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gr8deadfan

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Hi all,

Just thought I'd introduce myself as I wanted to create a post in the treatment section because I think I've found something that really works for me.

I was diagnosed in 2001 but never got angry at all. They way I saw it, there were much worse diseases that the doctor could have told me I had. I was also happy to finally know why for years as a teenager I would be doubled over in pain for 20 mins at a time that no doctor could ever explain. I initially tried to eliminate some foods from my diet to see if anything "set me off" but could never find anything in particular that did, so I've never modified my diet. I may be lucky in that respect.

I read this and other forums from time to time, but tend to find them a bit depressing so I have never joined until now. I have never let Crohn's change my life in any way (except my yearly prescription medication costs going from $0 to $240). I work a normal job and travel all the time. I got married in Feb. '06. I hate some of the negative things that I see in the media associated with this disease and how they make it out to rule our lives. Again, perhaps I am just very lucky but I believe that like everything else in life, it comes down to 10% what happens to you and 90% how you deal with it.

~Alan
 
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Hi Alan and welcome to the forum. Its nice to hear something positive. Look forward to getting to know you.


Ruth
 
Hey Allan.. Welcome to the forum.. A positive attitude and a greatfull dead fan too. You must be doing something right if all you're paying for meds is $240 a year. That's about what I pay every 1/2 month (allowing for the exchange rate). all the best, OK?
 
Hi Kev,

Thanks. I take 12 Pentasa a day, covered by my insurance. Believe it or not, I was paying $80 a year ($20 co-pay every 3 months) for the first three years, which then quadrupled to $320 (not $240, sorry) a year ($80 every 3 months) and is unfortunatley doubling this year to $640 as my co-pay has just risen to $160 pop as of Jan 1.

I don't know what I'd do if I had to pay $400+ a month. Ouch!

~Alan
 
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Welcome

Hi Alan!
Just popped in to say :welcome: to the forum!
Love your positive attitude! :wink:

Welcoming hugs~Nancy
 
New

Hi Alan
Welcome to the forum. Lets pray that you dont have to go on Rmicade. This infusion is like the price of gold.LOL. One vial costs 1100.00 in Canada and it goes by your weight. Each vial is 5mg. I could not afford this if it wasnt for ODSP. Plus all the other drugs that Im on. Iwas also on TPN a few times.That was like 1500.00 a week. Last year I had to add up the cost of all the drugs I was on 50,000 dollars. I almost had a heart attack. Joking . Thank god I was covered for most of the meds. I mean think about That I could of had a huge down payment on a house. Sorry I got kinda side track. I just had to Vent a bit. I should of put this post under vent away.



Anyways Goodluck TAMMY:eek:
 
Tammy...mind me asking what ODSP is?
I was self employed when diagnosed..always paid for my meds as I was seldom ill.
When Cohn's hit I had to get on the government run Trillium plan.
Have you heard of that?
 
Hey Alan, thats odd that you're taking 12 tablets a day of the Pentasa, I thought the maximum you could take a day was 8. What Mg are yours? I take 8 x 500mg a day and the leaflet in the box says 8 of those a day is the maximum amount.

Ruth
 
Hi Ruth,

I am aware of the 500mg Pentasa capsules but I stick with the 250mg type as I can fit all 12 in my daily pill box and still have room for my daily multi vitamin and Una de gato pills. The 500mg pills don't fit in the small pill box I carry.

~Alan
 
Welcome to the forum Alan,

I am glad that Pentasa has been the medication that works for you. I am currently on it now (as a maintenance drug) and am doing well with it.

Not letting the disease stress you out or affect your outlook on life is very important and I am glad you can be such a great role model to all of us here!
 
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I am sure that you will have a great time here and you will also make plenty of new friends ... jump right in and have some fun !!
 

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