UPDATE: Appointment with GI Tomorrow and Feeling Like a Newb :P

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Jennifer

Jennifer

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I saw my Rheumy a week and a half ago and he took me off Humira since I kept getting sick with an upper resp cold (sore throat, coughing, running nose, body aches, ya da ya da). So he's trying to get Remicade approved. Haven't heard anything yet.

I'm seeing my GI tomorrow and he's going to ask how the Humira is going I'm sure. So I get to tell him the news. He's always so late in the game. My Rheumy treats my Crohn's more than my GI lately.

I don't even know what to say to my GI anymore. I've had the disease forever it seems and know what to tell him symptoms wise but I have no idea what to ask him anymore. Other than, "how do you feel about me going on Remicade?"

I'll tell him about the traces of blood in my urine since July and the Ultrasound I had which showed a nice fatty liver and see what he has to say about either of those.

I just feel lost. I mean Remicade is kind of a last option for me and if it doesn't work then I'll likely go into a flare. Can't go back on 6MP due it it possibly damaging my liver further. I just hate being in the position of having to fight for the remission I still have with very little options left. I'm a newb to the world of few options. D:

UPDATE:

Went to the GI today. Long story short here's the low down.

- CRP is 12.2 (its steadily rising)

- GI is doing a colonoscopy and endoscopy THIS Wednesday (I get to prep tomorrow, fun). He wants to do the scopes now while he has the chance since I'm on no meds currently.

- After the scopes I'll start back on Asacol and Entocort just so I can be on something while I wait for the OK for Remicade.

- He's getting the results of the ultrasound sent to him so we can discuss my liver and see if I need to do anything special in that department.

- Followup appointment is on the following Tuesday the 20th to discuss how things are going inside and discuss the game plane.

- He's all for trying Remicade. Says the major downside is having to hang around for the infusion but he's hopeful that I'll do well with it since I did do well when I started the Humira at first.

I did not ask if I was still in remission or clinical remission or in a flare or whatever. At this point we're just trying to get whatever is going on under control before it gets out of hand.
 
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Sorry to hear all of that! D8 I really hope you get it all worked out, the medicine part is so tricky for us Crohnies.

I'm right with you on not knowing what to ask the doctor though. And I'm especially bad about keeping quiet because I don't want to "complain".
 
I bring a list with all my complaints VictoriaSage. :D A good doctor will listen to everything you have to say. Hope you find a good one too in the near future. ;)
 
That's a good idea, to write everything down. And thank you!

I'm wondering, have you tried the Remicade at all yet?
 
No not yet VictoriaSage. Waiting for my insurance to approve it. D: They approved the Humira and I was told they should approve Remicade. Just haven't heard a word. I don't like going completely off meds. Last time that happened I had a really bad flare which eventually led to my surgery. Don't want to go through that again. Surgery isn't a very good treatment plan.
 
You give so much advice here and seem to know so much, I'm wouldn't be surprised if you seem to know more than some of your doctors!

So sorry to hear you feel you're running out of treatment options. Was it one bad experience of surgery that's put you off? I've heard of surgery being successful in some cases, as a last resort, and depending on the nature of the problem.

Maybe time for a new specialist, or a second opinion (or whatever number or opinions you're on ;) )?

Sorry I have no real advice to offer. I hope you find some relief from the Remicade or another way to avoid a flare.
 
Sorry to hear you are having so many issues. Remicade was the one drug I never tried. I hope it works for you.
 
Crabby, I feel for you. I'm in a similar situation - after a couple of years of my IBD being in remission and not really having many tests or appointments, my GERD has now gotten bad enough that I'm undergoing a battery of tests and my GI has mentioned the possibility of surgery. I have a GI appointment on Thurs and then an upper endoscopy on Fri of this week. This has a deja vu feeling (not in a good way). I can totally relate to feeling like a noob and not knowing what to ask.

I agree that writing everything down is a good idea. What I do is, I keep a spreadsheet on my computer. Whenever a question or a thought about my health pops into my head, no matter how silly or strange it is, I add it to my spreadsheet. Then, before my appointment, I take that spreadsheet and sort it so that the most urgent and important questions are at the top and the silly weird stuff is at the bottom. Then I ask my GI my questions, and it's okay if we don't have time for the stuff at the bottom of the list. My problem this time around is that I don't have many questions on my spreadsheet just yet so I'm afraid I'm only going to be asking stupid questions. Like you said, I don't really know what to ask.

