Hello All. AAAgghh to finally be able to relate to so many others. Anybody not suffering with any of these symptoms around you can only imagine what you are going through. Finding this forum is going to help me no end. Well I will start with my story, I was diagnosed in 2008 after three trips to two different hospitals suffering from unbearable stomach pains. When questionned about any other unusual symptoms, bloating, diarrhoea,etc, none of these were unusual to me. after the various scans, MRIs and a couple of colonoscopies came the dreaded diagnosis...crohns! Now that i look back on my teenage years, I know that i have suffered from this disease for a long time, but it wasnt until i was in my early thirties when i had a major flare-up. An abscess was detected and drained and the medication followed. I currently am only taking salofalk, mecapt 6, and pain relief as required. Unfortunately the process of finding the right course of action for each individual case regarding treatment has in my case (as in so many others) been a painful gruelling and challenging experience. I am still undergoing follow up tests to determine extent of damage after taking medication. It appears that meds are not doing anything in places of stricturing and hence the pain and suffering continues. I am currently awaiting an MRI again to determine length of stricturing to see if a balloon like (stent?) can be inserted. Anybody had this procedure? If stricturing area is too large then an op is probably my only other option. I am in a much better place now than i ever was with this disease as i am no longer trying to pretend it isnt really happenning. Although i am sure you would all agree the thought of waking up and it just not being a part of your life crosses your mind from time to time. I feel crohns has made me reassess the things i used to stress about and now has put it all into perspective for me. reaching out to others and sharing experiences is going to put me in an even better place. Finally a place to vent where real people actually understand!!!! thanx
What a Relief!!!
- Thread starter Snookums
- Start date
Help Support Crohn's Disease Forum:
rygon
Moderator
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- Jan 31, 2010
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welcome to the forum. I agree, you do see life differently with crohns, im taking it much easier than before to stop my stress lievels going too high, and saviouring every moment im feeling well enough to do anything.
Hope they find out how bad the stricture is soon. I find the worst part is waiting for news rather than how good or bad it is lol
Hope they find out how bad the stricture is soon. I find the worst part is waiting for news rather than how good or bad it is lol
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- 872
I agree as well. You might not be willing to go this far, but sometimes I am grateful for this disease, as it has taught me so much and helped me to relate to others in a more compassionate way.
In any case, having this site helps so much! Good luck to you and welcome to the forum!
In any case, having this site helps so much! Good luck to you and welcome to the forum!
xJillx
Your Story Forum Monitor
- Joined
- Jan 7, 2011
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- 2,464
Welcome to the forum! You said it - it sure does help to talk with others who can relate with what you are going through.
I don't have any advice regarding the procedure you mentioned, however, I recall seeing a thread on the topic a few months back. Preform a search (in top toolbar) and perhaps you'll find it.
And I agree 100% - I no longer sweat the small stuff!
I don't have any advice regarding the procedure you mentioned, however, I recall seeing a thread on the topic a few months back. Preform a search (in top toolbar) and perhaps you'll find it.
And I agree 100% - I no longer sweat the small stuff!
Thanx
Thanx heaps for comments. Would have to agree its the waiting that causes a lot of concern. Have MRI booked in for 26 May so fingers crossed i meet those measurement requirements and dont need op. Not going to look too much into it. If there is one thing for sure, you learn to take each day as it comes and deal with each situation as it arises. Although the dreaded tests are annoying, I always try to look at it as another update of what really is going on. Proof if you like of why you are suffering, other than just trying to tell someone what experiences, symptoms etc you are having. Some evidence to back up your symptoms. I try to remain as positive as i can and there are days when i am the biggest misery guts around. The emotional toll this disease has on you really is undescribable. When first diagnosed my doc said its going to be like a rollercoaster ride for a little while now! That would have to be the best way to describe how its been. But i feel good today and its amazing how fresh the air smells, how beautiful the butterflies look, how lovely the birds sound when you are having a goood day!!!!!!
Thanx heaps for comments. Would have to agree its the waiting that causes a lot of concern. Have MRI booked in for 26 May so fingers crossed i meet those measurement requirements and dont need op. Not going to look too much into it. If there is one thing for sure, you learn to take each day as it comes and deal with each situation as it arises. Although the dreaded tests are annoying, I always try to look at it as another update of what really is going on. Proof if you like of why you are suffering, other than just trying to tell someone what experiences, symptoms etc you are having. Some evidence to back up your symptoms. I try to remain as positive as i can and there are days when i am the biggest misery guts around. The emotional toll this disease has on you really is undescribable. When first diagnosed my doc said its going to be like a rollercoaster ride for a little while now! That would have to be the best way to describe how its been. But i feel good today and its amazing how fresh the air smells, how beautiful the butterflies look, how lovely the birds sound when you are having a goood day!!!!!!
David
Co-Founder
Hi Snookums! I'm glad you found your way here 
I hope you stick around and provide support to others at times as it sounds like you're able to find the positive in things. I agree that those good days are like miracles. I recently had about a 10 day stint of good days in a row and it was amazing. I wish I didn't take my life for granted prior to all of this.
Anyway, welcome! I look forward to seeing you around!
I hope you stick around and provide support to others at times as it sounds like you're able to find the positive in things. I agree that those good days are like miracles. I recently had about a 10 day stint of good days in a row and it was amazing. I wish I didn't take my life for granted prior to all of this.Anyway, welcome! I look forward to seeing you around!
