Worried that the 6mp is no longer

[kh216]

I am not feeling well today. While I am not in a full blown Crohn's flare, I feel crampy, bloated and tired (and no, this is not PMS). I had an incident like this a few weeks ago and thought it was caused by an iron supplement. I stopped taking that supplement. However, it started again on Thursday morning and I can't pinpoint the culprit this time.

I have low white blood count issues and my gastro doctor has tried to lower my 6mp dosage. Now I am wondering if either the dosage is too low or if it is now working at all.

In addition to my usual meds, I am now taking a Probiotic and one Colace tablet a day.

If anyone has any suggestions or if any of you want to give me a "hug", I would really appreciate it.

 

[rollinstone]

Hi kh, it could be the flu maybe? Also could be the pro biotics if you've recently started them, I hope it settles soon, Aza usually takes a while to leave your system so you shouldn't notice the fx just yet, that being said everyone's different... You should call your GIs office this Monday though if you don't feel better tomorrow, you don't want the crohn's coming back so maybe more aggressive treatment is necessary. Hope you feel better soon

 

[kh216]

Thank you, Joshuaa. The strange part is yesterday, I had lunch with two of my coworkers and they both posted on Facebook that they had tummy troubles! (However, I don't think they have Crohn's Disease.) I plan to type up information about my symptoms and all the medicines and supplements I am taking and then try to schedule an appointment with my gastro doctor. I really could use his advise on this.

 

[hawkeye]

Thank you, Joshuaa. The strange part is yesterday, I had lunch with two of my coworkers and they both posted on Facebook that they had tummy troubles!

It is possible that you picked something up at lunch or a stomach bug. That kind of stuff happens to us Crohnies too.

 

[Jennifer]

Agreed on giving your GI a call just in case. Did you start taking the iron again? You may need it. Low iron can cause fatigue. Have your GI run blood work again to see if the 6MP is in therapeutic levels.

Also have you been avoiding milk products at least 2 hours before and after you take it? "Consuming milk products around the time you take your dose can potentially interfere with the bioavailability of 6-MP. It is best to avoid milk products for at least 2 hours before and after your dose." http://www.crohnsforum.com/wiki/6-MP

 

[rollinstone]

Agreed on giving your GI a call just in case. Did you start taking the iron again? You may need it. Low iron can cause fatigue. Have your GI run blood work again to see if the 6MP is in therapeutic levels.

Also have you been avoiding milk products at least 2 hours before and after you take it? "Consuming milk products around the time you take your dose can potentially interfere with the bioavailability of 6-MP. It is best to avoid milk products for at least 2 hours before and after your dose." http://www.crohnsforum.com/wiki/6-MP

Hi Jen, do you know if by milk they mean lactose? Would almond milk interfere with its bio availability aswell?

 

[Jennifer]

Hi Jen, do you know if by milk they mean lactose? Would almond milk interfere with its bio availability aswell?

In the link it only mentions "cow's milk." http://www.ncbi.nlm.nih.gov/pubmed/2618973

 

[kh216]

I am taking a timed release Ferro Sequel pill every other day for iron. I had a CBC taken last Wednesday so I should know soon about my red and white blood count levels. This seems to be the only iron pill I can tolerate.

I don't drink milk or lacose products with 6mp so that is a good thing.

I will mention to the doctor about getting my TMPT levels tested.

I am feeling better today. My husband made me some honey ginger tea and that helped. I am also taking it easy this weekend.

Thank you for your advice.

 

[CeeCeeGo]

Hello
Sorry to hear that you have been feeling rough. Glad that your hubby is looking after you (what would we do without them?). Great idea about listing all your symptoms and showing your gastro. It may be worth getting your various vit D, B12, iron, magnesium, zinc & folate checked. I've recently had all these checked and am now taking vit D & B12 and feeling much better (lots more energy).
Take care and enjoy your chill out!