I know that wasn't very helpful, but long story short is that I totally get it and feel for you. I hope we can both get some satisfactory answers and good treatment. I hope the appointment goes well, good luck!!
 
UnXmas said:
So sorry to hear you feel you're running out of treatment options. Was it one bad experience of surgery that's put you off? I've heard of surgery being successful in some cases, as a last resort, and depending on the nature of the problem.
Click to expand...

The surgery put me into remission. Even having an infection from being on Prednisone during the surgery and having the heal time being long and painful and annoying (having to shower twice a day and scrub the wound and have it repacked twice a day to let it heal from the inside out) didn't put me off from having surgery. The point is that we only have so much intestine to work with. So if the meds run out then my risk of surgery again and again goes up. I'd really like to avoid that. ;)

And Cat-a-Tonic, I've never been diagnosed with GERD but sometimes have upper symptoms. Most recent one is feeling like there's gas in my throat that wont go up. I'll let him know about it but every time I try to explain something he has no idea what I'm talking about.

It is annoying and sometimes I do feel like I know more than my doctors. D: Also this is the only GI in my area that accepts my insurance. He's not bad but not as good as I've had in the past.
 
Crabby, I would say do definitely ask your doc about your GERD-like symptoms. It may not be GERD but it certainly could be. My GERD started out with just one relatively minor symptom, which was that sometimes when I bent over forward I would feel "stuff" coming up my throat (not acid, but more like non-acid stomach contents coming up). I never had heartburn or indigestion or vurps or any other GERD symptoms at the time, just occasionally my stomach contents would pour up my throat when I bent over. Over time I did start to experience those other fun symptoms I mentioned (in addition to gastritis, nausea, and so on), so my advice would be to get it checked out now before you start getting worse symptoms. If you can get it identified and controlled early on, hopefully it won't become severe and out of control like mine is. I take Nexium, Zantac, Gaviscon and about a zillion Tums every day just to function and even then it can get really bad sometimes. So yeah, I hope you don't have GERD because GERD is seriously almost as yucky as IBD.

And I totally agree with you on trying to avoid surgery - just a thought, would your insurance cover stem cell treatment? I think I read in Ziggy's blog that some of the requirements are that you have to have had Crohn's for over 5 years and have exhausted all the mainstream meds (I believe things like LDN are excluded). It sounds like you'd fit the criteria if you failed Remi - just a non-surgical alternative to ponder over. Assuming your insurance would cover it of course.
 
Thanks Cat-a-Tonic. I've actually had that feeling of stuff coming up when I bend over. Not cool. I've also woken up with acid or almost vomit in my mouth in the morning but that's pretty rare. I used to take something a while back but had to stop it because my insurance only pays for up to 6 prescriptions a month so at the time it was like what are my priorities? Ya know? If I fail Remi then the last option before trying for stem cell or any other non mainstream treatment will be Cimzia. We'll see.

UPDATE:

Went to the GI today. Long story short here's the low down.

- CRP is 12.2 (its steadily rising)

- GI is doing a colonoscopy and endoscopy THIS Wednesday (I get to prep tomorrow, fun). He wants to do the scopes now while he has the chance since I'm on no meds currently.

- After the scopes I'll start back on Asacol and Entocort just so I can be on something while I wait for the OK for Remicade.

- He's getting the results of the ultrasound sent to him so we can discuss my liver and see if I need to do anything special in that department.

- Followup appointment is on the following Tuesday the 20th to discuss how things are going inside and discuss the game plane.

- He's all for trying Remicade. Says the major downside is having to hang around for the infusion but he's hopeful that I'll do well with it since I did do well when I started the Humira at first.

I did not ask if I was still in remission or clinical remission or in a flare or whatever. At this point we're just trying to get whatever is going on under control before it gets out of hand.
 
Keeping you in my thoughts, stay positive and stay away from trigger foods until you can get on meds again
 
Thanks afidz! Guess I'll have to let my husband eat the rest of my Oreos. D: They aren't any good without milk. Maybe I could eat all the frosting out of the rest of them. :p
 
Sending lots of positive thoughts and *hugs* your way Crabby. You give so much around here. Please let us know if there's anything we can do for you.
 
haha Crabby my nephew did that to me the other day! he left just enough frosting to where they still stuck together and then put them all back!
 
