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Crohn's Disease Forum

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  1. CrohnsSucks

    Hemmies!! A pea between my cheeks :<

    The Prep H didn't do a whole lot for me. The hydrocortisone cream seems to be the only thing that has slowed them, but not gotten rid of them. I now have 3 of them hanging out and also have internal roids as well. The cream with the applicator tip is the only way you can get to those.
  2. CrohnsSucks

    Soon going back to work....can't stop going to bathroom in mornings

    Sounds like my mornings too. It wakes me up better than an alarm clock at 530AM every single morning! It is only off at the most 15 minutes. I go straight to the bathroom for about 20 minutes and is soft but then starts to get more like D. Then I'm back several times before leaving for work at...
  3. CrohnsSucks

    Stomach Grumbling!

    Yep, mine makes all sort of gurgling, bubbling noises and weird high pitched sounds too. Sometimes when I am having bad enough spasms, you can see them through my shirt for about 10 seconds at a time for a few minutes. I just laugh it off as my alien baby!
  4. CrohnsSucks

    I Finally Have A Name For The Pain

    Wow I can't believe it's been almost 6 weeks since my last update. What a rough ride it has been. I've had a colonoscopy and a upper GI and barium follow-though 2 days ago. There are large yellow and red areas all through my ileum seen in the scope and the follow through showed a pinched down...
  5. CrohnsSucks

    Has anyone Else come across this

    Pottasium, B12 and iron defeciencies are causing me some of the troubles you describe, but should have shown up in your blood test. Have you had a comprehensive blood test lately? The last one I did I was just able to go out of the house about 10AM and had not eaten or taken any supplements. I...
  6. CrohnsSucks

    BP Oil Disaster and Crohn's Flare

    I have a subject to discuss here with ya'll. I have nowhere else to turn with this subject so please hear me out. I was diagnosed with Crohn's 22 years ago and since then, I have been flare-free and not had to be treated for it. About 2 months ago, this flare started and is still raging on...
  7. CrohnsSucks

    Vitamin B Complex

    Well I've been taking a liquid B12 complex by the 25ml dropper full 3-4 times a day at first, then I tapered down to about 2 per day. At first I could feel when it ran out after a few hours. Now it seems to last most of the day. Doctor was talking about giving me injections, but last visit said...
  8. CrohnsSucks

    Is there any hope?

    Cory, I must add and I'm sure I will get a lot of heat for saying it is this. There are other drugs and supplements you can get and takke matters into your own hands. I was once prescribed by a doctor many years ago Xanax 3/day. I was much better mentally on it and managed real well on it for...
  9. CrohnsSucks

    Is there any hope?

    Damn Cory, this disease is not easy as I have found out, but you have to stick it out. Never know what you'll miss if you're not here. I too have found that my doctor doesn't want to hear about my depression. I told him 5 freaking times while at his office last week that I was getting really...
  10. CrohnsSucks

    In a bad flare, looking for support

    Wow I hope you get back into remission soon. You and I both started having problems around the same age. Mine was 15 and I was diagnosed then as likely Crohn's because they couldn't come up with anything else. I haave also been pretty much in remission for 22 years. I kept watery loose stools...
  11. CrohnsSucks

    I Finally Have A Name For The Pain

    Well been a rough one, but not feeling as bad after eating as I first did. I still run a low grade fever after eating, but don't bottom out and crash like I first was. Still taking it by day and seeing how it goes. Also have reduced the Robinul to half the dosage, but still twice a day. Cipro...
  12. CrohnsSucks

    Foods

    I don't know yet what it is about pizza, especially from either of the 2 superpowers of pizza delivery. All goes down OK, but it's an all nighter on and off the toilet. Add some hot wings to the order and oh yeah, I'm really having fun. What is strange is I can eat tomatoes or any of the other...
  13. CrohnsSucks

    I Finally Have A Name For The Pain

    Another as it happens update. Here we go again. Got home and sat down and typed my update, played a little with our black lab and then here comes the fever and bombed out feel. I haven't even taken my medication today because they had me in there sleeping so that's not it. It seems eating is...
  14. CrohnsSucks

    I Finally Have A Name For The Pain

    Yep, definetely had to call out to work today. Trip to the doctor this morning turned into day long stay at the hospital! Yuck! They ran another urinalysis and more bloodwork, gave me an IV drip for dehydration and watched me all day. They said my SERD (not sure if I got that right) was 16 last...
  15. CrohnsSucks

    I Finally Have A Name For The Pain

    Boy oh boy Crohn's wasn't this hard on me last time 22 years ago! This time it HURTS!! And if that wasn't bad enough the Robinul is making me feel worse, but it's doing what it's supposed to do. Side effects are dry mouth, dry eyes, not enough sweat and just feeling lousy, but that could just be...
  16. CrohnsSucks

    Please help!

    Maybe it's just bile or something. Mine never got completely clear on MoviePrep last week. It was a yellowish cloudy water, but everything worked out just fine. Think you'll be fine.
  17. CrohnsSucks

    Asacol - what should I expect?

    I just started taking it 5 days ago. I too am allergic to sulfa. I don't really see that much of a difference in the quality of the poo, but the frequency of going to the john has gone down a bit. I can also attribute that to not eating but once or twice a day now too. Don't really feel like...
  18. CrohnsSucks

    Anybody on Robinul?

    Well I've been taking the drugs Asacol HD 800mg @ 3/day and Robinul Forte 2mg @ 2/day for 5 days so far. I have found no side effects at all with the Asacol, but it seems the Robinul is causing me problems. Was not causing problems the first day or so, but has gotten slowly worse. An hour after...
  19. CrohnsSucks

    The whole story.

    No, no no. I'm bringing my own duct tape and tie downs next time!:ybatty: I don't know why or how I can talk to people while I'm asleep, but I do it frequently. Can carry on whole conversations and look around like I'm awake. The lights are on, but nobody's home for real! I guess the anesthesia...
  20. CrohnsSucks

    My boyfriend has crohns

    Just be real supportive and encouraging while he does the prep. The stuff IS nasty and it will make you want to barf. I'd rather not say what I used to keep me from barfing the stuff up on the 2nd liter. It is hard, but with encouragement he'll do fine. Crohn's had a different effect on me...
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