Think i really messed my self up this time

[spcwife23]

think i really messed my self up this time

i dont no what i did to my self but when i first went on pentasa and prednisone i was doing great for 2 months... sigh then i went out with my son and he was starving and i was hungry and i ate outside and drank dr pepper.. since then which is about 2 weeks now i been flaring like crazy.. i was giving the prednisone sometime to see if it would work again but man this pain is stuck on a 6 and wont get better.. i called my gastro doctor and i dont no if these people even care.. see the problem is my husband is deployed and i dont no anyone where i am, so i cant just up and leave to go to the emergency room when ever i want.. i usually only go when the pain is about 9 or 10 which is really extremely bad.. sigh i called my doctor and left messages the past 2 days now waiting for this dude to call me and see what i can do because i cant stay this way..

im angry and fustrated at myself, i was doing so well and because i couldnt control my self now im in pain sigh sucks.. i dont no whats wrong with me that i have no self control.. sorry im just really angry right now at my self

 

[Katiepede]

Hey hey,
You shouldn't beat yourself up, we all cave and eat things for convenience (or because they taste sooo good) sometimes...
Not that long ago I ate some cheese (after years of not).... baaaaaad idea, but it tasted amazing ;-)

I really hope you are able to get in contact with your doc and feel better soon :-D xx

 

[Crohns08]

Katiepede is right, we all have cravings and moments of weakness sometimes. For me, it's chocolate and it gets me any chance I let it because I have such a large sweet tooth and like you I just love Dr. Pepper!

To be honest it sounds like maybe this flare is stronger and the pentasa is just not cutting it. Pentasa is mesalamine and a relatively weak drug used as a first option with milder cases. It sounds like you just need to have a meeting with your GI to see what your next options are and maybe get a CT or a colonoscopy to see how much your flare has progressed. You don't want things to progress to far. Just my two cents

 

[spcwife23]

thanks you katiepede and crohns08 for the advice, im trying not to beat my self up to much but that was a bad mistake.. i guess i thought it was ok since before i had my colonoscopy in feburary i was able to drink it but i guess now its a heck no..

i have a doctor appoinment 22 of march but it seems so long away but i guess i can deal with the pain, until it gets worst.. the prednisone and the pentasa was working very well till i did the biggest mistake of my life and drank the soda.. i guess you live and you learn what triggers your tummy off.. i would think spicy, or fat, or any junk food would do it but nope its soda hahah thats sucks because i do love my soda.. i was so depress about it i ate 3 bars of chocolate hehe being greedy i think..

the doctor did say if i flare again that he would change my meds even though im mild.. but i hope im staying that way scared for it to get moderate or something worst..

 

[Crohns08]

Something I also thought about was that when I'm flaring I can't drink soda, but some diet sodas do agree with me. It's not as good as the real thing, but it always helped in a pinch! If it's the carbonation you like you might want to consider playing with the ratios of maybe a favorite juice to sparkling water or club soda? Just depends on what about the soda bothers you.

 

[Grumbletum]

It's so easily done. I ate out at an Int'l Women's day at the weekend and have been bad for three days. There wasn't a lot on the menu that wasn't one of my 'suspicious' foods so I had tuna with sweetcorn and tried to pick the bits out. And a cranberry cocktail which I now think might have had lemonade in.
I hope you get sorte soon x

 

[spcwife23]

hey everyone, well doctor finally called, he told me that the prednizone is the culprit... see i dropped my predisone from 20mg to 10mg and my body wasnt really happy about it so it flared like crazy.. he said to go back to 20mg till i come see him on the 22nd and try to figure out what to do but he was talking about putting it pass 20mg and seeing how that works with my body.. good news is he didnt blame me, he blamed his self and said that he dropped me to fast.. i felt bad and told him that it was my fault for drinking soda, but i really didnt no that soda would do what it did..

 

[Nytefyre]

Good that you have an answer. Bad that you have to up your pred. But if that's what it takes, then that's what it takes.

Haha, you should have left all the blame with the doc.:thumleft:

Seriously though, it's a good thing know what's going on.

