Who has stopped Humira treatment?

[HiImSean]

I'm just interested to see how many people who have started treatment with Humira have stopped for one reason or another. I have been on Humira since July of 2008. I had surgery to remove my terminal ileum just under a year later, the decision to do so was done in January of 2009 after a very bad flair-up. Since my sergery and continued use of Humira and Pentasa I have been living basically symptom free, no flair-ups, I've been able to eat anything without blockage.

Now that I've been on Humira going on 6years I'm wondering if it still having the same effect as it did in the beginning and if it is causing any long term issues that have yet to surface. I have asked my doctor about it but he insists that this is something that I will be using for the foreseeable future. I'm not sure I like that.

How did you go about stopping your treatment and for what reasons?

 

[Essieluv]

I got drug-induced lupus from Humira, and had to stop it after a little over a year of treatment. I thought it would be complicated, but my doctor just called me and told me to stop. That was it. I didn't have to wean off or anything, very convenient lol.

 

[Bonzo 4]

I don't take Asacol or mialda anymore. For fear of side effects. I watch what I eat , and smoke a little herb.

 

[Bonzo 4]

:ghug:

I don't take Asacol or mialda anymore. For fear of side effects. I watch what I eat , and smoke a little herb.

 

[lblair]

I did I was on it for 6 months with 40 mg of Predisone a taper but could not get off the predisone!!!!!! So started Remicad and methotrax had 2 infusions and had a allergic reaction I have tries everything nothing is helping!!


Will be having surgery on March 25 Right Colecotomy!!!

 

[nogutsnoglory]

Due to reactions I stopped abruptly and it took a while to leave my system.

 

[VeganOstomy]

I was in a clinical trial for humira and it didn't work for me. I was just told to stop without tapering or anything, and that was from weekly shots.

 

[mdd]

Hi yes I stopped Humira treatment. A few years ago. I was the first in my area to get it . I had to go to the cancer building. To get the infusion. They had to give it to me slow or my heart would race. It took 6 hours to run. Then they had to stop my heart was racing, rash up the arm. I had a few . Done! I hope I did not scare you. Maria:smile: