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Hello Bandesrson, sorry to hear that your situation led to crohn’s disease. I think stem cells is still work in progress for crohn’s disease and is not ready for all the patients and all the cases. Regarding the cell detox, I never heard of it, but the detox term is often use improperly to...

I dont want to argue, but I think it’s wrong to say: “Entyvio (vedolizumab) is not effective for crohn's disease.” There are many studies proving Entyvio is effective for crohn’s disease (maybe percentage is not as high as infliximab, but that would still make wrong your conclusion), that’s why...

Xifixan is rifaximin, it can indeed help with SIBO. Prices in europe for rifaximin are definitely much much lower (less than 10€ for 12 200mg tablets). I can very much understand you frustration, i’m feeling unwell too with a lot of bloating and some episodes of diarrhea, it clearly affect my...

What are your doc suggestions to treat SIBO?

I guess you tried to adjust your diet for SIBO (low fodmap) and it didn’t work? Bile acid malabsorption could also lead to a lot of diarrhea and is often under diagnosed, did you check that or tried something like Questran (cholestyramine)?

yes good advice. I’m having milk and grain as breakfast, I’ll try yoghurt instead and see how it goes.

Sometimes with crohns you just have to accept inflammation is there , even with biologics, and enjoy the best life you can though without overthinking, over reacting, as there is nothing you can really do at this stage. That’s my best conclusion after almost 25 year with it…

Hi Entchen, thank you for your solidarity. Sad to hear it’s happening to you too. I started Questran few weeks ago, it seemed to be reducing it a little bit, but with some up and downs… I had no more diarrhea urgencies though. I read it could take weeks for bloating and gas from bile acid...

Consider usually day 1 you enter the hospital, day 2 surgery day, day 3 you stand up few hours, day 4-5 you recover to get ready to go home, day 7 « worst case ». It’s not so long :)

Yes it’s 5 days normally, 7 days worst case. Pain meds in hospital are on IV of course as you cant take anything orally right after the surgery. Then oral at home if needed.

Vsl#3 which is a probiotic is used for crohns, and recommended by doctors in top tier hospitals as it helps with dysbiosis. A lot of clinical trials are going on regarding gut microbiome. Lot of scientists are spending money and time on research.

Hello Maya142, Sorry to read those bad news regarding your daughter’s friend. However I can tell you a surgery for an intestinal resection is pretty « standard » for a surgeon and should be performed in laparoscopy as a first attempt. I had a similar surgery last year. The pain was quite...

My docs suggested to take a quarter of questran before lunch and dinner to avoid D. Do you have any experience with this? Does questran help for bloating and gas too?

Entyvio is a good option, i’d trust your doc. More biologic treatments are coming very soon. I’m sure you won’t run out of options.

Hi kiny, thank you for your contributions, but what are your titles or professional role? You are confronting many studies or evidences, on a patient forum, why not directly with doctors? What do you expect from us?

I had a surgery for a resection in my ileum last year. I have no more strictures symptoms, and take stelara as a maintenance treatment, but I notice I still have A LOT of bloating and gas with sometimes diarrhea. My doctors suggest courses of rifaximin, but it’s less effective than before and...

Dont worry. Just plan a good education and college. I’m pretty sure your son will be more than fine.

Hi Floss, sorry I never been to under 5mg. Hope you’ll feel better this time.

Yes i would say it is as effective or even better as mri is the main exam for crohns.

It can delay healing processes I think