Who has tired Cholestyramine Powder?

[Garden Lover]

Hi

Just joined your group today. Was researching Habba Syndrome and found you. I really belong in the IBS group too but wanted to post so maybe some of you who have tried this powder (I started 4 days ago.) can help me out.

My primary put me on it after I showed him the print out from the Habba site.

I've been active in the celiac.com forum for 2 1/1 years now but still i'm not healed. Also read that this powder helps eliminate oxalate's. I'm doing the low oxalate diet in addition to being

gf,sf,df, and now low oxalate foods for 2 months.

Thanks in advance for any help you can give me
Judy

 

[Cog]

I am trying it at the moment and with the help of anti-spasmodics life is settling down. Since having my colon removed frequency has been my major issue. This does seem to be working for me.

 

[TammySue62]

Yes I have been on and off the powder drink for a couple of years.
It works great. Al though I have to be careful that it dosent constipate me. If I have the bad runs I just shake up the powder sacket in a bit of water then drink.


TAMMY

 

[Garden Lover]

Thanks Cog and Tammy.

I'm praying it works for me. My understanding of Habba is --If that is what I have--was to work immediatily.......mine works intermittently but been on for 4 days....I seem to dumping alot of oxalates in 'd' when I get it but it seems to be helping and then take the IM at these times.

Also I seem to have a problem figuring out when to take it. know away from all important meds in am.........so was taking 1/2 before dinner........then found taking 1/2 at nite after eating something.

so..........do you guys take it w/o food and just drink anytime away from meds?
Thanks for the help
Judy

 

[TammySue62]

I just take it when I think that I need too and it works right away . Most of the time
Dosent matter when I take ,before or after I eat usually I take it in the am.

TAMMY

 

[Garden Lover]

Is that what you did when you first started the protcol, Tammy?

 

[Cog]

To begin with I took it morning and night - it probably took 5 or 6 days before there was a consistent improvement. I also just read about not mixing with other meds so I am now just taking one at night and meds in the morning. I am now off the anti-spasmodics - I hate being on medicine any longer than I need to be. Good luck

 

[TammySue62]

Thanks Cog and Tammy.

I'm praying it works for me. My understanding of Habba is --If that is what I have--was to work immediatily.......mine works intermittently but been on for 4 days....I seem to dumping alot of oxalates in 'd' when I get it but it seems to be helping and then take the IM at these times.

Also I seem to have a problem figuring out when to take it. know away from all important meds in am.........so was taking 1/2 before dinner........then found taking 1/2 at nite after eating something.

so..........do you guys take it w/o food and just drink anytime away from meds?
Thanks for the help
Judy

No I just was introduced to the powder about a year ago.
Tammy

 

[Cog]

Garden Lover are you just taking Cholestyramine twice a day or once a day. I started twice a day and then took it down to once a day and I am now having to ramp it up again. I love this condition

 

[Shoeless]

what does it do for you?

 

[Cog]

Reduces my frequency. The non scientific answer is that it binds with bile salts to reduce the big D. Habba syndrome is also linked

 

[Garden Lover]

HI
I haven't been on in awhile. sorry.
I had a horrible bout of uncontrolled 'd' over the holidays and quit taking the powder for 3 days and it didn't help so went back on it and now i have had 3 good days. I think what was happening was i was also having a dumping of the oxalates with the 'd'. Black flecks, sandy stools with oxalate crystals floating on top.............. UCK but i think it also , from what i've read, helps dump oxalates so i think that is what was going on. I think i'll up the dose to one a lunch and then one at bed time . Dr said i could take 2 doses a day so will try that.
thanks so much for you help. Let me know if anymore of you have any ideas.
thanks again.
judy