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Yeah I think I've come to the reality that I'm just going to have to accept it for now an hopefully it will all subside once I'm off them! Yeah I get a lot of water retention, on my feet an ankles too. Thanks guys :)

Hi, I got diagnosed in August this year, which was a massive relief after the year I had where I was getting tested trying to find out what was wrong with me. As soon as I was diagnosed I got put on corticosteroids (budensonide) and even though this has helped major in making me feel relatively...

Yeah that is difficult, i'm not sure what other alternatives there could be, have you discussed with your doctor that they aren't working? i got told that my ileum in my small intestine is inflammed due to crohns and that is the part of your body apparently that absorbs your b12, which is why i...

yeah i too hated the prep before colonoscopy. i had to take a liquid in the morning which was fine and then a sachet to add to liquid in the afternoon which have me the most severe stomach pains and caused me to be violently sick. For that reason i was too scared to take the one the following...

Hi, I found out i had crohns this year after going through hell for 9 months. I was in my second year of uni, and i really struggled to keep on going and do all the work. I understand completely that when you have it, and particularly have the bad flare ups you really don't want to socialise or...

Hi, I understand what you mean when you get one of those times when you really have no energy it's so hard to motivate yourself to even move, let alone do all the things you plan to do. You mention 'we' so if you have a partner or friend you live with, i'm sure they will understand and be able...

Hi, It sounds like you have been through an awful time. I get b12 injection every 3 months which normally takes about 2 weeks to work. I first had them back in may, when my b12 was reported as very low at 72. I had to have 6 injections, 2 weekly, which brought my levels up to about 400. I would...

Hi, I have regular b12 injections every 3 months. The 2 weeks before i start feeling tired and know i'm due my injection. Once i've had my injection i normally feel worse on the day, and the last time i had it (mid october) i felt rubbish for about a week or so. I've noticed now i'm much better...