Well after taking advice from my last post, I ended up taking my son to the ER, which he was severely dehydrated, low potassium, inflammed pancreas and inflammation in his colon. He was admitted for five days, with lots of fluids, several antibiotics, steroids, blood drawn every day, etc. He was feeling really good after he was out of the hospital. The week following he was still taking antibiotics and steroids but soon was off but felt the best he felt in a while (and only having one or two stools a day versus ten plus). I wish I could say he is still feeling great but he isnt. The number of stools have started picking up again. He seems to go quite a bit during the night and in the early morning. The urgency is so quick that he is having accidents. I do have him wear a mans depends and this is so embarrassing for a twelve year old! But the depends does not seem to be working very well as it leaks out to his clothes. I know this may be TMI but I was wondering if any other kiddos have this problem with having such urgency and turning in to accidents and if there is one product to use better than the other? He has even had accidents in school on the way to the bathroom and he is so thankful his schoolmates have not seen that happen yet.
He is going to be starting soccer next week and my biggest fear is that he may have an accident on the field and what if if runs down his legs? I dont have anyone to ask to help with these kinds of questions. He started methotrexate about six weeks ago. I am not sure yet if it is helping and he is still taking Remicade every six weeks, Balsalazide, probiotic, zantac, folic acid, mutivitamin. I am going to have him food allergy tested in two weeks to rule anything out. I have put him on lactose free milk (he doesnt drink too much milk) but we have not cut out sugar or gluten yet (he is not Celiac).
Does anyone have any suggestions on how they would handle this situation? I know we all have our kiddos problems we have to deal with and each of us have similar but different situations, but often times I feel so alone and never imagined my life would revolve around so much poop. I just want my son to start feeling better and not have to give up on things (like soccer and baseball).
Thanks for listening and any feedback would be greatly appreciated!
He is going to be starting soccer next week and my biggest fear is that he may have an accident on the field and what if if runs down his legs? I dont have anyone to ask to help with these kinds of questions. He started methotrexate about six weeks ago. I am not sure yet if it is helping and he is still taking Remicade every six weeks, Balsalazide, probiotic, zantac, folic acid, mutivitamin. I am going to have him food allergy tested in two weeks to rule anything out. I have put him on lactose free milk (he doesnt drink too much milk) but we have not cut out sugar or gluten yet (he is not Celiac).
Does anyone have any suggestions on how they would handle this situation? I know we all have our kiddos problems we have to deal with and each of us have similar but different situations, but often times I feel so alone and never imagined my life would revolve around so much poop. I just want my son to start feeling better and not have to give up on things (like soccer and baseball).
Thanks for listening and any feedback would be greatly appreciated!
