Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. L

    Feeling frustrated

    Samples showed no lactose intolerance. Constipation diagnosed through palpitating stomach you could feel how much was in there, plus she was passing hard baseball sized stools. And at one point she was going once a week
  2. L

    Feeling frustrated

    Celiac testing was negative, but our ped said in kids under 5 the testing is unreliable, even with a biopsy, as damage can be patchy. We were told if gluten bothers her, don't feed her it. She's not lactose intolerant, not that she has much in the way of dairy anyway. When she is really hoarse...
  3. L

    Feeling frustrated

    Thanks everyone. Catherine, yes we were given something similar, as we saw a dietician as well as docs. Number 2 is the one that eats everything when she eats! And I mean everything, fish eyeballs, beef tendons, chickens feet, pork hoofs ( can you tell my in laws cook for her!) She bearely...
  4. L

    Feeling frustrated

    She has had bowel issues and anemia for 2 1/2 yrs she's now 3 1/2. Our eldest has had bowel and skin issues for 4 1/2 yrs. The baby has had bowel issues since starting solids 3 months ago. Spoke to our ped. The hospital does not support any further testing for any of the kids beyond the allergy...
  5. L

    Feeling frustrated

    They did run inflammation tests when she was not hoarse or constipated, she had blood taken during a good few weeks. They can't figure out why her iron keeps getting low, they supplemented to get her iron up in 3 months it went from 3 to 8, they said 4-25 is normal for her age group, it took a...
  6. L

    Feeling frustrated

    Grumpy1 the same beautiful province as you! We go to childrens. We've seen dr Israel and dr Guttman ( yes seriously!) in the gastro dept. dr guttman was considering an IBD referral, but wanted to rule out EoE first. When nothing showed up on the scope apart from redness in the duodenum, we were...
  7. L

    Feeling frustrated

    We are in canada, it's the only childrens hospital in our province. The departments are supposed to coordinate, but who knows if they actually do. We see our ped about the youngest in a week, I don't know if she'll have the report from the hospital, but I'll fill her in, see what she says. We...
  8. L

    Feeling frustrated

    Gastro said my eldest has Encopresis, so won't see her again unless her issues persist into the teens, the one who has just been dismissed as growing pains, gastro did upper GI, won't see her again passed buck to ENT who said no it's a gastro issue So out of 3 kids 2 have issues and we have...
  9. L

    Feeling frustrated

    :ymad: well after 2 yrs of sore throats, sleepless night, joint pain, rashes, slow growth, low iron/ anemia of unknown origin, horrific constipation alternating with normal bowel habits, then diarrhea, a scope showing only redness in the duodenum We saw a rheumy at our local kids hospital, the...
  10. L

    Duodenal ostomy

    Happy to report. Y husband has his ostomy reversed 3 weeks ago. He complained about this level of care, ie 2 months of being abandoned days a lost cause, only medical treatment being Imodium and codeine. He got a 3 rd opinion from a doctor he knows, who suggest the stretch out the stricture...
  11. L

    Duodenal ostomy

    My husband has been told he had a duodenal ostomy and to expect a hospital stay of 6 months. Anyone else have this kind of ostomy?
  12. L

    Post operative bowel obstruction

    My husband has been told they are going to do a barium follow through, and enema on Monday to fix what they think may be a kink. Seems to be the news his body needed- he's hungry! We are taking it as a sign his swelling is resolving, he hadn't felt hungry in 2 weeks
  13. L

    Post operative bowel obstruction

    We are in canada. Unfortunately general surgeons tend to do the mist common surgeries such as this. And his surgeon went on vacation for week leaving a scalpel happy fellow in charge, who kept giving us deadlines for surgery to be considered, then his surgeon came back and said no surgery. They...
  14. L

    Post op swelling

    Thankfully the ng tube is only connected up for a few times aday to give a quick suction. He's very happy about the TPN as he finally has some energy. I'm just hoping things start to go down this weekend,then hopefully things will start moving. They've told him he can suck hard candy, I'm...
  15. L

    Post op swelling

    Yep since day 1, thankfully he is used to them! He is getting TPN by picc line too
  16. L

    Post op swelling

    Has anyone had internal swelling following resection. My husband had a resection, and 10 days post one was re admitted with a bowel obstruction. They originally assumed his resection may have leaked and he had an infection. After 3 antibiotics they have finally decided it is just selling. They...
  17. L

    Post operative bowel obstruction

    My husband had a TI resection to remove a stricture from a previous TI resection 25 yrs ago. 10 days later he was re-admitted with a bowel obstruction. It is now 12 days later with no resolution and no end in sight. On day 11 they decided his resection must have leaked andhe needs pred and a...
  18. L

    Having a hard time getting son's school to support him when absent in Canada - any tips?

    My husband is a teacher in bc. Schools have a legal obligation to provide your son an education based around hisIEP. My husbands advice is that if the school is being less than helpful,then go directly to the school board. They are not just there for the teachers. The principal obviously has...
  19. L

    Hematoma/blood clot in intestine

    It's frustrating our eldest has the exact same rash her dad had and he was told it was crohns related mentioned to gastro our concerns, he sent us to the kids hospital to be scoped to rule in or out crohns and celiac. The surgeon took one look at her notes and said no scope give her zantac! No...
  20. L

    Hematoma/blood clot in intestine

    We were told as she is female, young, and half chinese she could never in a million years have IBD or celiac disease it's statistically impossible. Should have seen the docs face when her chinese dad informed him that he had crohns
Back
Top