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Crohn's Disease Forum

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  1. Clash

    Fecal Calprotectin results

    Fecal calprotectin test doesn't test for IBD alone. It is a test that can show if there is inflammation in the bowels. The inflammation could be due to IBD, NSAID over use, infection, cancer etc. Since it is a type of inflammatory marker if you have no inflammation then your result would be...
  2. Clash

    Help. I'm scared.

    Sitz baths can be helpful, I think. I'm not familiar with abscesses as my son hasn't had one. But if you browse the sub forum you posted in you may get some more helpful info.
  3. Clash

    New Formulation of Humira

    I don't have the letter but the reason for the change is an effort to make the injections less painful. It's something about lowering the pH to help with that if I remember correctly
  4. Clash

    Fecal Calprotectin results

    We've only once tried to get a pill cam covered with our insurance. It was at a time the GI was interested in seeing if my son's active disease was located at more than just his ileocecal valve and a bit beyond. The insurance denied it on the premise that he was already diagnosed and didn't need...
  5. Clash

    Should I have a colonoscopy?

    Welcome to the forum. So sorry for all you are going through. I'd still keep pushing to discover what you are dealing with. Maybe it isn't CD but it may still be something that can be treated in order to give you a better quality of life. Since your issues got worse after removal of your gall...
  6. Clash

    Low Dose Naltrexone (LDN) Support Group

    It's anti-map therapy, I believe. A cocktail of generally 3 antibiotics for long term. There are a few threads in treatment about it if you want to browse them.
  7. Clash

    Crying and lost: HUMIRA injections, or Remicade infusions?

    Sending hugs your way! I hope your consultation goes well. Definitely, bring up the antibodies test for Humira before starting since formation of antibodies is a concern when starting back a previously used biologic.
  8. Clash

    Youngest daughter in a flare

    Oh no so she didn't have cdiff? We haven't tried sulfasalazine although the rheumatologist brought it up and wanted to px it for his SpA. I hope the new med helps! Hugs!
  9. Clash

    Ileocecectomy?

    Yes, that's it
  10. Clash

    How do I keep myself healthy? I just started a new stream of Meds.

    ronroush7 they are on a biologic. Entyvio is a biologic. I'm assuming with you being on pred you aren't in remission yet. Pred can open you up to the infections fairly quickly. As far as fatigue have you had your iron and vitamin levels checked? Sometimes the inflammation causes malabsorption...
  11. Clash

    Moving on to Stelara

    Maya142, he is still complaining for back stiffness. I can't say that it impedes anything though because he's working and going and doing. We have a rheumatologist appt next Friday so I'm going to push for a MRI. The rest of his joints seem to be doing fine. He keeps saying he has shin splints...
  12. Clash

    Moving on to Stelara

    C just had his reg blood work done. All looked good though it always does when it comes to reg blood work. But, this was also time for an iron panels and his ferritin is looking good so no more iron infusions for now. He has a follow up with the GI in Nov. At that time he will have done the...
  13. Clash

    Confusing Diagnosis

    Granulomas are the gold standard for pathologists to tick the "Crohn's box". But in a majority of CD patients granulomas aren't detected. Source I think the percentage if fairly low in studies of granulomas being present. My little penguin or maya142 may have the exact percentages. The same...
  14. Clash

    Remicade vs other treatments

    Actually, the goal (no matter the med) should be clinical, endoscopic and histological remission with full mucosal healing. Studies have shown that this type of deep, stable remission leads to longer remission times and less risk of permanent damage that requires surgery. I agree that regular...
  15. Clash

    Newly diagnosed - unsure of options.

    My son was started on remicade(a biologic similar to humira) right after dx. The doc added methotrexate shortly after. My son started with oral methotrexate but moved to methotrexate injections soon after. He has no side effects from the methotrexate. He takes 1 mg of folic acid daily since...
  16. Clash

    Bowel thickening + constant pain

    Sounds like he thinks it's inflammation of he prescribed entocort. Hopefully, the entocort helps and you find relief. Good luck with the next GI I hope he is more informative.
  17. Clash

    Bowel thickening + constant pain

    Did they say the bowel thickening was due to inflammation or scar tissue?
  18. Clash

    Hello, I'm new & in pain watching someone suffer :(

    Has he had trough level testing for the remicade and/or antibodies level testing? Remicade can be adjusted in dose or schedule. Other meds such as imuran, 6mp or methotrexate can be added in combination to the remicade. A run of steroids like prednisone or entocort could also be added. Some CD...
  19. Clash

    Best brand probiotic in the USA?

    I'm going to tag my little penguin she may can recommend some. When my son takes antibiotics he uses Florastor. He has tried VSL 3 and some other but they upset his stomach.
  20. Clash

    Humira 6 month mark

    It can take humira some time to work. My little penguin has a son that it took some time maybe 5 or 6 months to see results with humira. Have they upped your schedule to weekly or are you taking another med with it like mtx, 6mp or imuran?
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