E was diagnosed with Crohn's in Nov 2014 and had a kidney stone the following week. jump forward to today....
we have switched to a new primary GI (same hospital but now have the ped IBD specialist). she is now taking methotrexate and has had two loading doses of remicade. she goes for her third infusion next week. at her second dose, some of her inflammatory markers were in normal ranges!
She took her LAST DOSE of prenisolone yesterday. She is doing amazingly well and has more energy than I have seen her with in years. She helped us tear down the old swing set yesterday and lasted longer than two minutes!
She was very excited to stop the prednisolone (I am glad it is done as well). Her side effects were relatively minimal (round face, hairy back, bit of a mustache, lack of focus, more temperamental than normal). The round face started to thin as we were finishing the taper, but how long for the other effects to dissipate?
The other reason for my anxiety is ...once you stop the predniolsone, how long before you really know whether the remicade is working. Should I be concerned about a bad day or two, or only if she has a string of bad days?
we have switched to a new primary GI (same hospital but now have the ped IBD specialist). she is now taking methotrexate and has had two loading doses of remicade. she goes for her third infusion next week. at her second dose, some of her inflammatory markers were in normal ranges!
She took her LAST DOSE of prenisolone yesterday. She is doing amazingly well and has more energy than I have seen her with in years. She helped us tear down the old swing set yesterday and lasted longer than two minutes!
She was very excited to stop the prednisolone (I am glad it is done as well). Her side effects were relatively minimal (round face, hairy back, bit of a mustache, lack of focus, more temperamental than normal). The round face started to thin as we were finishing the taper, but how long for the other effects to dissipate?
The other reason for my anxiety is ...once you stop the predniolsone, how long before you really know whether the remicade is working. Should I be concerned about a bad day or two, or only if she has a string of bad days?
