Your first thought
- Thread starter butt-eze
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Help Support Crohn's Disease Forum:
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when i'm grumpy answer,
i tell them to times their night by 1200 nights i've had it for, tell them to add in blood, pain, hospital, countless drugs and in some cases a very real fear for your own life, then give a snort of disrespect.
when i feel helpful answer,
i tell them about immodium, helpfull food products to keep upstamina and wish them well.
when i'm feeling funny answer,
i ask about texture, how often, was there vomit? then i offer them some food.
when i feel they're lying for sympathy answer,
i ignore them.
i tell them to times their night by 1200 nights i've had it for, tell them to add in blood, pain, hospital, countless drugs and in some cases a very real fear for your own life, then give a snort of disrespect.
when i feel helpful answer,
i tell them about immodium, helpfull food products to keep upstamina and wish them well.
when i'm feeling funny answer,
i ask about texture, how often, was there vomit? then i offer them some food.
when i feel they're lying for sympathy answer,
i ignore them.
jed those seem about right for answers.
I once told someone that constipation isn't constipation until they haven't been to the bathroom in over a week and after that they still can't go fro another week.lol
I just try to be funny with it but some times I just don't have an understanding for someone who says they have a stomach ache. I always feel like saying they don't have a stomach ache until a piece of food can't go any further and it feels as if someone is ripping you open from the inside out.
I can't think of any others right now
I once told someone that constipation isn't constipation until they haven't been to the bathroom in over a week and after that they still can't go fro another week.lol
I just try to be funny with it but some times I just don't have an understanding for someone who says they have a stomach ache. I always feel like saying they don't have a stomach ache until a piece of food can't go any further and it feels as if someone is ripping you open from the inside out.
I can't think of any others right now
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I say: "Welcome to my world"
i dunno.. i can't find it within myself to be unsympathetic when anyone tells me they're poorly, no matter what the symptom is. i always nod and say the right things, even if i think "yeah, you think you've got it bad???" hence - i am that person who strangers tell their life stories to at bus stops etc.. lol
Kev
Senior Member
I had someone question me today as to whether there really is a stigma attached to having crohns, or whether I just 'perceived' there was. So, folks, I'm tossing that one out to the floor. What do you thinki, is it all in my 'head'?
Hey, wait a minute.. maybe I'd better rephrase that.. aw, why bother? I have been called that before
Hey, wait a minute.. maybe I'd better rephrase that.. aw, why bother? I have been called that before
i think there is, Kev. anything to do with bums, bowels and BMs seems to be a no-go area of conversation with some people. show them a broken arm and you get lots of sympathy - tell them how long you spend on the toilet and what can happen, and you see that glazed look...
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katiesue1506 said:
I use that one too!
Or, if I want to be smug I'll go for "I'm not interested 'till you're up all night crapping blood."
butt-eze
Superstar
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I think there is a stigma. I find myself dancing around how to explain Crohn's disease. Telling someone you have constant, frequent, urgent diarrhea doesn't really do it justice. I don't seek sympathy but I would like people to realize it's not a small deal for me.
I usually start by explaining it's an auto-immune disease, etc. This way they don't see it is a 24 bug type of scenario.
I usually start by explaining it's an auto-immune disease, etc. This way they don't see it is a 24 bug type of scenario.
J
Joshua_A_B
Guest
I don't offer up information about my Crohn's until I miss work and school because I'm in the hospital and have to explain my way out of it. Having said that I don't know of anyone else I run into in person that has Crohn's. When I do tell someone they always say... "Oh I have a friend or knows a friend's friend that has it." As for a stigma - people fear what they don't know or will fill in the blanks with imagination.
When I had my Appendix removed before my Chron's dx, I had 3 bandages and told everyone in highschool I was shot 3 times. I let the rumors fly for about a week before I 'fessed to having my Appendix removed.
Humor is the best medicine!!!
When I had my Appendix removed before my Chron's dx, I had 3 bandages and told everyone in highschool I was shot 3 times. I let the rumors fly for about a week before I 'fessed to having my Appendix removed.
Humor is the best medicine!!!
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I ask them to have a salad eating contest and bet against myself =p
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I recently had to tell the kids head teacher that I had Crohn's - they've only been there 18 months and I have been in remission so it was never an issue.
However with my current flare I needed to ask if it would be OK if I used the toilet if I needed to.
The headmistress visibly flinched when i said i had Crohn's and she actually took a small step backwards.
I was amazed as normally people react differently - maybe it's because I only tell people who I already know and she doesn't really know me but it has drastically altered my perception of her.
Also the amount of people who say to me "how are you now" and when I says "I am still ill" respond with "What ? Still ill ?" like I am some major hypochondriac !!
As for the OP I tend to grit my teeth and smile when people complain of the big D - being up all night to me means literally not lying down in bed but sitting on the toilet - for non-sufferers that usually means they got up once or twice for a semi solid poo.
From now on though I am going with KatieSue's response
However with my current flare I needed to ask if it would be OK if I used the toilet if I needed to.
The headmistress visibly flinched when i said i had Crohn's and she actually took a small step backwards.
I was amazed as normally people react differently - maybe it's because I only tell people who I already know and she doesn't really know me but it has drastically altered my perception of her.
Also the amount of people who say to me "how are you now" and when I says "I am still ill" respond with "What ? Still ill ?" like I am some major hypochondriac !!
As for the OP I tend to grit my teeth and smile when people complain of the big D - being up all night to me means literally not lying down in bed but sitting on the toilet - for non-sufferers that usually means they got up once or twice for a semi solid poo.
From now on though I am going with KatieSue's response
Kev
Senior Member
Hey ding.. thanx.. but would that be two sleeves rolled up, or just one for now?
;-) And, speaking of name calling... someone (I guess they were attempting to pay me a compliment - but boy did they miss) called me a .. a ... a la la lawyer
;-) And, speaking of name calling... someone (I guess they were attempting to pay me a compliment - but boy did they miss) called me a .. a ... a la la lawyer
Kev said:Hey ding.. thanx.. but would that be two sleeves rolled up, or just one for now?
;-) And, speaking of name calling... someone (I guess they were attempting to pay me a compliment - but boy did they miss) called me a .. a ... a la la lawyer
OMG! a LAWYER??? aw there, there, don't worry...
