Strange Family "Crohn's Pains"

[natatak227]

Hi all-
Just wanted to vent and ask for some advice. I was diagnosed with Crohn's in February of this year. I had symptoms as early as 5 years ago. I hate this diagnosis, but at least I know what I'm dealing with now.

I write because my sister has always been sort of an attention seeker. For example, I got mono when I was 18 years old, and she swore up and down that she had it because she had been in the same room as me, even though she had absolutely no symptoms (doctors also told her she had no symptoms...she still believed she was infected).

Well, with my recent diagnosis, she has gone completely off the chart, and is now convinced that she has Lupus due to back pain. Although they say auto-immune diseases run in the family, her constant complaining and push towards a Lupus diagnosis is really starting to bug me.

I'm in pain every day of my life. I didn't wish to have this disease. I never, ever wanted it to begin with, and the fact that my sister is complaining and actually seems like she wants an auto-immune disease is just really getting to me. I don't know how to deal with it anymore. Any advice?

 

[Gculk]

Yeah, explain the treatments. The side effects of treatments for autoimmune diseases suck. So if she keeps at and the doctor finally gets sick of her and tries her on the medicine, you can tell her 'told ya so'.

Other than that, whiners will always whine.

If it really gets on your nerves and you wanna take the fight to her, get her to produce some evidence. Butterfly rash, scarring rashes, mouth ulcers, rash from UV light, blood counts, protein in urine, ana test. If not, then tell her, 'Stop saying you have lupus, or trying to convince us you have lupus, you THINK you have lupus. If you want to talk about how you feel, fine, but without any tests or physical effects, who cares what you think you have.' Or words to that effect.

Nathan

 

[natatak227]

Thanks Nathan. I actually have a friend with Lupus too, who tells her all the time that she doesn't. The only symptom she has is back pain. I wish that were my only symptom!!