Vision changes due to Crohn's Disease

[kate.flx]

I'm going to start tapering off the Prednisone! Yessss : ) Michael (GI) said he's worried about the fact that I'm still in pain though even though I've been on the Pred. and Pentasa for about 3 and a half weeks and have been sticking to my most 'safe foods' My CT isn't until December 9th so I have to wait for the update on my abscess. and I have an optometrist specialist appointment so I can hopefully get something for my blurry vision so I can drive.

Did anyone else experience vision changes? I had absolute perfect vision my whole life then it feels like overnight my vision just went to sh**.

I'm kinda scared about my medicine. I'm afraid the Remicade or Humira is the next step if this doesn't work and I'm scared to have to do injections every day. Also he said I'm going to need surgery for the strictures eventually. I think eventually soon...I don't like that.

I forgot to ask Michael about the coconut oil for weight gain and I forgot to ask about the benefits of the wheatgrass. But I'm going to email him and ask. I have his personal email so I'll give you guys some insight on that too. He said he can't think of anything to alleviate the leaky gut noises, except of course surgery. So yep. That was my day lol. And went to the dentist, unfortunately he would not give me a free electric toothbrush haha tried my bes to con him out of one, damn it! But Oral B on their website has 50% off so I'm taking advantage of that!

 

[Dexky]

Good luck on the meds Kate!! I don't know your age but the vision problem could just be normal. Though it hasn't happened to me, I'm 46, recently I scratched my left eye and thought I was going blind for a few weeks. I started asking around and was told by many that when my vision does change, it will be very quick!!

 

[kate.flx]

Oh no hope your eye heals up! My father is 50 and almost blind, his vision did change very quick. But that could also be his diabetes.

I am only 17. And this being my first flare then my vision just suddenly drastically changing at the same time they said my Crohn's is most likely causing inflammation in my eye resulting in the blurriness. Well we hope so! I would really hate for this to be permanent.

 

[DustyKat]

Hey kate,

You may want to have a look through this thread......

http://www.crohnsforum.com/showthread.php?t=11969&highlight=eye+problems

Sounds like you have a great GI! Good luck with the meds and continue to keep us posted.

All the best, :hug:
Dusty

 

[kate.flx]

I do love my GI, he is very caring and determined to make me better and even has called numerous times on his days off to check on me. We get along great, and he's young! So I like that, we communicate better.

He did call me today by the way. My blood tests came back that my inflammation and stuff is back up so he told me to take 10mg more of Prednisone for 3 days. (so now I take 50mg temp.) So my CT was scheduled for December but now he wants one ASAP so that will be done some time early next week. Oh guess what?! He says he definitely recommends wheatgrass and my cousin also said it helped her inflammation immediately! (she had inflammation from different thing, she doesn't have IBD) So yeah I'm picking some up tomorrow.

 

[DustyKat]

It's priceless Kate that you can have that sort of relationship with your GI, good for you.

That's fab about the wheatgrass! Did he say anything about the coconut oil?

Good luck with your scan, keeping my fingers and toes crossed that everything is okay!

All the best,
Dusty

 

[lynx]

My friend grows wheat grass in a greenhouse in her back yard...Unfortunately I am allergic to the stuff..i dont know if you ever have tasted it? It tastes HORRIBLE lol! But it is loaded with good stuff minerals and vitamins so its really good for you if you can tolerate it. I hope everything works out well for you..and yes since i have been on prednisone, started in september...i notice every now and then my eyes getting blurry which never happened before. So who knows.. anyway hope you enjoy the wheatgrass lol.

 

[kate.flx]

Lol I heard it tastes like grass. Which probably isn't the best but I plan to put it in a smoothie or something. Or just take it like a man. (so to speak haha.

I forgot the coconut oil thing again, but for sure it is fattening. I looked at the oil in the store and didn't buy it cause it looked weird. I didn't know what to do with it really, like do I add it with smoothie or what. So I bought organic coconut milk, I don't know if it makes a difference but I haven't had enough to notice. Didn't hurt my tummy so I guess that's a good start right : ). Surprisingly the coconut milk doesn't have a flavor. It's almost like water with maybe the tiniest taste of coconut.

 

[DustyKat]

There's a thread about Coconut Oil in the Food & Diet forum...........

http://www.crohnsforum.com/showthread.php?t=14147

Dusty.

 

[kate.flx]

She had a very good study about that and wow coconut oil has a ton of benefits. The measle section is a bit worrying though, I didn't know that about Crohn's.

I did some searching online and found you can get coconut oil softgels. I think I'll go look for some next time at the organic market, or at GNC/Super Sup. : )