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Crohn's Disease Forum

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    Just had surgery...need help

    @Leannez I hope you're doing well. I was wondering if you could share how your recovery went.
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    Dull Internal Ache Resection Recovery

    Hello, I hope you are well or on the path to recovery. I had a bowel resection three weeks ago to the day. I had 30 cm of the terminal ileum and the cecum removed. (appendix was already gone.) I think I am doing fairly well with my recovery. I have my surgery follow-up in a few days, and I just...
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    Stable stricture pain?

    @Eilujala Thanks for the quick response! It has been awhile since my last MRE. They have been waiting for an endoscopic clip to pass, which has been frustrating. I had a colonoscopy two weeks ago, the first since transferring GIs. The university doctor was able to reach my terminal ileum which...
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    Stable stricture pain?

    @Eilujala I hope you are doing well. Did you ever get any answers and find some relief? Your case sounds very similar to mine. I also have a stricture and budesonide did nothing. I finally became so frustrated with my GI that I transferred to a university hospital doctor who is a Crohn's...
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    Switching to an out-of-town doctor, how do you arrange infusion options?

    Hello, I hope you are all well! I have posted a few times about being frustrated lately with difficulty getting assistance from my doctor with my current pain. I finally decided to go to the nearest university hospital with a dedicated IBD center for only Crohn's and UC patients. I am optimistic...
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    How do you know if it is scar tissue pain vs. a flare?

    Unfortunately, @mylittlepenguin, I am waiting for a GI clip to pass from a colonoscopy several months ago. It just keeps hanging around. I was hoping to get an MRI, but they had to switch it to a CT with enterography due to the clip. I have not asked about a pill cam, but perhaps I should do...
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    How do you know if it is scar tissue pain vs. a flare?

    Thank you for your response @Lisa ! I really appreciate your description. This pain seems uncorrelated to anything, as far as I can tell. I have tried tracking just about everything I can think of. This is a dull ache (no pulling sensation) that will last for about a day, go away for about 1-2...
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    How do you know if it is scar tissue pain vs. a flare?

    Hello! I hope you are all doing well or on the path to recovery! For about the past year (essentially since giving birth), I have had a dull ache in my RLQ. I have had two colonoscopies (went back for polyps), two CTEs, and an appendectomy (only surgery ever). The appendectomy removed almost...
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    MRE vs. CT with Enterography

    Hello! I was supposed to get a MRE this morning, only to find out (after drinking the prep) that the hemostasis clip from my colonoscopy has been hanging on for 3 months, so they would not complete the test. I did have paperwork from the doctor that it was MR conditional, but they explained that...
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    Crohn's for decades...then chronic appendicitis. Related?

    Thanks @Scipio for your reply. It does sound similar. It seems I also have nagging inflammation in the TI. I wonder if the chronic appendicitis aggravated it since it was not symptomatic before. Pregnancy could have made it all go haywire. Although, I think the chronic appendicitis started while...
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    Crohn's for decades...then chronic appendicitis. Related?

    Hello! I have had Crohn's for the past 25ish years. For the most part, I had a mild case until about 2016 when I was hospitalized for what was a suspected fistula (poor visualization?) and put on Remicade in addition to the Lialda I was already on. After giving birth last summer, I noticed some...
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