LOL That is soooo gross Afidz! That's messed up. :p

Thanks David! I know you're all busy too. Just keep up the good work as you always do! :D
 
Are you happy with the way the appointment went Crabby?

It sounded good and solid to me. :)

I have everything crossed for a fab outcome Crabby!

Dusty. xxx
 
Ya the appointment went pretty well. I kept saying "Rheumy" when talking about my Rheumy and he suddenly asked while pulling out a pen and paper to write it down, "now who is your roommate?" I was like, uh... :p But we got that sorted real quick and had a good laugh.

He also talked about diet a lot which I'm sure David and Gianni would be interested in. He brought up a lot of points that they both have and has been vegan himself but couldn't stick to it because his wife didn't want to and she didn't want her kids to have to. Yet he said he felt a lot better when he did. He reads about diet a lot on his own time and thinks it related to most of the illnesses that we're seeing today be it from hormones to pesticides to genetically engineered food etc. He didn't think that going all organic was necessary but he did mention that I could try eating less meat in case its related to my fatty liver although I hardly eat a lot of meat anymore anyway. Just don't like it as much as vegetables. I asked what about the B12 and he mentioned shopping at New Frontiers and getting the he said it was either the White or Red Star yeast that contains a fair amount of B12 and that you can just eat a little bit of it straight. Was interesting to talk about diet though. He also mentioned the study done in France on the rats where they grew tumors and had other health problems after they were given something, something corn related, I forget but I know I saw it mentioned on this site before, I'd like to find the study. He's also really against the whole grain industry and got on his soap box for a bit. :p Was a nice talk.
 
Wow! That sounds fab. :):):)

Love the 'rheumy'! :lol:

I will tell Sarah about what he said, with her being vegan and all.

Thanks Crabby!
 
He also shared another vegan story DustyKat. He said there was an older women (he knew her) who was a doctor and she got breast cancer in her 50's I think and she said no to chemo. Instead she went all vegan and when she was in her 70's she said that she felt like she was in her 20's plus her breast cancer was completely gone (dunno how long that took or if it was all diet but there was no chemo). She's a spokesperson now. Don't remember her name though. Interesting story though, he told it better. :p

I've also read that people who are vegan or vegetarian also live longer on average so there's definitely something to it for sure. :)
 
Yeah, I tell ya, I am more and more convinced that diet plays a significant role in many disease processes. While I am not convinced it is the whole puzzle it certainly is a part that completes the puzzle.

Thanks for sharing Crabby. :)

Dusty. xxx
 
He also mentioned the study done in France on the rats where they grew tumors and had other health problems after they were given something, something corn related, I forget but I know I saw it mentioned on this site before, I'd like to find the study.
Click to expand...

Here you go Crabby

And here is the less fun, but raw study.


It put a smile on my face reading your posts! I'm so glad to hear you've grown some interest in the food aspect of the disease.

I couldn't put a name to the lady you mentioned that had breast cancer at 70, but I have read about many women who have treated their breast cancer with diet. Actually the Gerson therapy (who treats with nutrition) claims that breast cancer can be one of the easiest cancers to combat nutritionally although no cancer is "easy" to combat of course.

I also believe most diseases are linked to the diet, and I believe most can be treated and reversed by diet:)

I went to a lecture at a local university last week done by Armida Ayala Phd a highly acclaimed anthropologist who in recent years has studied ancestral diets and effects on health. She has worked with the Loren Cordain if you've heard of him.

Anyways I went to this lecture because I had so many questions about ancestral diets and the differences basically between the meat today and the meat of our past. Anyways we got to talking afterwords and she invited me to breakfast. We talked for about 3 hours as she shared with me her stories in dealing with ill people through her non profit that helps struggling and sick families eat healthier food here in Los Angeles. She talked about heart disease, diabetes, cancers, arthritis, addiction, alcoholism all being treated and in some cases even reversed through a nutrient dense, ancestral diet. She told me the story of her sister whom was severely diabetic (type II) and who was completely depressed. She started giving her sister green smoothies and following a paleo diet and within a few months her sister was off of insulin completely... It was a very emotional moment.

She said that is when she knew she was onto something... and she made her non profit and is in the process of trying to help so many people with debilitating disease that cannot get out of a rut. It is doctors like your G.I. that give me and so many others hope for a better health care system... for a healthier generation of children... for a more aware population for the better of the species and the planet. Where not a system of government or group of corporations has the answers but rather the communal effort of the people fighting the battle, fighting the disease.

