Undiagnosed, tired, sad and relieved I'm not alone

[Janelle]

Hi everyone,

I just found this forum today and I want to thank you already. Reading your stories has helped me realize that I am not alone, and not crazy. I am undiagnosed and have a colonoscopy in a few weeks. I am have had a barium follow-through (acid reflux), barium enema (neg.), blood tests (low B12), and multiple ultrasounds and x-rays (neg.). But the symptoms, oh the symptoms. I have had pain in my right lower quadrant since I had breast reduction surgery over 2 years ago. Topping it off with anal pain, cramping,, diarrhoea, gas, a big bloated stomach, eye problems, a growth in my mouth, groin itchiness, fatigue and dizziness. Today is the first time I can admit that it has made me depressed. My engagement to the love of my life nearly fell apart during all this. So at this point, I am undiagnosed. But despite what my family and boyfriend says, I am NOT ok.

I am unsure what the future will hold and I'm scared. Will I be able to live a normal life? Can I have a successful marriage? Am I asking too much of my finance to take all this on? I love him so much. I wish I could be better for him. And me.

Any support would be so appreciate. I can't even describe how thankful I am to find this group of people.

Much love-

Janelle

 

[kiny]

Why are you sad. You seem to have someone with you who supports you, they're doing tests which means you have people who care for you and you're still alive, which is always a plus.

 

[Crohn's 35]

:welcome: Janelle, another Canadian here! Low B12 is very common in Crohns so it the lower right quadrant, bloat..all of it. Sorry to say it took me over a year of testing and agony to be diagnosed. When they do biopies they have to have the right spot and therefore should be taken alot at the time of the scope. I found after my surgery not crohns related and very close, wasnt long after that the pains and diahread became unbearable.

As for your fiance, it is hard for outsiders because unless you get it under control, many parties and festivities can be cancelled because there is no predicting this disaease. Alot of people find their drug that works for them, trial and error. You will need support, and suggestions is a good IBD book for him to read both of you.

The main person you worry about is you ok...I know that is hard but when you look after you , everything else falls into place. We are all a great bunch here, laughs, crying , and supporting each other it is why we are all here ...oh and to learn too

Hope you join us and welcome aboard!

 

[pain in the butt 2]

:welcome:welcome

 

[Janelle]

Thanks for the warm welcome.

I know I have a lot to be thankful for. I am just adjusting to the idea of being sick. I've had an eating disorder for 12 years, but I always felt like I controlled it (hard to explain). Now the idea of having an illness that can so dramatically change my quality of life is hard to get used to.

I'm not currently taking any medications, so hopefully that will help me get back to "normal." Medication seems to have helped many of you, which gives me hope.

 

[Jessi]

Hi Janelle! Welcome to our family. :hug: I'm so sorry that you're having a rough time. It looks like you're on the road to finding some answers, so I hope they come quickly.

We have a wonderful group of friends that will help you along the way in this forum. Check out our Undiagnosed Club. Many people will be able to relate to you. Hang in there, sweetie.

http://www.crohnsforum.com/forumdisplay.php?f=75

 

[hannah-rose]

Hi Janelle, welcome to the forum *waves* wishing you a quick diagnosis (I know how you feel about being undiagnosed) and hoping you feel happier soon xx

 

[xJillx]

Welcome, Janelle. I am currently undiagnosed, too (after having a diagnosis...long story). I know how scary the uncertainty can be. But you need to just take it day by day. There are going to be bad days, but there are going to be good days, too. So, on the bad days, I just push through knowing better ones are to come. And on the good days, I really enjoy them!

If you do get a diagnosis, you will be able to start treatment and hopefully gain remission where you have no symptoms at all. It may take time to find the right treatment for you, but it most certainly can happen. Stay positive!