What a great website!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Jun 1, 2011
Messages
12
what a great website!

hi everyone

have just joined the forum after googling crohns support and finding this great resource. i'm so excited to see so much information, support and lovely caring people :ghug:

i was finally diagnosed with crohns about 6 weeks ago after developing abcesses and fistulas and ending up in hospital very unwell.

it had been a 3 year journey of of gastrointeroglogists, rheumatologists, immunologists, neurologists, blood tests, xrays, allergy tests, 2 x scopes (all unable to find a specific cause for all my symptoms).
was diagnosed with irritable bowel and chronic fatigue syndrome about 18 months ago and basically told to go and sort myself out.

even though the crohns diagnosis is rather daunting and i'm full of leaky holes for the forseeable future, it is such a relief to finally know that there is something actually physically wrong with me and i'm not just some neurotic crazy hypocondriac.

have never been one to take pills or tablets and are grabbling with so many medications and horrible side effects. have decided to just take what i'm told to at the moment.... pentasa (oral and enema), prednisone, 6MP, metroniazole and then pain killers. my tummy has settled down but the medications make me feel sick (i only have to look at them and feel nausous!)

thanks for listening. i look forward to becoming part of this community xx
 
i also am new to this site i joined yeturday i googled crohn's support to

i also am new to this site i joined yeturday i googled crohn's support to and i also think its a great site and wanted to welcome you to the site i dont know if i have crohn's or not but my reg doctor thinks i do and is sending me to a GI doctor to be tested for it i have been sick now for 2 weeks throwing up and the diaerrhea and having alot of pain in my stomach at first my doctor throught i had the flu but i should not still be sick like this :(
 
Hiya Mea
and welcome

Yes it does sound like a lot, but this is what happens in the beginning, as time goes on, your meds will reduce, I promise!
It's just a way of blitzing any inflammation that's there.
Once this is under control, in a fashion, some meds will be taken to maintain, such as the Pentasa and 6MP.
It's probably the metronidazole making you feel sick, made me sick too.
Glad you found us, loads of friends here for you
lotsa luv
Joan xxx
 
Hi Mea and welcome!

Yes, it is bittersweet to finally get that diagnosis. It's the one-two punch of "Hurray! They found out something's wrong with me!" and "Oh ****! I have a chronic disease!"

Hope you find the right mix of what works for you and you start feeling better real soon!

-Amy
 
Welcome mea,

Get stuck in theres plenty of info for everyone here. hope your well.

regards
 

Latest posts

Back
Top