Wonder if I really have Crohn's?!

[Jenny41]

I often wonder if I've been correctly diagnosed. I have had two GI's and they both stated they are 100% sure that I have Crohn's. I do not have the typical symptoms and there are many days that I am pain free. It does not help that I have a very high tolerance for pain either..I guess. I have been admited to the hospital only once but I have had several ER visits after several days of pain, but each time they either do not find any new strictures or mild inflammation so I fill stupid. My last visit I was dx with pancreatitis and almost didn't go because I don't want them to think I am faking. I stopped taking the Humira over a year ago with mild to moderate flairs ( not very often). My current GI said I have Crohn's and UC and will eventually need surgery but I am having trouble believing her.

I guess I should be greatful that I am not suffering like many of you are and I guess I fill that because I am not that my dx is incorrect. Does that make sense?

My current GI tries to explain it by saying she thinks the UC flairs more than the Crohn's......go figure. Maybe because I do not believe it's Crohn's I have fewer flairs...mind over matter...you think?

 

[Lydia]

Not everyone with crohns is going to be flaring all the time. The disease ranges from mild to severe, and people with severe cases are more likely to reach out for support on forums like this. I have had mild flares that sound a lot like your disease. I also do not get D like most people. Maybe 5 BMs a day when in a severe flare at the most. I actually have a hard time going because of all the inflammation.

 

[Jenny41]

I do not have D very often unless I eat salads. I understand that the disease progression has various stages but I guess I am just skeptical.

 

[sunflower]

It is a stage of grief, and it is called denial. We (and I do mean most all of us) have a hard time believing that something could be so wrong with us, so we "deny" that it is real and try to convince ourselves that it isn't. I have been there. I did continute to take my meds, though. And I still am in denial some days. It is normal to feel that way. Just be aware that it can sneak up on you sometimes. Here is hoping that your disease stays mild, and you never need surgery!!

 

[Emily]

When I am in remission, I often forget that I have Crohns or pretend I don't have it because I feel fine. Enjoy that! Cause when a flare comes, you certainly get a big ol' reminder that yep, you have Crohn's for life :/