Tired of fighting this

[Zman]

Zman's Avatar

Join Date: Jan 2009
Location: Austin Tx
Posts: 33

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Im back after a year . I was on Tysabri it caused a severe mental break down had to stop it. Disease remained in remission for another year. Now its back . Drs cant cut on me anymore , Ive grown immune to all meds, Now Ive lost the will to fight this any more so the the last thing I can lose to this disease is my life , honestly it sounds like a better alternative .

 

[Dexky]

Oh man Z, I can't imagine what you're going through. Read MrZiggy's thread about stem cell replacement. It is a trial but you sound like the perfect candidate!!

 

[D Bergy]

You actually have several alternatives that you have not tried yet, so do not lose hope.

You have Low Dose Naltrexone which is one of the best treatments, if you respond well to it. It is cheap, it works for most people, and minimal side effects.

I use Miracle Mineral Supplement which is not even a Crohn's treatment, but brought me straight out of my post surgical flare.

I am working on other alternative treatments all of the time, and it takes a while to find something that helps, but I eventually do find something. It is just a matter of time, and experimentation.

I am having some interesting early results with one of them. I am not ready to say it is going to be effective, but a few more months will tell me a lot.

There is a lot more out there than you are currently aware of.

Seriously consider LDN. I use it, and it has worked pretty good. If that does not work, the are other things to try out.

As a Texan, you know that you sometimes you have to "Take the Bull by the Horns". There is a lot of truth in that statement.

Dan

 

[Barbie]

I'm so so so sorry your feeling so so awful. Hate to think of anyone going through this and feeling this way. Your talking to the right, amazing, inspiring, strong community of love and support and you can beat this you really can. Sometimes when we get so so low its just so difficult to pull ourselves out of that hole and you just dont feel like you have the energy. I'm sorry I dont have any answers for you but please dont let this stop you from finding happiness in the smallest teeniest tinyiest places, I know it feels impossible and you probably just want me to shut up but honestly there are more happy times out there, sometimes we have to feel so rubbish to appreciate another moment. You cant help it if you feel this way and its important thatyou talk and tell us or someone or a journal how you feel but Ive learnt so so so much over the years and experience has told me that sometimes when you feel this low something comes out of the darkness and makes you smile again. It may not be remission, It may not be anything to do with your health but life has to look up at some point. I really hope I dont sound patronising, Im thinking of you and I really really hope your ok.

love and hugs,

Barbie xx

 

[Barbie]

p.s and if that you in your pic anyone with a smiley friendly face like that is too bright to be wasted! be good to yourself :0)

 

[belle1999]

p.s and if that you in your pic anyone with a smiley friendly face like that is too bright to be wasted! be good to yourself :0)

Agreed! :hug::hang:

 

[CDDad]

Hi Zman,
It's hard for me to imagine what you"re going through. My story sounds like a jr version of yours. I recently got the bag, and lost my colon and rectum. I also lost some small bowel last year. I've been fighting Crohn's since I'm 20 (23 years ago). But, I didn't have it as bad as you. Didn't lose as much over the years.

I read some of your old posts, when things were going better for you. All I can say is don't give up. Keep posting here for support. Also, come join us in the Stoma sub section. You must have plently of advice and support for new ostimates like me.