This is Me and my life

[xX Miste12s Wif3 Xx]

Hi Everyone,
My name is Megan, I am a married 24 year old with 2 kids. Both Boys, my oldest Devin is 4 almost 5 and my youngest is Makale he is just 5 months. I must say after reading some of the posts on here, I think I have come off fairly easy. I have been in pain the last 3 years with this stuff. At first they thought it was just kidney stones which I have been in and out of the hospital to the point that the drs and nurses knew me by name. I don't know for other women but for me, when I am pregnant it really really hits. This last pregnancy I was in the hospital more times than I could count on my hands and feet and the drs never could figure out what was going on, well about 2 months ago I went back into the drs after no conclusion I started doing the investigating myself. I went online trying to figure out the symptoms that I had. And after a couple of weeks of really searching I realized that I kept coming back to crohns disease. Not fully knowing what it was or anything. I went back into the hospital just a week ago and the drs again thought it was kidney stones or my appendix.. it was neither of those started to talk to them about crohns disease and other symptoms that I was experiencing, after the dr talked with other drs about it and looking at my chart, they decided that that's what it was/is. I am still in a lot of pain today and for those of you with kids, I know you understand the look you have to give them and pretend that you are ok and do the best you can with them. I am just glad that I found this forum. Thank you for listening. Sorry it is so long.

 

[My Butt Hurts]

Hi Megan, welcome to the forum.
Don't apologize, that wasn't long at all.
Are you taking any meds right now? I am surprised they would say it was Crohn's for sure without a colonoscopy or something similar. What lead them to their diagnosis besides your symptoms?
My son was 2 when I was diagnosed, he is now 9 and I have a 4 year old too. Kids are very resilient and understanding to things like this, so don't worry about them if you are having a rough day.
Glad you're here.

 

[fenway1971]

Hi Megan,
Glad you joined. This is a great place to ask questions, etc. And never apologize. Your first wasn't that long.

MBH asked my question. What tests did they run to determine crohns?

 

[Guest1]

Welcome! I'm sorry you're having to deal with this. As a mom myself, I understand the struggles (although I haven't officially been diagnosed with anything yet -- my colonoscopy is scheduled for this month). I'm always interested in cases where people have appendix pain. For me, I have lower right quadrant pain daily and have felt like my appendix wanted to rupture. Today I actually had to call my husband home from work because I'm feeling miserable, blah. Anyway, you'll find this board to be a lovely group with tons of support!

 

[Guest1]

*Adding* Also, have you had a colonoscopy done yet?!? If not, PLEASE get one done! Unfortunately, there are quite a few colon diseases out there that can mimic one another and a possible misdiagnosis could delay treatment *if* that's the case.

 

[xX Miste12s Wif3 Xx]

Thanks

They have done CT scans, A LOT of blood work, I haven't had the colonoscopy yet. As of right now I don't have any insurance so it is making all of this so hard I am going to have to pay over 6 grand just for the stuff they have done in the hospital the last 2 times I have been in there. I am so glad that all of you are understanding of me. And I completely understand about your pain. It seems everyday is a battle just to get out of bed. I would definitely like to get to know more about this disease and ALL symptoms, also the drs didn't really tell me what to eat other than bland foods, does this go for everyone?

 

[kello82]

hey megan & welcome!
well, youve come to a really good place to learn about the disease and symptoms and what not. pretty much any questions you have, someone will have input or advice on, and there is so much information already on here in existing threads. you are not alone in ANY of this, thats for sure.
as far as the diet, well bland foods are probably a good way to go until you know a bit more about your disease. however, youll notice from reading around here that all of us are very different and one food may kill one person, and the next person can consume bucketloads of it and be totally fine. diet is really a personal thing when it comes to this and we all kinda have to figure out what our bodies do and dont like. after 10 years i sTILL havent come up with many conclusions lol.
use the search tool to look for anything you want, and keep asking questions! we'll be here for you as you go through your upcoming testing and stuff ok?
take care and keep updating!

 

[fenway1971]

megan -
there's a lot of good information on this site. just search around and you'll inevitably find an answer. or post! we all like to chat and be helpful if we can.

we're understanding because we share the same disease. why symptoms differ from person to person, we have a common bond of knowing how this disease can drag you down. i highly recommend the colonoscopy though...it'll be able to evaluate where the disease is, how severe, etc. location of disease also seems to determine what foods are good or not good for you.

for me, i find that cutting out sugars, corn syrup, anything that seems like it's hard to digest isn't good for me. but everyone seems a bit different.

welcome!

 

[My Butt Hurts]

Uh oh Megan - it looks like your account was deleted accidently. It's been happening to new people lately. You might have to reregister, but don't let that keep you away!

Yeah - food is different for everyone. It's trial and error. I can't eat apple cider, apples with skin, beans, popcorn, and recently I think I just realized raw parsnips.
You might want to try a low residue diet (google it for details) sometimes that helps people a bit.