When a conscious decision is made to take health into your own hands, you refuse to become powerless... in fact you become powerful. By making that decision, you put your future into your own hands and refuse to let others dictate the path you follow and you help institute a change... If most people started realizing the importance of diet and demanded a different system of agriculture by not buying the soy and wheat, but rather buying the super foods like blueberries, guava, spirulina, then a change will institute... A change that will bring healthier food into the system and healthier food into medicine.

Imagine a hospital where a nurse hands you a green vegetable smoothie or juice every morning instead of jello and ice cream.

I know that through this forum, your doctor, my anthropologist friend, people like you and me, we can change the mentality that surrounds chronic diseases like Crohn's... we can break the stigma and dogma that surrounds this disease and instead bring in a whole new perspective that gives hope, that makes sense, and that gives real results.


"Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure."

". As we are liberated from our own fear, our presence automatically liberates others."

- Marianne Williamson



Sorry if I rambled on... if you haven't figured it out yet.. I tend to do that :D

Gianni
 
I do that too if you haven't noticed. :p Diseases are so expensive. They cost the US tons of money and tons of people are on SSI or SSDI and instead of fixing the problem, they just do more budget cuts. If we could help prevent disease, then wouldn't that save the country money? Don't we want to be out of debt? That's some rambling right there. I feel though that scientists would be able to work on curing the current ones rather than creating more treatments for the current ones and new ones that keeps popping up if they were given the time to. My GI talked about Bill Gates and other places that genetically engineer food where they demand to only be served organic foods themselves. They know that food is a problem but do nothing about it.

Well I wasn't making this into a diet thread. Was just sharing with you guys what we had talked about. Eventually I'll work on the poor people diet. I don't have a lot of money and that's been one of the biggest problems as to why I don't eat healthy all the time (shopping at multiple stores is not an option, I don't even have a car :p not to mention gas would be expensive, also can't grow veggies where I live small apartment, no ground for foods either). All the coupons I get are for the frozen food section. :p I'll figure it out some day. Wish I had a cheap store near by like I used to in Pomona, that would make it easy.

Thanks for the links btw. :)
 
No fun! What prep are you doing? I hope it's not too nasty. I know it's never fun though. Hang in there and I hope tomorrow goes smoothly!
 
You know Cat-a-Tonic, they always ALWAYS give me a new prep. I dunno why. This time I'm having Suprep for the first time. Seems simple enough. Not a huge gallon like I'm used to which is nice. She said to mix it with water, mmmm sounds tasty. :p She also said to do another prep in the morning. Dunno why. Why not do it all at night? I mean if you're clear then what's the point in having more diarrhea? :p If I'm not clear then I'll do it again but I've never had to. I'm always clear for scopes. Plus I have to take a bus and there's no bathroom on it. :p I think I'm gonna start at 5 instead of 6 so I'm not up going to the bathroom all night. Hope it doesn't taste too awful. I'm sure it will taste like yuck though as usual. I'd rather eat some Indian food and drink booze. I'll clean out fine with that too. :p
 
Hah! I too would be clean as a whistle if I had spicy food and booze! I know this is Thai, not Indian, but I used to get awful explosive diarrhea from eating "mild" pad thai back before I had IBD, so I can't imagine what it would do to me now. Still, that sounds more fun (although possibly much more painful too) than drinking a jug of saltwater-y prep. I've never done Suprep myself but I believe I've read that it's one of the more, er, violent preps, so I would wager you won't have to do that second dose either. At any rate, I hope it's not too bad and that you don't need to do round 2.
 
Violent huh? Maybe I'll head to Rite Aid and see if they have any cream I could use.
 
So far the Suprep works pretty well. Dunno why they give 2 bottles, I'm clean as a whistle after 2 hours. :p

My scopes were also bumped to 2:30 instead of 4:00 since there was a cancellation. Works for me. :D
 
*taps fingers on the desk*

WELL?

WHERE IS THE STATUS UPDATE OF, "JST WOK UP FRTING LOTTT I THNK I CN FLY!" You've got worried friends here. Where are you priorities? HUH? HUH?

HUH?!
 
David, patience grasshopper! :p She said her scopes were at 2:30. She's in California so that's the Pacific time zone. It's currently 3:20 here in the Central time zone so... (*does complicated math*), I think that means it's 1:20 in Crabby's time zone. So unless she got bumped up even earlier, I would guess she hasn't even had them yet.
 
