OK, so I'm going to go off on a tangent here, but bear with me, I think it will make a little sense. I don't carry photos of my BM's in my wallet. I've got photos of the kids, but that's pretty much the extent of it. I realize that it sounds totally off of the wall to take photos of something we all feel so.. uncomfortable talking about. One of the damnedest parts of this disease is that it usually involves gross stuff. Things we'd never before talk about openly. That being said, I saw some very unusual things, some very disturbing & alarming things... And I'm not talking about BM's per se. There was some, usually very little. Mostly what came out of me wasn't fecal matter, it was mostly blood, and in significant quantities. That had me worried, esp. since my doctors thought I was over-estimating the quantities. Then the blood clots started appearing. So I resorted to the photos. Crazy me. But it worked. And, it demonstrated to all concerned that something - unexpected - was REALLY occuring. What was that? Well, my disease spread extremely rapidly. And it has happened more than once. I wasn't prepared for that, the doctors sure werent' expecting it... And it has happened on more than one occasion. Like, before my resection, it grew rapidly, so rapidly that when the photos convinced the GI to take a 2nd look, he was alarmed/surprised at how fast it had developed and spread. That was the 1st time. That resulted in the urgent resection. They did that, and to all intents and purposes, after my 'resection', I was completely free and totally void of any sign of it. how void? so void, his (my GI, professor of GI at the univ) professional medical opinion was that I was 'cured'. Yet, within 2 months, it was back, and it had spread to the entire remainder of my colon (except for the site of the incision). I dunno if that is typical, or extremely rare. But as I think about it, it sort of makes sense. Why? well, I'd heard something about tooth decay. They did a study on what happens if you use those anti-bacterial pastes to erradicate the bad bacteria that decay your teeth. Thing of it is, it destroys both good and bad bacteria. Problem is, the bad bacteria come back faster. In the studies, the bad bacteria start bouncing back immediately, while the 'good' take at least 30 minutes to bounce back. think about it.. normally, the bad guys are introduced in an area where they are significantly outnumbered. the good guys have the home turf, they have the immune system on their side, so a 'bad' bug has to have a lot of fight in them, just to survive, hey, just to exist.
so, we get this illness.. the bad guys are still outnumbered, but the immune system is no longer fighting them. think between the nasty nature of the bad guys and the immune system, the 'candy' ass good guys don't last very long. I was in some pretty nasty bar fights when I was young and foolish, learned the nice guys don't always win.. And like it or not, there's a bar fight going on way down deep in our insides. So, my point? Next time I see something 'bizarre' come out of me, something that alarms me, something that worries me, my 1st move is to grab the camera, capture proof of it for those dismissive doctors, AND I don't care who thinks i'm crazy. I'm fighting this disease to win, at least a draw... I don't want to be on the losing side. So I refuse to pull my punches.
Am I crazy? Sure enuff.. Am I a fighter? You bet your ass. I'm betting mine!!!