I was diagnosed at the age of 46 with Crohn's Ileo Colitis in October of 2006. My GI doc put me on Pentasa and Imuran initially, but they didn't seem to do much of anything for me.
In the fall of 2007 I underwent stricturplasty on my small intestine. After which, I was put on Humira once every 2 weeks.
I was in 'remission' and feeling pretty good, until in 2009 I began showing extra-intestinal symptoms.
I began having terrible joint pains. I would ache from head to toe. A day walking the mall would mean 2 days of absolute pain where I could barely move.
The doctor ordered the usual tests ie colonscopy, barium xray, MRI and sent me to a rheumatologist who diagnosed me with fibromyalgia and put on Cymbalta.
The joint pains went away and am still on Cymbalta.
The results of the other tests showed that I had new areas of damage in my small intestine above where I had my first surgery.
I also noticed that I was beginning to gain weight. When I asked my doctor if it could possibly be the Humira, she told me that it normally would cause weight loss.
After all the tests, I ended up on injecting Humira once a week, taking 150 mg of Imuran (azathiorpine) daily, and 60mg of Cymbalta.
In the time since first being diagnosed until today, I have gained almost 40 lbs!!
I have tried just about everything and am unable to lose even 5 lbs!!
I would express my concerns to all of my doctors and when asked if it could be any of the meds, I was told no and that I needed to eat better and exercise more.
In March of this year, I had my quarterly exam with my GI dr and once again, she told me I needed to lose 30 lbs! At which time, she finally said that the HUMIRA is the cause of my weight gain!
Is anyone else having the same issues?? Has anyone had any luck losing weight and keeping it off while still on Humira??
In the fall of 2007 I underwent stricturplasty on my small intestine. After which, I was put on Humira once every 2 weeks.
I was in 'remission' and feeling pretty good, until in 2009 I began showing extra-intestinal symptoms.
I began having terrible joint pains. I would ache from head to toe. A day walking the mall would mean 2 days of absolute pain where I could barely move.
The doctor ordered the usual tests ie colonscopy, barium xray, MRI and sent me to a rheumatologist who diagnosed me with fibromyalgia and put on Cymbalta.
The joint pains went away and am still on Cymbalta.
The results of the other tests showed that I had new areas of damage in my small intestine above where I had my first surgery.
I also noticed that I was beginning to gain weight. When I asked my doctor if it could possibly be the Humira, she told me that it normally would cause weight loss.
After all the tests, I ended up on injecting Humira once a week, taking 150 mg of Imuran (azathiorpine) daily, and 60mg of Cymbalta.
In the time since first being diagnosed until today, I have gained almost 40 lbs!!
I have tried just about everything and am unable to lose even 5 lbs!!
I would express my concerns to all of my doctors and when asked if it could be any of the meds, I was told no and that I needed to eat better and exercise more.
In March of this year, I had my quarterly exam with my GI dr and once again, she told me I needed to lose 30 lbs! At which time, she finally said that the HUMIRA is the cause of my weight gain!
Is anyone else having the same issues?? Has anyone had any luck losing weight and keeping it off while still on Humira??
I'm glad you found your way here. The weight gain thing must be very frustrating 
