body is put under duress.

Dusty. xxx
 
Sarah not swimming this morning she has pain around her belly button. I scared. Things went very bad for Sarah in October last year.

How do you whether it crohns when the only symptom is pain?
 
Was that her ONLY symptom last year? She has no other GI or EIM symptoms?

I'm assuming you haven't received the fecal test results yet?

Is it possible that the stomach ache could be due to something else??? Has she increased her iron supplements - they can be hard on the GI system???

Hugs to you! :hug:
 
Sarah had two main symptoms stomach ache and anemia up until 2 months before dx.

November 2011, she developed severe weight (loss to 12 kgs) and constant pain. At dx her imflammation was already chronic.

We know she had imflammation in June 2011 (from our so called clear ultrasound). She GI believe she had crohn for least 3 years prior to dx.

No increase in iron supplements.

Fecal test results are not back yet.
 
How is Sarah doing Catherine? :hug:

When do you go to the doctor again, GP/GI?

In Matt's case, aside from the increased CRP, the GP could feel a mass (thickened bowel loop) when he palpated the abdomen. That sent us for imaging straight away.

Dusty. xxx
 
She seems ok, she has some pain. She has 4 cold sores.

Tried to get gp appointment today but none were available. Need to call at 8.30 tomorrow morning.
 
I don't think she overly stressed but she works very hard. I don't think she was happy with the c+ received for mid year external exam.

Final biology exam on the 3 November.

She was told last year that year 10 exams did not matter and she could miss then for testing or if she sick. This upset greatly upset her and she attend all exams.
 
I just wonder if the cold sores are a manifestation of stress. I know for many people that stress = run down = cold sores. My two don't get cold sores but hubby surely does when he gets stressed or run down for any reason.

Matt is very driven and although he says he is not stressed and outwardly he doesn't appear to be I know full well that he has very high expectations of himself. He dropped uni units last year because, in his words, he wouldn't be able to complete them to his satisfaction.
He has just completed uni for the year and he had episodes of abdo pain prior to some of his exams. I'm not saying that this is the case for Sarah but it may be playing a part in it.

Dusty. xxx
 
About three weeks to a month ago, I tried to get Sarah to change from soy milk to rice, oat or almond milk. Sarah elected to drink cow's milk. She told me that believes milk is the problem, she stopped having milk on her cereal this morning.

She believes the pain is caused by milk not crohn.

We know that Sarah has lactose intolerance.

I am also have a problem with milk it gives me heartburn.

If milk is problem, does anyone know how she will take to feel better?
 
Milk can take a few days to two weeks.
Was she drinking lactose free milk or just regular ??
If it was lactose free it shouldn't make a difference.
 
Looking like milk was cause of stomach aches. Sarah has not had milk in three days and stomach pains are clearing.
 
Woohoo for no milk!!
Peptamen is lactose free so she could get the extra calcium and vitamins she needs as a supplement . There are also Eo28 splash juice boxes .
Glad her stomach feels better.
 
Things continue to improve for Sarah, has swum three days this week.

She believes she can still have milk sometimes just not everyday, I ask to not have milk for a couple of months and we will test lactose free milk. Now drinking soy drink.

Still awaiting results of faecel cal testing and pending results plan to increase iron supplements.
 
Thanks for the update Catherine. :)

I hope things continue to head in the right direction and good luck with the results!

Dusty. xxx
 
Oh yay for Sarah...and not only a great swimmer, super student and all around great kid but a doctor in the making too! Good for her for figuring out what was causing her pain. So sorry she had to though!
 
Still no stool results .

Come from work to find Sarah asleep on couch. Woke her for dinner and ate.

Now has pain around her belly button and has put herself to bed and is crying due to pain.
 
Pain med didn't work, she vomited and make the decision to go to hospital. The nurse gave so:mething for the nausa and 15min later a painkiller. She is not much pain awaiting to be seen by a doctor we been here almost 3 &1/2 hours. Its 1:10 am
 
Having trouble reading my posts now, its way past my bedtime at 2.30 am. Sarah asleep in the waitingroom.
 
Oh my goodness Catherine...:hug::hug::hug:

I hope all is okay and Sarah is feeling better.

Thinking of you! :heart:
Dusty. xxx
 
Sorry to hear she landed up in the hospital. I hope they manage to get to the bottom of it and get her feeling better!
 
Where home. Stepped inside at 3.45 am. Dr believe the crohn is in a flare. Started 50mg pred 1 day then 30mg. They want her seen by gi within a week. They gave pred, endone 5mg and metoclopramide to take home.

I am just going to get sleep before going to work.
 
Oh Catherine, I am so sorry to hear this. :hug:

I hope Sarah is soon feeling better with the meds, bless her, and that you are able to get some rest. i know this is a worrying time for you, you are in my thoughts hun. :hug:

Dusty. xxx
 
I'm so sorry for Sarah! I, too, hope the pred very quickly gets her feeling better! :Karl: I hope she's feeling a bit better from last night and you both can get some rest! :ghug:
 
So sorry to hear about the flare!! :yfrown: I hope you get some rest and she is feeling better soon!
 
Sarah is fine today, she has no pain. She has only taken taken the pred.

Don't get me wrong I glad Sarah better, I just can't understand the difference in her.

Sarah is planning on swimming her two day meet this weekend.

400 fr on Saturday and 200 bk, 800 fr in morning and 400 im afternoon on sunday.
 
It is so fab to hear that Sarah is feeling better. :)

I would hazard to say too fast for Pred alone but it may well kick in within the 24hrs.

I know with my Sarah most of her illness was cyclic. A mess one day and normal the next. This bloody disease is such an enigma! :voodoo:

My only fear with Pred is, if you respond well to it I think it can give you a false sense of well being and then a person has a tendency to overdo things. I'm not saying that that is what Sarah will do, it is just one of my fears that I am voicing.

I hope she does well over the weekend. Good luck!

Dusty. xxx
 
This kid is cyclic as well. Well she was until two months before dx. I told her that can't take the strong pain before swimming.

Yes I'm concerned that the swimming on such high doses of pred. But she feels ok and a good amount of training behind her.

We see the gi on Wednedsday, the secretary book in for the first available appointment in three weeks but changed the appointment when I mentioned emergency had put her on pred and wanted her seen in a week.

We did our part in educating a er dr last night. I was explaining Sarah's had never the big d. Dr ask why a colonscopy had been proform. I explain the 12kg weigh loss in 2 months, replied yah that will do it.

I thank the hospital enough for there care last night. It was very busy with ambulance area full and a police van waiting to unload. Although we didnot see a dr until 3.15 am. Sarah was give pain meds at 10.30pm.
 
FWIW O's doc said swimming while in a flare will not harm her...she just might not do to well...but while on prednisone she got the times of her life!

That is an ambitious schedule Sarah has planned and while in a flare? God bless her. I hope she feels well and that her swimming doesn't cause her disappointment.

O has her first meet of the short course season this weekend (50 free, 100 breast and 200 free). Only swimming one day because we will be away for the other day. We are anxious to see how she does because she is now 4 months with good blood test results.
 
Sarah completed her swimming program and seem to be fine. We have has very busy weekend. Sarah told me last Sunday that she want to do a quilt for her final photographic piece, only my daughter would think a quilt is an ease project to complete in just over a week, its due Tuesday. It now almost finished.
 
Glad she is doing well and manged the swimming. Wow, a quilt! Must be nice to be able to make things like that, sewing never was one of my strong points.
 
Wow! Glad she made it through the weekend well and geez! That quilt seems very ambitious but I guess that is par for the course for Sarah!
 

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