What meds

[lau]

what meds

hi guys,
i was wondering if anybody has known anybody that has gone into remission and stayed there? i have a friend sue who has after having three surgeries to remove bowel has gone into remission but it wasnt from the medicine. she was of all her medicines when she went into remission. she went to a doctor in sydney that had vitaiman supplements directly onto her blood stream so that there wasnt any chance of her not absorbing it. she went onto a vitamin called life pack which i have and after taking them from a month on i felt so much better for it also she stuck to a really strict diet. it took about 12 months for her to go into remission but she did. also she had to have a regular about three times a week vitamin b injection.
the life pak vitamin within about 2 weeks my hair atrted to grow back from where i was loosing alot of it from the prednisone. i had so much more energy. if you are interested in getting any of the information on the multi vitamins then im sure i could track down the number for you.
also i was wondering what the diffrent medications were for crohns as i am on salazapyrin i was wondering whether anybody is suffering side effects the only sideaffests that i am suffering are bright orange urine, tears and poo.
what are the side effects with the others?
also i had a doctor contact me from the university of sydney saying that he think that he can send me into remission but i let you know how that goes cause if he can why cant everybody but he reckens that he has done it before and that i can speak to some of his previous patients if they are ok with it. any way thats on the 21 december so i shall let you know how that goes.

also i got my results back from the barium meal and on the salazopyrin my crohns has significally shrunk so they are going to give me one of those cameras in a pill and see whats leftover looks like whether it severe or just mild. fingers crossed that goes well too. any way i will keep you update on all of these results.

 

[Mazen]

I take Pentasa and Imuran. I've been taking Pentasa for 6 years with no side effects. Imuran has lots of side effects which you should take care of like bone marrow suppression, nausea, liver problems, pancreas problems, and rarely lymphoma. Regular blood tests are needed to monitor this. It's all dose dependant also. For me the high dose of Imuran, gave me liver toxicity.

Keep us updated on the news of your progress and what this doctor will tell you.

 

[DannyB]

Hye Lau,

I have been in remission before, I wasn't sure at the time but I think back on it and I'm sure of this fact. I wasnt taking anything different than what I normally take so I guess its just the way it is.

Good Luck with what happens at the doctor.

 

[Valentina]

good luck with that, if it works out for you, then Im sure you will be very pleased
I had really bright yellow urine as well, from Imuran (aza) and also a lot of the vitamins and suppliments will do this to me as well (esp potassium) so it could be from that if you have large doses of them.
good luck!

 

[Skinsfan1229]

This is differnent for everyone, because not everyone has the same symptoms or levels in their blood work.

 

[Karen]

My loving husband has had Crohn's for almost 1 YEAR this month & so he went through a lot over the last year ...

* Remicade treatments ... Every other month & in July this year he had his last treatment & the only side effect he had from it was that it made him really tried.

* Medication ... He was on all sorts of pills from the start but the only pills that he is on right now is IMURAN & I hated it when he was on PERDIZNE as I called that the " MEAN & GRUMPY PILL " so I am very thankful that he is no longer on it !!

* X - RAYS & BLOOD WORK ... Those he goes in every 2 months for & with his last set of X - RAYS they told him that it looked really good and that the inflamation had really gone down since last year at this time so he was happy about that news !!

Overall he is doing really well & I am sure that the LORD has been looking over him all this time & I keep each of you here in prayer too that the Lord will be your guide through these hard times !!

 

[DarrylP_Ajax]

Pred put me into remission, holding onto it with 200mg/day (soon to be on 225mg/day) Imuran. Has been a miracle pill for me, no side effects whatsoever, my blood tests have had no change at all since i started Imuran (no drop in WBC, RBC, Platelet Count, Hemoglobin and no rise in Liver or Kidney levels). Gained back all the weight i lost because of the disease and the prednisone. I take a couple supplments, lots of whey protein to put back on the weight, Omega 3-6-9, Multi-Vitamin, Calcium supplement (until i am sure i have reversed and bone density loss from the pred), folate and b12.....not much else other than that

 

[ruthymg]

I was doagnosed with crohns in March 2001 and had a terrible 12 months that followed. I was initially put on Pentasa, Budesonide, mebeverine, but this cocktail of drugs did nothing, my D was terrible and I also took sachets to slow down the D, which also didn't work. I was then put on Prednisolone, and still Pentasa and Mebeverine, and then about 2 months later Imuran was added to the list, gradually I moved into remission. I stayed in remission for approx 3 years on those meds except I stopped the Prednisolone after 18 months. I went through pregnancy and a second caesarean and was absolutely fine, totally symptom free. About 12 months after having my baby, things started to grumble again and I had started to have problems with Fistulas too. My meds hadn't changed, the only thing that had changed in my life at the time was the amount of stress I was under at work, so I believe that the stress triggered my crohns again. This was Sept time 05, I had surgery for a resection and anal fistulas where I was left with a temporary stoma in June this year and so far so good, things have defo quietened down. I hope this is the start of another remission period, only time will tell. Hope all works out for you, keep us posted.


Ruth

 

[devildee(donna2005)LOL]

Hi

ive been in remission since my emergancy ileostomy was formed in april 2003 and med free, as Skinsfan1229 everyone is differant (((hugs)))

 

[Wlmsports]

Humira

Hey,

I've had Crohn's for 9 years now. When Remicade first came out, I only took it when needed. I did very well on it. Two years ago, my insurance company started covering it, so my doc placed me on it every 6 weeks...I did pretty well then too, but I found it began to work less and less so my doctor recently turned towards Humira which is an injection that I give to myself. I found that the Humira makes me gasey and somewhat discomfort for the first week, then the next week I do a little better, then I have to take it again (every 2 weeks) and the same pattern formed. Sooo...I decided as long as I feel ok, Im not going to take it to feel crappy for a week again. I'm getting a little tired of being over medicated to fill the pockets of the pharm Co's. I'm on asacol, entocort, tindamax, imuran and now Humira. I have a supposidly top doctor who really is on top of every medicine but I still don't feel like I'm ever great anymore. Oh well, just wanted to give you a heads up on Humira and maybe why we should not over use these drugs and maybe save them for when we really need them.

 

[Skinsfan1229]

Have you tried Humira weekly Wlmsports? A lot of people do that, actually a majority of the people I know taking it do it that way. Maybe that would help the gassy feeling, especially since you were getting Remicade every 6 weeks instead of 8 weeks.

 

[Cara Fusinato]

I'm in remission and only taking a couple supplements. Calcium because I gave up milk (sigh) and XanGo brand mangosteen juice. Other brands are not even close to being as concentrated as XanGo brand, but overall the mangosteen juice put me in remission within 3 weeks and I have been in remission 6 months now. Feel free to hunt around for my threads on mangosteen juice or PM me if you wish to learn more about it. I have heard so many amazing stories about people on mangosteen juice, and I am pretty much one of them. But, it worked for me and may not work for everyone.