I hardly remember a thing honestly. So hard to type right now let along read. :p

He said the colon looked good I think and that there was some redness somewhere during the upper scope so he mentioned waiting on the biopsies for that.

My next appointment with him is on the 20th next week. Still no word on the Remicade so I'll probably be starting Asacol and Entocort until its approved.

Every time I open my eyes I'm just like, "how did I get here?" :p Not in any pain though which is good.
 
I see my GI tomorrow to talk about what really happened since my memory is pretty foggy. :p I'll update when I get back from that appointment. Can't imagine the biopsies would be done by then but that's when I was told to come in.

We'll also talk about my up coming tonsil removal in Dec. 7th and how I was told I shouldn't be on Asacol during that time or during recovery.

I'll be getting a call soon to schedule the Remicade as well since it has been approved finally. :D Dunno how they're going to work around the upcoming surgery. We might wait until I have it done before I start Remicade or they said they can skip a month but that would mean I'd have to have my infusion like, now? I dunno. I think we might wait until at least 2 weeks after the surgery.
 
Don't skip a month. If you need to wait, wait. But do not skip. The last thing you need is your body getting a head start on creating antibodies to Remicade.
 
That's what I was thinking David. I tried explaining that over the phone and was told that they deal with that all the time but honestly I'd rather wait so when the nurse calls I'll have it scheduled for after I've recovered from surgery. Thanks. :)

The Humira has worn off, starting to have minor issues again. D:
 
Ok so I just got the Remicade all set up. They said I can't have it 4 weeks before or after surgery. So I'll be starting Remicade in January on the 14th. Well after surgery. :p

Seems like a long wait but its better to get this done if I'm going to do it at all before I start Remicade. I'll talk to my GI tomorrow about when I can start Asacol. Dunno if its ok to take it for a little bit before surgery or not or if I can start 2 weeks or so after surgery.
 
Appointment with my GI was cancelled. GI called and didn't think I needed to come in. Isn't going to put me on any meds before I start Remicade. Both scopes were perfectly normal (no biopsy results in though but apparently that doesn't matter to my GI right now). He thinks its possible that there could be something in the small intestine but doesn't know and doesn't think its severe. He's ordering more blood work to also check my iron level (since my stool has now become black, not dark greenish black like iron can cause, like I ate a bunch of Oreos but I haven't had any sort of black) and wants to do a small bowel series. THEN he suggests a pill cam AGAIN! I reminded him that I already took the fake pill and that it passed just fine and that my insurance denied the pill cam. He said, "huh... well we'll do a small bowel series, I have no control in that department." Really? No control huh?

I'm again thinking that my GI sucks all over again. He's either really good or seems terrible. Hit or miss with this guy. He also again suggested that I might have bacteria overgrowth and that that's the main problem. Then test for it! Its not hard. Don't just slap on a cop out diagnosis cause you don't know what's wrong.

I guess when it comes down to it, my Rheumy is the one treating my Crohn's. He's a great doctor and I love him. :)

So far I'm still in clinical remission. Hope I can live through the drama that is my family over the holidays. :p
 
Crabby said:
I'm again thinking that my GI sucks all over again. He's either really good or seems terrible. Hit or miss with this guy. He also again suggested that I might have bacteria overgrowth and that that's the main problem. Then test for it! Its not hard. Don't just slap on a cop out diagnosis cause you don't know what's wrong.
Click to expand...
Is this the same GI who laughed when YOU brought up the bacterial overgrowth idea after we discussed it here?
 
Crabby said:
He also again suggested that I might have bacteria overgrowth and that that's the main problem. :p
Click to expand...

By that does he mean a yeast overgrowth? I was just at a Crohn's meeting and we had a pharmacist talk. Was very interesting what he had to say about yeast. Hope you have some concrete answers soon. I think most of these doctors just throw their hands up in the air at us. Very frustrating.
 
David said:
Is this the same GI who laughed when YOU brought up the bacterial overgrowth idea after we discussed it here?
Click to expand...

Yep! Sure is. I'm telling you, this guy is hit or miss. All he cared about was going on vacation for the holidays so I knew I was being brushed off but made sure I was at least given some more testing before he left.

I've already tried getting a new GI but they can't find another one in my area that accepts my insurance. This guy is ok, I just have to stay on my toes and push more when I want something done.

