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How is she using the g tube? 80/20? Thats what C will be doing for at least 8 weeks. I'm want levels tests at 4 weeks so we can see if there is stelara in his system then. His last scopes did not show the stelara was working. He has been on it a year now. I'm hoping we can keep it and that...

My son was asymptomatic for two years after diagnosis. No pain, no diarrhea, no blood etc. His labs looked good yet when scoped there was simmering inflammation that had not been controlled even though treatment had eliminated his symptoms. Due to the simmering inflammation he required an...

Just checked in and I'm so sorry to hear all Caitlyn is going through. I hope things improve for her quickly! Thoughts and prayers.

Okay so I checked with original GI and current GI. The first endoscopy showed severe gastritis in stomach. There doesn't seem that a scope has shown blunted villi before ( so I'm not sure what I'm remembering?) But C has had a negative celiac panel before. I dont know what to expect next so...

They wouldn't start the feeds until they got the second dye test back concerning the leak. We did both the dye test and the celiac test yesterday. The GI nurse said we wouldn't start feeds until we got tall the results back. For the feeds, I'm assuming the leak was the issue since that's when we...

C had a scope several months back. The results were less than stellar. He had mild inflammation throughout colon and moderately severe inflammation at anastomosis site and above as far as scope would go. We knew we had decisions to make but he also had a new rheumatologist appt and I wanted...

The remission you speak of is clinical remission it means blood work has improved and symptoms are improving. There are several levels of remission clinical, endoscopic (scopes look clear), histological (no inflammation at the cellular level upon biopsy). Deep stable remission is the culmination...

What is the test that showed something in the middle of small bowel? Was it an MRI? MRE? What is the exploratory test the doc feels insurance won't pay for? Is it a pill cam? Have you appealed any decisions on that with your insurance? Have you had fecal calprotectin stool test? Was that...

Hi my son is asymptomatic even though he has active inflammation that is moderately severe. He was asymptomatic before diagnosis. He had severe pain, joint pain, inability to eat, nightly fevers, mouth ulcers, severe fatigue and his bms leaned toward constipation and not diarrhea. He was 15 at...

What dose is she on now? 5mg/kg or 10mg/kg? My son started at 10mg/kg but never made it to 8 weeks so we did 7 weeks, then 6 weeks then he was increased to high dose remicade (either 12mg/kg or 15mg/kg can't recall which at the moment). He still was unable to extend to 8 weeks. Before surgery...

My son didn't have fistula but he did have severe inflammation at the ileocecal valve that that a year + on remicade and mtx didn't heal. He required surgery due to the severity of damage in that area. He was asymptomatic on remicade (before dx and remicade he was in severe pain (abdominal and...

The normal reference range (NNR) varies by lab. For some labs >50 is normal and for others >167. But when monitoring your disease activity trends are important. If you are experiencing symptoms and your FC result is trending upward then the GI may want to put you on some type of med. Most...

That's crazy! I would just have to find another GI. How could he think he's building open lines of communication, trust or a good doc/patient relationship? So sorry!

I spoke with our insurance today in relation to something else and asked about our policy and if clinic infusions and hospital infusions were covered when both were close together. They said they'd cover either way although the hospital may be a bit more out of pocket but shoot Remistart would...

My son had his infusions done at his GI group's IV clinic in the GI group complex. It was nothing like what you describe though other than non private (there was a secluded room set aside that I assume was available upon request but he never requested it). The clinic had like 7-10 recliners...

If you look at Boost Plus it has like 360 calories per drink so you'd need to determine the amount of calories you need to sustain or gain weight (depending on your weight and what you intend) then drink that total. So if you needed to take in 2500 calories a day then 7 Boost Plus a day would...

So sorry you are in such pain. Just remember not everyone experience CD in the same way if the tests come back that that is what you are dealing with. Many are able to eat veggies and the like after their diagnosis especially when in remission. Other don't find a correlation between what they...

Is there no way that your parents insurance can't cover you? Medical is supposed to cover until 26, it seems vision and dental are different ages like 23 or at least for our it is 23. My 24 year old daughter is on our medical plan but not dental or vision because she aged out last year. I'm so...

Don't want to get this thread off course but just wanted shout out to Optimistic on the 3 years with EN and SCD! Congrats!

There's no correlation between CRP levels and effectiveness of bioligics. CRP picks up inflammation all throughout the body so it can be elevated when the GI is fine. Many CD patients, on the other hand, can have high levels of inflammation in the GI yet a normal CRP. A fecal calprotectin stool...