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Crohn's Disease Forum

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  1. K

    Newly Diagnosed with Crohns and Don't Know What to Expect

    So, yes, I was on azathioprine for the whole seven years. I think I remember my GI doc telling me that azathioprine only works to maintain remission in about 35% of Crohn's patients. All we've ever done is twice yearly blood work and an annual office visit. I think the blood work he does is...
  2. K

    Pets with IBD?

    LodgeLady, is that a schnauzer/poodle? My boy dog is like that. He squeaks and squeals so loud you can hear him throughout the house. And he doesn't eat. My girl dog doesn't have any outward signs like that. I only found out she has IBD because a couple of years ago she had several bouts of...
  3. K

    Newly Diagnosed with Crohns and Don't Know What to Expect

    I completely understand your fears about the drugs but they really are necessary and many of us take them with minimal to no side effects. The problem with Crohn's is that symptoms can be very mild while significant damage is taking place. I'm a case in point. I was diagnosed in 2007 and...
  4. K

    Pets with IBD?

    Both of my dogs are on metronidazole and a prescription diet. I'm sure it is just a coincidence but these are questions I can't help but ask myself. I thought it would be interesting to see how many IBD people have IBD pets. Thanks for posting. :)
  5. K

    Nothing tastes good, don't want to end up back in hospital

    Prednisone is a wonder drug. It will help your mood and appetite, as well as your pain. Too bad it has so many nasty side effects, insomnia being one of them!
  6. K

    Pets with IBD?

    I have two 10-1/2 year old whippets, unrelated, that I've raised since puppies, and they both have IBD. I don't think it's necessarily common in the breed. I'm wondering how many of you have pets with IBD. Did I give it to them? Is it MAP or something else in our water? Just a coincidence?
  7. K

    Nothing tastes good, don't want to end up back in hospital

    Yes, they are only about 75 calories a piece, but they are so high in nutrients - particularly protein - that they are well worth eating. My dietician says that people with inflammatory diseases need to eat extra protein because we always have healing going on. She, herself, has rheumatoid...
  8. K

    Unsolicited Advice

    My former massage therapist was constantly trying to sell me on the maker's diet, as well as acupuncture. She also swore she had a whole host of food allergies that her naturopath cured her of and she was sure he could help me. Then I have a friend who wants to cure me with alkaline water. A...
  9. K

    Nothing tastes good, don't want to end up back in hospital

    Hi UnXmas. Are you able to tolerate eggs? My nutritionist told me eggs should be my best friend because they are loaded with protein and easily digestible. With the muscle issue you mention, it sounds like high protein foods should be at the top of your list. I don't have the severe weight...
  10. K

    Still feeling obstructed after resection

    Hi UnXmas. Yeah, my stool is soft and formed and I'm not in much post-surgical pain. I think a call to my surgeon is in order. I was really hoping people would tell me this is perfectly normal and to just hold on a few weeks, but that seems not to be the case. Thanks for your reply.
  11. K

    How Many Went From IBS To IBD?

    I was diagnosed with IBS at least as far back as 1990 and didn't get a Crohn's diagnosis until January of 2007. Even my colonoscopy and abdominal ultrasound I had in December of 2005, when I was clearly having Crohn's symptoms, came back normal. I felt like my doctor had given up on me after...
  12. K

    Surgery!! 😳

    Hi Hannah. I just had resection surgery 19 days ago and it's gone much better than I imagined. Hopefully you will have a similar experience. However, from my understanding, surgery won't bring about remission. All it does is get rid of diseased tissue. My surgeon told me the most critical...
  13. K

    Still feeling obstructed after resection

    Thanks, Dave. I think that's good advice. Perhaps I'll give it another week and then give him a call if I still feel this way.
  14. K

    Still feeling obstructed after resection

    BTW, I am considerably better than before surgery. By the week before surgery my pain had gotten so bad I couldn't even walk unassisted. Plus, I was mostly on a liquid diet. So I AM better. I'm just not sure I'm completely better.
  15. K

    Still feeling obstructed after resection

    Hi. I just had open resection surgery 19 days ago. He resected about a foot of my terminal ileum and did three strictureplasties (two Heineke-Mikulicz and one Jaboulay). For the last several months prior to surgery I was feeling really blocked up in my lower abdomen due to a functional...
  16. K

    No longer undiagnosed - kind of shocked

    I absolutely know what you mean. There's nothing more frustrating than knowing you're sick and getting no answers. I was tremendously relieved and happy when I was finally diagnosed seven years ago. The way I looked at it was, the diagnosis didn't make me sick - it just provided a treatment...
  17. K

    Food Confusion

    Do you have access to a dietician? Prior to my resection surgery I was having a lot of trouble with foods. My GI doc had me on a low residue diet and when that wasn't working he suggested low FODMAPs, as well. I was so frustrated and overwhelmed because I felt like I had about five foods I could...
  18. K

    Connected to crohns?

    I have it, as well. So does my mother and two of my nieces. I'm so used to how I look it really doesn't bother me. I rarely think about it except when I have a drink, and then I turn as red as a beet.
  19. K

    What would be a reason they could not do Laparoscopic surgery

    I just had a small bowel resection and my surgeon said he wouldn't do it laparoscopically. I didn't question him on it. He had previously removed my gall bladder by laparoscopy and I trusted him and felt he must have his reasons. I was actually fine with it because I knew he'd get a better view...
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