Tingling in IV arm? Remicade

[crohniekid]

So I haven't posted in awhile...crazy to think that it's almost been a year to the day since R was diagnosed. Unfortunately we are not any further ahead than we were last year. R has been flaring since December, although he has never really been in remission. We added flagyl to the mix and while it improved his BM consistency R developed a reaction to it after 3 weeks. Imuran levels were tested and came back at 220 (therapeutic levels are 400-450) and R had his second set of scopes last Friday. They showed quite a bit of improvement in his colon and a worsening in his TI area.
We've since moved on to Remicade and MTX. Today was the first infusion. After about 40 minutes R developed nausea and a tingling/stinging sensation in his infusion arm. Our IBD nurse came to check it out but decided that it was more important to finish (at a slower rate).
Unfortunately it's been over 4 hours since we finished the infusion and the tingling is still there, no better or worse. He says it's not unbearable but that it hurts to touch or hold a pencil. The sensation goes from his fingertips to his shoulder in the infusion arm only. Should I be concerned? I read that tingling is a side effect to watch out for but couldn't find a lot of information on how long we should expect it to last. His nausea has subsided to his usual CD pain.

 

[my little penguin]

You need to let the GI office know about the tingling .
tgey should have given you a sheet on thing to call after office hours for and things to call during business hours .
Maybe run it by the on call GI ???
I know DS had tingling in his tongue during the last two remicade infusions and the prolonged tingling was considered a reaction
He had to have a brain mri prior to being permitted to start humira .
It may just be a weird infusion thing for him since its in his arm but..,,
Better to check it

 

[Maya142]

Definitely call and let them know. Better to be safe.
Hang in there, Remicade can take a while to kick in. Some kids respond immediately, but it took 4 infusions or so for my daughter :hug:

 

[kimmidwife]

I agree that warrants a call to the GI. You can possibly call the remicade people as well and speak to one of their on call nurses for advice. I have done that several times for several drugs including remicade and they are always very helpful.

 

[Farmwife]

Any better?


Hugs

 

[crohniekid]

Thanks for the replies. R is feeling much better today and the tingling has subsided. We are hoping that the IV just irritated the tingling that the flagyl caused last week. If it comes back then we are going to retest his B12 levels (just checked in Jan). Hopefully the infusion in March goes off without a hitch.