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I am so sorry to read your update, I hope they can come up with something that works for her.

Hi goofy chicken and welcome to you and Madeline. I am so sorry you had to join this club. Our story isn't too different to yours, my daughter Lucy who is now five was diagnosed at 2 almost three years ago. She had the hand foot and mouth misdiagnosis at 9 months - we now know it to have been...

So Lucy had her GI appointment this morning and the great news is that her bum has finally healed. It has taken a long time and I never thought she would get here. Staying on humira and methotrexate for now but will think about stopping the metho after our next appointment which is in 6 months...

I am so sorry for your loss

Lucy gets ulcers in her mouth from methotrexate quite a bit I find bonjella helps , they generally clear up in about 7 days

Lucy's reactions to remicade were during the infusion so I guess everybody is different

Thanks everybody bloodwork came back fine, he's a little underweight but height wise he is 95th percentile - doc not concerned back in three months unless something worries in the meantime. No sign of any fissures so hopefully I'm just on high alert because of Lucy

Farm wife hope grace feels better

Hope grace is feeling better

We have had to hold Lucy's shot twice due to infection, both occasions I got bloodwork and sent to GI for decision on whether to hold or not, bloods were repeated 5 days later on both ocassions and we were good to go. So sorry grace is unwell, I definately find that when Lucy gets sick it hits...

That's a good idea but as we don't have a lab that runs the test (something is telling me GI centre sends them to Scotland), I don't think the gp will be able to but it's worth suggesting.

Hi all most of you know my story at this stage my little girl Lucy was diagnosed with crohns almost 3 years ago at 2 . Over the past couple of months I have started to get concerned about my little boy Luke (4). He had had a couple of episodes of bleeding after bm which I put down to him being...

So glad this is going well

I'm so sorry you had to find this forum but and I hope you find it a great source of support as I have particularly in the difficult days just after diagnosis like I did. You have gotten some great advice from parents who have children similar age to your boy. My little girl Lucy has been on...

Great to hear she is doing well

Mtx can interact with penicillin but Lucy has had it a few times now and no problems. Your pharmacist should alert you to the potential risks and also run it by your GI.

Thanks everybody the rash is still a mystery but is almost gone - whatever it was ! Latest theory some sort of insect bite!! Thanks for all the advice

Lucy has been on humira since June 2013, the injection hurts a lot ice helps, she generally needs lots of cuddles afterwards. Hope it goes ok the first one is the worst it gets much easier after that. Hugs

So Lucy has been sick for the last few days - took her to gp on sat and put her on an antibiotic - so went for bloodwork this morning as humira is due this week - nothing major alarming everything either just in range or marginally outside except platelets were 121 whic has dropped from 266 in...

3 induced births - all delivered vaginally - one with ibd