Hello everyone, I hope you can help me, I apologise that this is long.
I have Crohn's disease located in the terminal ileum. I have had GI symptoms since 2006, which were purely abdominal stomach cramps that would hit in waves and be excruciatingly painful. Occasionally I would vomit a small amount when they hit. Sometimes they would last for days and return every few weeks or months. This went on for five years and I never went to hospital. I went to see my GP multiple times but was diagnosed with IBS without any testing.
In 2011 I developed horrendous pain on my right side and a fever and this ultimately led me to having a bowel resection due to a perforation and abscess. I was diagnosed with Crohn's disease but my pathology report after the operation came back and said there was no evidence of Crohn's and it looked like a burst appendix. Since 2011 I had no symptoms - the cramps completely stopped and I was not on any treatment.
In May 2015 I got the cramps again so I was referred back to my GI. In August I had an upper endoscopy, which showed inflammation that my GI suspected was as a result of coeliac disease (I had a weakly positive blood test). I then had a CT scan which came back entirely normal. I had a fecal calproctin test, which came back at 65. Then I had a colonoscopy in December 2015 which showed ulcers and inflammation at my terminal ileum. My GI said my small bowel looked "withered". I was officially diagnosed with Crohn's disease.
Then in January 2016 I started getting a dull ache on my right side, a week later I was started on 9mg of entocort. I took this for 7 weeks but the pain on my right side never went away. I then was told to stop the entocort and start on 40mg of prednisolone and had blood tests in preparation for starting azathioprine. I was told after 7 days to taper down to 35mg, and continue a 5mg taper every 7 days.
Well it has been 12 days of prednisolone straight after 7 weeks of entocort and I still have this pain on my right side! A couple of times during my time on prednisolone I have also had those stomach cramps, and from reading here it seems this could indicate a partial bowel obstruction.
The pain is a dull ache, a bit like I've been stabbed and it is there most of the time. I do not feel ill, I do not have a fever, I am able to work, it does not stop me from doing what I need to do. But I don't understand why it is there. My GP has felt my stomach and says it is not hard, it feels tender. It makes me think this can't be inflammation if the steriods aren't making the pain go away... Could it be possible my bowel is stuck to my ovary or something?
I have Crohn's disease located in the terminal ileum. I have had GI symptoms since 2006, which were purely abdominal stomach cramps that would hit in waves and be excruciatingly painful. Occasionally I would vomit a small amount when they hit. Sometimes they would last for days and return every few weeks or months. This went on for five years and I never went to hospital. I went to see my GP multiple times but was diagnosed with IBS without any testing.
In 2011 I developed horrendous pain on my right side and a fever and this ultimately led me to having a bowel resection due to a perforation and abscess. I was diagnosed with Crohn's disease but my pathology report after the operation came back and said there was no evidence of Crohn's and it looked like a burst appendix. Since 2011 I had no symptoms - the cramps completely stopped and I was not on any treatment.
In May 2015 I got the cramps again so I was referred back to my GI. In August I had an upper endoscopy, which showed inflammation that my GI suspected was as a result of coeliac disease (I had a weakly positive blood test). I then had a CT scan which came back entirely normal. I had a fecal calproctin test, which came back at 65. Then I had a colonoscopy in December 2015 which showed ulcers and inflammation at my terminal ileum. My GI said my small bowel looked "withered". I was officially diagnosed with Crohn's disease.
Then in January 2016 I started getting a dull ache on my right side, a week later I was started on 9mg of entocort. I took this for 7 weeks but the pain on my right side never went away. I then was told to stop the entocort and start on 40mg of prednisolone and had blood tests in preparation for starting azathioprine. I was told after 7 days to taper down to 35mg, and continue a 5mg taper every 7 days.
Well it has been 12 days of prednisolone straight after 7 weeks of entocort and I still have this pain on my right side! A couple of times during my time on prednisolone I have also had those stomach cramps, and from reading here it seems this could indicate a partial bowel obstruction.
The pain is a dull ache, a bit like I've been stabbed and it is there most of the time. I do not feel ill, I do not have a fever, I am able to work, it does not stop me from doing what I need to do. But I don't understand why it is there. My GP has felt my stomach and says it is not hard, it feels tender. It makes me think this can't be inflammation if the steriods aren't making the pain go away... Could it be possible my bowel is stuck to my ovary or something?
