- Joined
- Apr 26, 2012
- Messages
- 6,370
C had a scope several months back. The results were less than stellar.
He had mild inflammation throughout colon and moderately severe inflammation at anastomosis site and above as far as scope would go.
We knew we had decisions to make but he also had a new rheumatologist appt and I wanted everyone on the same page.
Rheumy ordered bone scan and MRI. Both these came back negative for damage. He feels like the med is keeping C's inflammation away in SI joints and back. He is dealing with muscles issues that stem from past inflammation of joints. He called it something but I can't remember what.
C has been unable to gain weight in so long and with the bad scope results we discussed having a G tube placed and doing a round of EEN (actually 80/20) before moving to supplemental.
Also 4 weeks from now he will have a stelara levels test and determine where his levels stand and if moving the dose to every 4 weeks might help.
While placing the G tube the doc saw inflammation in the duodenum and took biopsies.
After the G tube procedure C had severe cramping so they did a flouroscopic test sending dye through his G tube. They saw what could've possibly been a small separation between the abdominal wall and something something blah blah possible small leak when tummy expands so he couldn't start tube feeds and had to eat very small amounts of low residue for a couple days then retest.
The flouroscopic retest showed all was good.
In the meantime his biopsy of the duodenum came back and the GI nurse called to state that the report said something about severely flattened and blunted villi to the point of atrophy or something along those lines. She said usually with celiac there is also a certain white blood cell but the report didn't mention that. So, the GI said we'd start with a celiac panel(which was done today) and go from there.
Until those results come back C still can't start the formula which at this point is elemental vital 1.5. He's still in some pain from the procedure and has said this procedure was worse than his ileocecectomy. We are taking it one day at a time around here.
He had mild inflammation throughout colon and moderately severe inflammation at anastomosis site and above as far as scope would go.
We knew we had decisions to make but he also had a new rheumatologist appt and I wanted everyone on the same page.
Rheumy ordered bone scan and MRI. Both these came back negative for damage. He feels like the med is keeping C's inflammation away in SI joints and back. He is dealing with muscles issues that stem from past inflammation of joints. He called it something but I can't remember what.
C has been unable to gain weight in so long and with the bad scope results we discussed having a G tube placed and doing a round of EEN (actually 80/20) before moving to supplemental.
Also 4 weeks from now he will have a stelara levels test and determine where his levels stand and if moving the dose to every 4 weeks might help.
While placing the G tube the doc saw inflammation in the duodenum and took biopsies.
After the G tube procedure C had severe cramping so they did a flouroscopic test sending dye through his G tube. They saw what could've possibly been a small separation between the abdominal wall and something something blah blah possible small leak when tummy expands so he couldn't start tube feeds and had to eat very small amounts of low residue for a couple days then retest.
The flouroscopic retest showed all was good.
In the meantime his biopsy of the duodenum came back and the GI nurse called to state that the report said something about severely flattened and blunted villi to the point of atrophy or something along those lines. She said usually with celiac there is also a certain white blood cell but the report didn't mention that. So, the GI said we'd start with a celiac panel(which was done today) and go from there.
Until those results come back C still can't start the formula which at this point is elemental vital 1.5. He's still in some pain from the procedure and has said this procedure was worse than his ileocecectomy. We are taking it one day at a time around here.
It makes me very sad that he is continuing to struggle and that you are struggling along with him. :heart: I am hoping and praying you get a clear path soon and it leads to remission! :ghug:
