Times are tough...

[Crohns08]

So as of late, times have been tough. I haven't posted in awhile, but the last time I was here, I was experiencing a terrible bout of pain with antibiotics, and ever since then, life has not been good with crohns.

I'm back in a flare, and it feels like there isn't anything I can eat that won't upset me at times. I'm back on the pentasa and they even put me on prednisone which is something that makes me nervous. I'll have been on it a week on Thursday, so hopefully between then and a week from then I'll be feeling a bit better.

I'm trying a new diet that is similar to the SCD, but it's a little less restricting. My Mom met a man and his son who have crohns and they're doing fantastic, so he's helping us out which is a good thing! There are so many gluten free products out there that I never knew about and he's done so much research on how certain food products are made.

Last night was really rough though. I didn't eat enough with my pentasa and I spent the whole night with intense pain, diarrhea, throwing up, the whole nine yards. My parents wanted to take me to the hospital, but stubborn me, I toughed it out. :ybatty:

Sometimes I just feel like it never ends, and I guess I'm just looking for some support that things will get better from people who know what it's like to be sick. If anyone has any tips as well what helps in times like these, I'd appreciate them! I'm willing to try anything at this point to get me back into a remission!

 

[Lydia]

Good luck with your diet. Maybe get an food allergy test done to know what better to avoid. Try using more coconut oil as its supposed to keep the candida down and help close up a leaky gut.

Its tough trying to figure this stuff out. This disease is so unique for everyone.

 

[My Butt Hurts]

Awwwww, sorry you're feeling like crap again. Hopefully your new diet will help you out a bit. Do any of the supplemental drinks go with that diet? You might want to try some of thsoe just to keep calories in you.

 

[Astra]

Maybe when the Pred kicks in you will feel better?
IMO Pentasa isn't strong enough on it's own
Just a thought tho, when I was violently vomiting, I went to A&E, and good job I did, I was blocked with an infection. and a CRP of 261
Consider going if you're vomiting again, listen to your mum, mum's know best!
Good luck
xxx

 

[Crohns08]

Thanks guys for the advice. Today wasn't so bad, been sticking to the basics... Chicken, Fish, rice, and cooked veggies and soft fruits with a lot of water. I brought up the meal replacement drinks but my Dad wasn't too keen on them because he didn't know how they were made and what goes in them, etc.

We do know for certain that gluten and I don't mix, and butter hasn't been good, so we have been doing gluten free things and we've switched to almond butter. We have been avoiding dairy products.

I've been having issues with sleep though because of the pred. I'm on a tapering dose but it's still kicking my butt. I usually can't get to sleep until around 5 am and I sleep in until noon often times. It's like during the day I feel fine, just a little tired, but when night time rolls around I feel like death.

 

[Astra]

I found that it helped to take my Pred very early about 7am, the effects will wear off about midnight, the insomnia is a killer!
And no caffeine, coffee or coke

 

[Rob]

I found having a hot relaxin bath or shower just before goin to bed helps me when I hav trouble sleeping

the longer your on pred the less the insomnia effects become IMO

you could try heat pads and or wheat bags etc for some comfort too they help with flares
good luck

 

[Crohns08]

The insomnia is quite the killer! I had actually managed sleep at around 3 am last night, so a slight improvement!

Oh good ideas! I haven't had any caffeine or anything like that, (hasn't crossed my mind) But I'll definitely avoid those things! I bet warm baths help as well, I'll definitely have to try that! Thanks for the tips!