What would you tell your doctor/nurse?

[ataloss]

Hello Everyone!!! I haven't been on here in a very long time, and I have missed it! I am back and looking for your help. Soon, I will be giving a short talk to a group of health care professionals (mostly nurses but also some docs) about what it was like to be a patient and what it's like to live with crohn's. I work as a nurse and having to be on the other side of the bed as a sick patient was eye opening to me. What I wanna know is.......

What is it that you think is important for your health care professional to know about living with crohn's??

This doesn't have to be something medical or some sort of fact it could just be something from a patient's perspective that a person without crohns' or uc wouldnt know or understand????

 

[Rebecca85]

For a start, how embarrassing it can be! Especially when you're on a ward, and everyone can hear you discussing your bowel movements.

And when I say I'm tired all the time, I mean I'm. Freaking. Exhausted. All. Of. The. Time. It's a real symptom, please take it seriously.