- Joined
- Jun 2, 2012
- Messages
- 11
I am currently undiagnosed. All of this started a a few months ago. I was getting nauseate every time I ate and was losing weight. I was on Topamax for what my dr thought was migraines (light and sound did not bother me, just headaches daily). Went to my primary (who I no longer see) mashed on my stomach near the epigastric area and said "Oh you are nausea and losing weight because you are not eating due to what seems like Acid reflux, Gastrisis, and Ulcers. Put me on two new medications for 2 months. Took the medicine for a month and saw no improvement.
I then decided I should switch Dr's. I found a new one that immediately took me off Topamax, Protonix, and Sucralfate. He did a full thyroid panal (one was never done just a low level thyroid test and put me on medication), and about 6 more blood test. I was told to come back in a week. Went back and had not gain any weight, had actually lost a pound or two. He took me out of work for a week. He asked me about my bowel habits and anything else. I said yea they have changed and I have a pain in my right lower side. I have a history of cyst but this felt different and I knew it was not my appendix since the pain would go and come.
He decided that I should have a Upper/Lower GI series. Had that done that week and they found inflammation and ulcers in the terminal ilium.
Went to the GI for follow up appointment and saw that the ulcers were very tiny but I was still in some pain. He wanted me to have a CT scan within the week so I took off work for 12 hours and had a CT scan with contrast the next morning. It showed inflammation, and mild thickening in the terminal ilium.
I was given Entocort 9mg for 4 weeks, then I drop to 6mg for 2 weeks, then 3 mg for 2 weeks.
I've been on 9mg for almost 3 1/2 weeks. I've seen some improvement, but then again I will hurt. I'm still trying to figure out my diet and trying to stay away from the foods I love. Its been difficult at work (work 24 hour shifts). Hopefully I am getting the hang of what I can eat and what to stay away from.
I then decided I should switch Dr's. I found a new one that immediately took me off Topamax, Protonix, and Sucralfate. He did a full thyroid panal (one was never done just a low level thyroid test and put me on medication), and about 6 more blood test. I was told to come back in a week. Went back and had not gain any weight, had actually lost a pound or two. He took me out of work for a week. He asked me about my bowel habits and anything else. I said yea they have changed and I have a pain in my right lower side. I have a history of cyst but this felt different and I knew it was not my appendix since the pain would go and come.
He decided that I should have a Upper/Lower GI series. Had that done that week and they found inflammation and ulcers in the terminal ilium.
Went to the GI for follow up appointment and saw that the ulcers were very tiny but I was still in some pain. He wanted me to have a CT scan within the week so I took off work for 12 hours and had a CT scan with contrast the next morning. It showed inflammation, and mild thickening in the terminal ilium.
I was given Entocort 9mg for 4 weeks, then I drop to 6mg for 2 weeks, then 3 mg for 2 weeks.
I've been on 9mg for almost 3 1/2 weeks. I've seen some improvement, but then again I will hurt. I'm still trying to figure out my diet and trying to stay away from the foods I love. Its been difficult at work (work 24 hour shifts). Hopefully I am getting the hang of what I can eat and what to stay away from.
) 
