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Crohn's Disease Forum

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    Do you live a "normal" life?

    Everyone react differently with this disease but most of us can live a normal life thank to periods of remission and medications. Dont give up with your dreams and life expecations because of this condition, maybe you'll just need to adjust it a bit. Spain is great, also for health
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    Crohn's & Iron Level

    I fully agree with scipio.
  3. G

    Found Crohn's early.

    It's good it has been detected early. Your doctor can avoid the disease to spread elsewhere thanks to medication. You could try natural anti inflammatory supplements like turmeric or ginger ( however the efficacy is not proven), control your diet (avoid junk and industrial food as possible) and...
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    Always Tired

    Check your levels of iron and hemoglobin. I feel always weak and tired when my hemoglobin is low because of low iron levels..
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    How do you deal with the flu while on immunosuppressants ?

    I agree. Not sure immunosupressants used for crohns weaken the same white cells our body need to fight flu...
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    Tips please - recovering from blood loss

    Hi Alex.. Something very similar happent to me last year... had blood in my stool, then after 10 hours i passed out in the street and an ambulance bring me to the ER... my hemoglobin had dropped from 14 to 8... i stayed almost 2 weeks in the hospital and did all the exams and they found out...
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    Diagnosis after a long year

    Hi itzpixi and welcome, Many people here have had similar stories unfortunatly. The first year is often the most difficult one as diagnosis take time and also finding the right trratment. After the pill cam done your docs will probably give you corticosteroids. Hope you'll feel better soon...
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    What is Crohn's remission like

    Very interesting hikerneil. Thanks for sharing it
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    Entyvio (Vedolizumab) Support Group

    Guys I went from 1 entyvio injection every 4 weeks to every 8 weeks and now after 4 months my calprotectin is back up 1000ish (from 50-100 range)... my docs now plan to bring me back to every 4.. I hope it will work again and i'm not just loosing response to entyvio (been only 14 months i'm on...
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    Entyvio (Vedolizumab) Support Group

    Yeah also in my case food doesnt seem to have much impact on inflammation. I hope you'll feel better soon... this disease is such mysterious especially how everyone react so differently to treatments...
  11. G

    Meds stopped by doctor and no treatment.

    Yes I agree with all the answers, and i'm surprised your doctor dont want to give you a treatment. Almost all IBD patient need a long term medication. I'd seek for a second opinion.
  12. G

    Diarrhea in Crohn

    Ok good it's healing the fistula... usually it may take more than 3 months for biologics like humira to fully kick in but doctors should know more than us what to do... increasing the doses (every week rather than every other week) could be an option based on blood tests and symptoms but it's...
  13. G

    Gone for 2 scopes but no dignosis

    I agree with scipio. Dont be paranoid :) but maybe further tests must be done. A non invasive one could be calprotectin on your stools or inflammatory markers in you lr blood, to see if there is inflammation going on and what's the level... but usually if you see a good doctor, must be him to...
  14. G

    Hard lump that dissolves with massage. Anyone else?

    If you dont have pain nor vomiting i guess it's still fine though you should monitor it and maybe control diet. Is it new or you been having it for many weeks? Doctors recommend to treat strictures when they see dilatation before the strictures in the scopes, how was your last scopes and do you...
  15. G

    Constipated - Need help.. Abscess? Psyllium Husk

    Hard to give you much advices without knowing the details on how is your disease (location, possible strictures, actual treatment). "If you have strictures or are at risk for obstruction, it is not recommended to take psyllium" High fiber products are not recommended in many cases of crohn's...
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    Diarrhea in Crohn

    Could be from many factors, including a crohn's flare. For how many months she has been on humira? How are her inflammation markers? As it's been many weeks and imodium caused terrible pain i'd not take many more risks and definitely call the doctor for further investigations.
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    Don't know what to do

    Great news!
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    Entyvio (Vedolizumab) Support Group

    Ok sorry to hear that, but hang on, dual therapy could work better. Let us know how it works. Hope you'll feel better soon.
  19. G

    Looking for success stories and opinions about dieting as a treatment for crohns.

    You are right to look for improvement in your diet. Hope someone can share experiences and advices. In my case I only experienced very strict ones like liquid diet with modulen and it's more suitable for few months in case of flare. However I think you can't substitute medication like remicade...
  20. G

    Don't know what to do

    As remicade is an antitnf it will start working from day 1 of the infusion. Takes a while to fully work, but the first infusion could make you feel better.
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