 

[bkbigfish]

If your in that much pain, arent you worried about a blockage? That could be serious if left untreated. I had a partial blockage and feel 98% better since it was removed! Good luck, Billy

 

[ameslouise]

Some docs say that you should taper by 2 or 2.5 mg when you reach 20 mg. And yes, let your doc blame himself as it is inexcusible that it took him two days to call you back!

Food does not make you flare, from what I understand, but can sure make you feel bad! Don't beat yourself up about it. But next time I wouldn't recommend consoling yourself with chocolate - you'll just make it worse!!!

Hang in there - hope you start to feel better soon.

- Amy

 

[spcwife23]

Well this pain went from a 5 to a 7 now.. I waited for my husband to call from overseas and ask him to call the doctor and tell them what's going on.. I don't know if this doctor is takin me serious or even realiseing how hard it is to be in pain and having to take care of a toddler.. Anyways my husband called and told the secutary (sp) what's going and she told him some bull crap about she doesn't no why the meds I'm on isn't working, that's it should be.. I'm like you kidding me right, well Im guessing ITS NOT.. So I'm sitting here waiting on him to call back.. The only reason I'm pushing this is because the pain is hitting the left side of the tummy and going all the around and hitting my back.. I'm nausuace and I have to force to drink water or anything to take meds or else I'm not drinking or eating anything.. and if you know when your tummy gurgling, well it's a painful gurgle.. I feel like I'm going through labour. the pain is off and on and when it hits, I can't move.. Dang doctor taking forever

 

[spcwife23]

Well doctor got back in contact with me, he upped my dosage to 40 mg and said if it doesn't get better by the weekend to go straight into the emergency room and they will give me a steroid iv or something like that.. He said that this is really a flare when he was coming off the phone.. I wanted to say ummm you serious when wasn't it a flare.. Pfft sorry guys I'm really in a bad mood with all this pain

 

[Terriernut]

hey everyone, well doctor finally called, he told me that the prednizone is the culprit... see i dropped my predisone from 20mg to 10mg and my body wasnt really happy about it so it flared like crazy.. he said to go back to 20mg till i come see him on the 22nd and try to figure out what to do but he was talking about putting it pass 20mg and seeing how that works with my body.. good news is he didnt blame me, he blamed his self and said that he dropped me to fast.. i felt bad and told him that it was my fault for drinking soda, but i really didnt no that soda would do what it did..

And you were beating yourself up for drinking a soda. Pred should be dropped from 20mg to 15mg at most. Beating yourself up doesnt help your crohn's luv, please please please go easier on yourself! You seem such a lovely person! Your Dr should've known better. I am hoping you feel better very soon...sending cyber hugs your way!
Misty

 

[spcwife23]

Hehe Ty that put a smile on my face.. To be honest I like my doctor but I turn into a mean person once the pain hits over a 6.. I feel like I'm a brat and complaining when I seen scary stories on here about people doctors who doesn't care about them or don't care about the situation. My doctor is cocky but he for some reason seems to some what care I guess I need to give him some slack and not be mean even if I'm in pain.. You know what I love about my doctor, he isn't perfect at all, he I think is deaf I've seen 2 of those hearing aid in his ears and the way he talks told me that.. And I love that he's not the type of doctor that seems to perfect in every thing, even there looks and nothing ever seems to go wrong in their world.. To be honest looking at how other doctors treat their patients and how mines do I feel I should just shut up and stop complaining..

If I have been complaining I'm so sorry and won't happen again,there's others who need the support and pain or no pain I'm here for yall

 

[spcwife23]

Hahaha Terriernut I needed you today, thank you for making me laugh

 

[spcwife23]

so im on 40 mg of prednizone and i feel great lol.. im bouncing off the walls and the pain is wayyy less than before.. and im happier lol i just feel really great right now..

 

[Terriernut]

Dont overdo it!!!

 

[ameslouise]

Yep - 40 mg will do that for ya! Enjoy feeling good, but like Misty says, don't over do it!

Hope you continue to feel well - Amy

 

[spcwife23]

hehe ill try not to.. but i feel so good i started doing zumba at the gym.. and it feels so good not to be in pain and have as much energy as i have now.. its weird last night around 12 midnight i was cleaning the house instead of sleeping because i had wayyyy to much energy...