I cannot say what works for all or many, but I can tell what has worked for me. Hope this helps some of you.
Background: Got started in 1992 without diagnose for several years until visible effects were seen in about year 2001. Instigator seemed to be medicine Roaccutane (isotretinoin) I had -92, but did not complete. Doctors back then did not accept that as the source of gastro issues. In medicine package information they nowadays have this statistical info that 1/10000 gets these symptoms very much matching IBDs and if getting stomach related symptoms must get to doctor immediately. I guess they have found this out through patients suffering. Anyway during all the years up to 2004 I was taking everything from antibiotics (metronidazole, ciprofloxacin), prednison, asacol, dipentum, azamun (Azathioprine) and questran to whatever additional fibers, vitamins and lactobacillus. Of course I also tried all possible dies too. Only antibiotics had some actual effect to reduce the pain, improve my condition in general for a short term and lessen the interval to defecate.
Well, as nothing worked I slowly went to a worse condition as bleeding and inflammation continued on and in 2004 I had to have surgery to save my life. By investigating the removed large intestine and the colon doctors decided diagnose to be CU. If it would have been CU I would have been cured then as the parts that can be infected by CU were removed. It turned out I wasn't cured, but small intestine was working better and not getting infected as bad. Since operation I've been having symptom level like in the beginning of this disease and in the absence of large intestine and colon have been running toilet with max. 6 hour intervals if been eating.
By accident I then tried one yeast product to help on diarrhea that I got from bad food on the top of all symptoms going on. My surprise was great as I did feel much better help from that yeast than with even antibiotic and this also helped to have solid/semi-solid feces that I had not been able to produce in years. Now afterwards thinking it all makes sense except the doctors' medical explanations of the mechanism of these IBDs to be auto inflammatory. If it would be like they say then actually this yeast nor antibiotic should not have had any effect. On the other hand nothing they have offered by the medical giants has had any positive effect, but a lot of adverse and side effects. I got only my experiences and myself as a proof, but it's enough for me as now I feel almost like normal and can work and eat almost as freely as I used to.
So to the yeast. It's Saccharomyces Boulardii and there's plenty of brands available with wide price range. I guess cheapest I got in Europe is around 20euro per 60 capsules = 1 month dosage. It should be much cheaper in USA if buying a big package like Jarrow Formulas have in product portfolio. I guess dosage depends on the case as I had to notice. With Jarrow's big pills one was usually enough per day and when I ran out of those I had bought one local manufacturer's pills that are about half the size. Well I started to get symptoms really bad and strong pain so I went to doctor. My faecal calprotectin had gone to 1800mcg/g as normal level is around 50. It took me 2 days to figure out I was then having half the yeast dosage than earlier so I added it up to 2-3 pills per day and in 24hrs I got back to almost regular condition. I also used yogurt with lactobacillus and bifidobacterium to fix balance of bacteria.
Well, why i'm writing here is also that I'd like to confirm that are some of these IBDs actually related to bacteria balance, mass and intestine's sensitivity to those bacteria rather than guess that inflammation and deterioration of functioning is due to autoimmune activity. There surely is immune activity where ever bacteria exits, but it does not mean it would be autoimmune origin. In this consideration it would be logical to assume that controlling bacteria type, their relative and total mass in intestinal tract would have effect on symptoms and in my case it has been so. For how many this will work and does it work for Crohn's as well as for CU or IBS I can't say, but this is fairly cheap to test and no risk associated. Well, there is side effect in my case that there will be more gas pressure when you defecate and abdomen may feel swollen some times. This maybe due to inulin/FOS and similar additives they add with yeast products and probiotics to enhance the microbial growth. Actually it adds gas production so one might consider pill that are not filled with those additives. As these things are individual please use your own intuition and feeling rather blindly follow my dosage and diet. Start slowly and listen your body.
For diet wise I avoid hard fat, greasy foods like bacon/fried noodles etc. and also oats seem to make irritation for intestine. I friend of mine had to also leave out coffee to get better. That is not in my case as I have never been coffee drinker, but I do drink several cups of green tea per day. And I have not been able to stop eating candy and cakes, but I do know creamy stuff and milkshakes will have some irritation and high sugar intake adds up gas production. With SB I have now been able to add some weight and actually have some fat too on the waist. I guess I could start sports again.
