Stopping a flare without steroids?

[bwightman]

Hi everyone,

It's been awhile since I've posted last, and I've been kind of yo-yoing back and forth between remission and flaring. Lately I've been in a flare that doesn't want to quit. My GI upped my Humira dose to once a week about a month ago, but it hasn't seemed to have much of an impact. I was on a 10-day course of Flagyl at one point where I did feel much better, but since I'm off of that things have gone downhill again. I'm seeing my doc tomorrow and I'm pretty sure she'll want to put me back on prednisone. I'm trying to avoid that.

Has anyone had any success coming out of a flare without the help of steroids? I'd like to have other options to discuss with her. I might see about trying a longer course of Flagyl. Any thoughts or suggestions?

Thanks,
Beth

 

[Cookie]

Hi Beth,

I also will avoid steroids at all costs. Flagyl seems to be the only other thing I have responded to as well. Imuran and Remicade were no-gos. I took a month-long course of flagyl 250mg X 3/day to get my symptoms under control and then decreased it down to 1/day and it really helped. The only thing is, when taking flagyl long-term, you have to be aware of the potential for temporary peripheral neuropathy. If you start to feel constant tingling in your hands and feet, you need to quit taking it. My doctor recently switched me over to Cipro (500mg X 2/day), but it does not work as well for me. My symptoms are coming back. I plan to go back on flagyl next month. As I understand it, the dangers of the PN go away when you quit taking it and then you can take it again...you just need to cycle it.

Good Luck!

 

[D Bergy]

I stopped my low grade inflammation with an experimental treatment. I used Miracle Mineral Supplement or MMS. It is not approved to treat any disease, it is experimental and has the risks associated with such treatments.

It is chemically acidified Chlorine Dioxide. It acts as a super antibiotic that selectively kills acidic bacteria by the process of oxidation, which is stripping electrons from the bacteria. It breaks down in the body in a couple of hours.

Investigate it carefully before using it. I had no adverse reactions to the treatment, and still use it for various viral and bacterial infections. It is rather powerful and you have to use it conservatively.

Not a typical treatment, but I rate it as the second most important treatment I have used for Crohn's.

You can do a search here as I have posted on this before.

Dan

 

[bwightman]

Thanks for your input...my doctor had me admitted last night and I'm now on fluids and IV Flagyl. Had a CT scan and flex sig today, so hopefully they'll get to the bottom of it!

 

[CD68]

Hi everyone,

It's been awhile since I've posted last, and I've been kind of yo-yoing back and forth between remission and flaring. Lately I've been in a flare that doesn't want to quit. My GI upped my Humira dose to once a week about a month ago, but it hasn't seemed to have much of an impact. I was on a 10-day course of Flagyl at one point where I did feel much better, but since I'm off of that things have gone downhill again. I'm seeing my doc tomorrow and I'm pretty sure she'll want to put me back on prednisone. I'm trying to avoid that.

Has anyone had any success coming out of a flare without the help of steroids? I'd like to have other options to discuss with her. I might see about trying a longer course of Flagyl. Any thoughts or suggestions?

Thanks,
Beth

Entocort put me in remission after a few months of it. I still have a bad day about once a week though but at least it gives me time to recover in between.