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Crohn's Disease Forum

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    This doesn't sound like Crohn's, right...?

    Hi, it's quite interesting and odd to me. But yeah I know people who have active inflammation and strictures have normal calpro. Therefore the calpro test it not useful for them. They still do it routinely but it's not telling.
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    This doesn't sound like Crohn's, right...?

    I have run into quite a few patients who have normal calpro when their inflammation is active. Symptoms, high inflammation markers via blood but just not thru the stool. Two patients whom I know so far were hospitalized due to active inflammation and strictures but had normal, repeated calpro...
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    Reduction faecal calprotectin during EN is lost rapidly after food re‐introduction

    Oh I have one more question. When using EEN to treat SIBO, does the patient need to be medicated after EEN? Because that's what we do with Crohn's. After a short course of EEN we need to switch to a pharmaceutical product or else Crohn's comes back immediately after food is introduced.
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    Reduction faecal calprotectin during EN is lost rapidly after food re‐introduction

    Many times when we visit the hospitals (non-serious, not IBD related) the doctors would ask us to change the diet or manage stress etc... I just wonder if a short course EEN is also suggested if the patient could avoid many medications if the bacteria load could be lowered first? Like doing a...
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    This doesn't sound like Crohn's, right...?

    @kiny Can they identify crohn's-affected cells under the microscope? Sorry, I don't know how to word the questions. When they take the biopsy into the lab, do they seek certain tissues to conclude that it's Crohn's or so they can exclude certain things to say it might be Crohn's?
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    Reduction faecal calprotectin during EN is lost rapidly after food re‐introduction

    I am definitely amazed at the good effects of EEN. I wonder if the low-residue diet can potential treat other problems? We know now that our gut is important and many problems (not just IBD) can trace their origins to the gut, I wonder if EEN is a good thing to just do every now and then for...
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    Crohn’s breakthrough surgery offers hope for ‘drug-free’ life

    Kelly Owens actually had this done before and still is in remission. See her story: https://spectrum.ieee.org/vagus-nerve-stimulation-takes-on-crohns-disease
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    Autism spectrum disorders and the gastrointestinal tract: insights into mechanisms and clinical relevance

    https://www.nature.com/articles/s41575-023-00857-1?utm_source=dlvr.it&utm_medium=twitter
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    I am now in remission

    Didn't Peterson and his daughter cure their autoimmune problems this way? Mikhaila's illness is well know. No medicine could help her. She eventually went on a very restrictive diet and got her life back.
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    The BOOM-IBD Clinical Trial

    https://boomerangtrial.com/
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    Neuroimmune modulation through vagus nerve stimulation reduces inflammatory activity in Crohn’s disease patients

    Paper: https://academic.oup.com/ecco-jcc/advance-article/doi/10.1093/ecco-jcc/jjad151/7279994?login=false Tweet: https://x.com/KevinJTraceyMD/status/1705628727877451828?s=20
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    Stelara is working

    You have put in an incredible amount of work to fight for his care as well. You are one of the rare, rare cases where you knew and recognized that doctors do not know everything and instead of going along to get along, you literally fought for your son and landed him in a sustaining recovery...
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    GlycanTrigger's 6-year project

    This is quite good. 😄 Let me ask it way then.. why is it that these prominent researchers and the EU would invest the money/effort without seeing some evidence indicating that this pursue would be worth the next 6-years of their lives?
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    GlycanTrigger's 6-year project

    GlycanTigger is an international collaboration targeting in IBD detection and prevention. They launched their 6-year research earlier this year. What are your thoughts on their hypothesis? @kiny About GlycanTrigger project GlycanTrigger is a project funded by the European Union within the...
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    Skyrizi Beats Stelara in Several Key Factors in Head-to-Head Comparison Trial

    This is wonderful news! When will it be approved for peds?
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    Changes in the gut mycobiome in pediatric patients in relation to the clinical activity of Crohn's disease

    I've been thinking... Have you considered taking in solid foods, in limited quantity and variety? Perhaps, your diseases has been reversed?
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    Changes in the gut mycobiome in pediatric patients in relation to the clinical activity of Crohn's disease

    When you starve out the fungi, do they actually die or just get weaker like some of the invasive bacteria that we suspect are contributing to the inflammation? I am just wondering what side benefits of EEN are in addition to achieving remission rates on par as steroids?
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