I'm sorry about the diagnoses. I was just told about 3 days ago and had a full on meltdown about it. I cried for ages, went numb, cried again, it's been a roller coaster! At one point I was sobbing because I really felt it wasn't just me getting the diagnoses, it was my boyfriend as well. We're only 23 and while we've been together for years, been there for each other through it all, sickness and health, I felt so helpless and the fact he has to come along for the ride- I felt so badly.
I felt almost guilty or like I was somehow just going to bring him down. He of course told me I was insane and that he would stick around no matter what. It's funny that one thing he said actually hit home the most. "You'd do it for me." and he's right. Of course I would, I would never even THINK of leaving.
When your husband gets down about this disease, or worries about YOUR feelings, maybe it would help to tell him what my boyfriend told me- if the roles were reversed, he'd do it for you right?
Since being newly diagnosed I have been reading like a madwoman because knowledge truly is power. I've ordered books and my bf plans to read them with me so we can BOTH be on top of it. As Mooch said, take it day by day and ask as many questions as you need!
Hope that's even the slightest bit helpful.