Its like he's more used to dealing with patients who are in crisis type situations rather than someone who's doing really well. I'd like to avoid a crisis situation but sometimes it feels like the lack of treatment will push me into that direction.

ryanps said:
By that does he mean a yeast overgrowth? I was just at a Crohn's meeting and we had a pharmacist talk. Was very interesting what he had to say about yeast. Hope you have some concrete answers soon. I think most of these doctors just throw their hands up in the air at us. Very frustrating.
Click to expand...

Never mentioned yeast. I believe its referring to high amounts of bad bacteria in the gut. More bad than good gut flora which apparently can cause bloating, gas and mucus and probably some other stuff I don't really know too much about it though. I know there's a breath test for it so until I have that test done, I refuse to accept his attempt at a quick diagnosis.
 
Crabby said:
Its like he's more used to dealing with patients who are in crisis type situations rather than someone who's doing really well. I'd like to avoid a crisis situation but sometimes it feels like the lack of treatment will push me into that direction.

Never mentioned yeast. I believe its referring to high amounts of bad bacteria in the gut. More bad than good gut flora which apparently can cause bloating, gas and mucus and probably some other stuff I don't really know too much about it though. I know there's a breath test for it so until I have that test done, I refuse to accept his attempt at a quick diagnosis.
Click to expand...

I think it'd push me into a crisis situation too. Pretty bad that the only way they'll treat you is if you're practically sick enough to die:( Don't blame you for not accepting his quick diagnosis. Is there any way you can do like I did and call the GI line telling them that you want a second opinion?
 
Crabby said:
Yep! Sure is. I'm telling you, this guy is hit or miss. All he cared about was going on vacation for the holidays so I knew I was being brushed off but made sure I was at least given some more testing before he left.
Click to expand...
:facepalm:

Way back when you described everything I thought SIBO was a possibility but I agree with you. If he thinks it may be, THEN TEST FOR AND/OR TREAT IT.
 
That will be the next test I'll be pushing for David, or if possible I'll have my GP do the test instead so I won't have the chance of getting a possibly "biased" opinion if you catch my drift. I don't like fast talk from doctors and sometimes my GI has been known to say what normal is but then jumble in a bunch of crap I don't understand in hopes I'll take the bait and accept it. He might have been better at selling cars. :p

Cross-stitch gal, what's a GI line? Is there a hotline out there I'm not aware of?
 
Cross-stitch gal, what's a GI line? Is there a hotline out there I'm not aware of?[/QUOTE]

I'm sorry. I've had HMO insurance in which I can call for an appt with either my GI or regular doctor. Things will change starting Jan 1st since I'm going to PPO instead of an HMO.

Guess what I really meant was :if you could call for an appt and ask for a second opinion with a different GI?
 
No one likes my insurance around here Cross-stitch gal. D: Its government run free health care so my options are limited. So far he's the only GI my doctor's office can locate in this area that accepts my insurance and he's not even in the same county as me.
 
Crabby I am so sorry about all these insurance issues you can have in the US. I know we have a moan about the NHS sometimes but we don't have the stress of insurance problems too.
I do hope you get sorted out soon. You are such a huge part of this forum & help so many people its sad that you are having extra stress.
 
Can your rheumey do that breath test? I would definitely use him as your biggest resource, it sounds like he as been a great help to you. Hopefully you find a new GI soon!
 
I wish I could. I've been looking for a new GI in my area ever since I started seeing this one 2 years ago. :p Problem is that I don't have a car and my parents already drive me to my appointments to this GI as its too far to take the bus. My first GI was 4 hours away but he's in pediatrics and my insurance said I can't go to him anymore. I don't see why not. D: He was the best GI I've ever had.

I'll suggest it to my GP and Rheumy when I see them next. I know they'll both suggest the GI. :p Its not like I wont ask my GI to do the test but last time I asked for it he didn't think that was the issue and dismissed the idea. Now he says it might be the issue but doesn't even offer to test for SIBO. D: So annoying!

I believe the only way to treat it is with probiotics though right? That's what my GI said but I wonder about that. :p
 
In my opinion, if you think something is an issue than something needs to be done to address it, its not like he has to pay for it! Its his job, he needs to take the time to help you. Yes you are in remission, but if you ignore things that you are worried about then you can easily fall out of remission. Maybe thats his plan. Flare ups give him more money.

Thats a pretty bold thing to say, I doubt that is his plan but one of my biggest pet peeves is lazy doctors and lazy nurses. People like us depend on them.
ok, I will get off my soap box now
 

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