I understand completely, outsiders have no clue... even when they try to emphasize they just dont get it, there is no cure and your life is so limited, and even planning a day out is a big chore sometimes. I was dx when there was no computers, and not much awareness or information at all. I just used to say I can beat it, but it always came back and kicked my butt. I have met a good bunch of people on here, and they really support you, because we are all in the same place, sooner or later.