Anyway I'd like to hear here if anyone else is getting help with Saccharomyces boulardii.
Background: Got started in 1992 without diagnose for several years until visible effects were seen in about year 2001. Instigator seemed to be medicine Roaccutane (isotretinoin) I had -92, but did not complete. Doctors back then did not accept that as the source of gastro issues. In medicine package information they nowadays have this statistical info that 1/10000 gets these symptoms very much matching IBDs and if getting stomach related symptoms must get to doctor immediately. I guess they have found this out through patients suffering. Anyway during all the years up to 2004 I was taking everything from antibiotics (metronidazole, ciprofloxacin), prednison, asacol, dipentum, azamun (Azathioprine) and questran to whatever additional fibers, vitamins and lactobacillus. Of course I also tried all possible dies too. Only antibiotics had some actual effect to reduce the pain, improve my condition in general for a short term and lessen the interval to defecate.
Well, as nothing worked I slowly went to a worse condition as bleeding and inflammation continued on and in 2004 I had to have surgery to save my life. By investigating the removed large intestine and the colon doctors decided diagnose to be CU. If it would have been CU I would have been cured then as the parts that can be infected by CU were removed. It turned out I wasn't cured, but small intestine was working better and not getting infected as bad. Since operation I've been having symptom level like in the beginning of this disease and in the absence of large intestine and colon have been running toilet with max. 6 hour intervals if been eating.
By accident I then tried one yeast product to help on diarrhea that I got from bad food on the top of all symptoms going on. My surprise was great as I did feel much better help from that yeast than with even antibiotic and this also helped to have solid/semi-solid feces that I had not been able to produce in years. Now afterwards thinking it all makes sense except the doctors' medical explanations of the mechanism of these IBDs to be auto inflammatory. If it would be like they say then actually this yeast nor antibiotic should not have had any effect. On the other hand nothing they have offered by the medical giants has had any positive effect, but a lot of adverse and side effects. I got only my experiences and myself as a proof, but it's enough for me as now I feel almost like normal and can work and eat almost as freely as I used to.
So to the yeast. It's Saccharomyces Boulardii and there's plenty of brands available with wide price range. I guess cheapest I got in Europe is around 20euro per 60 capsules = 1 month dosage. It should be much cheaper in USA if buying a big package like Jarrow Formulas have in product portfolio. I guess dosage depends on the case as I had to notice. With Jarrow's big pills one was usually enough per day and when I ran out of those I had bought one local manufacturer's pills that are about half the size. Well I started to get symptoms really bad and strong pain so I went to doctor. My faecal calprotectin had gone to 1800mcg/g as normal level is around 50. It took me 2 days to figure out I was then having half the yeast dosage than earlier so I added it up to 2-3 pills per day and in 24hrs I got back to almost regular condition. I also used yogurt with lactobacillus and bifidobacterium to fix balance of bacteria.
Well, why i'm writing here is also that I'd like to confirm that are some of these IBDs actually related to bacteria balance, mass and intestine's sensitivity to those bacteria rather than guess that inflammation and deterioration of functioning is due to autoimmune activity. There surely is immune activity where ever bacteria exits, but it does not mean it would be autoimmune origin. In this consideration it would be logical to assume that controlling bacteria type, their relative and total mass in intestinal tract would have effect on symptoms and in my case it has been so. For how many this will work and does it work for Crohn's as well as for CU or IBS I can't say, but this is fairly cheap to test and no risk associated. Well, there is side effect in my case that there will be more gas pressure when you defecate and abdomen may feel swollen some times. This maybe due to inulin/FOS and similar additives they add with yeast products and probiotics to enhance the microbial growth. Actually it adds gas production so one might consider pill that are not filled with those additives. As these things are individual please use your own intuition and feeling rather blindly follow my dosage and diet. Start slowly and listen your body.
For diet wise I avoid hard fat, greasy foods like bacon/fried noodles etc. and also oats seem to make irritation for intestine. I friend of mine had to also leave out coffee to get better. That is not in my case as I have never been coffee drinker, but I do drink several cups of green tea per day. And I have not been able to stop eating candy and cakes, but I do know creamy stuff and milkshakes will have some irritation and high sugar intake adds up gas production. With SB I have now been able to add some weight and actually have some fat too on the waist. I guess I could start sports again.
Anyway I'd like to hear here if anyone else is getting help with Saccharomyces boulardii.
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