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I remember being so embarrassed returning Grace's first stool sample to the lab. The brown paper bags I kept closed so no one can see. Forward a few years........ Next time I take one in I'm going to put in big red letters. YA, IT'S WHAT YOU THINK IT IS! OR HAVE A LIGHTER, LET ME SHOW YOU A...

Grace has given herself shots for years 😁 Of course with my supervision😉 Even during IVs she helps by getting her blood in the viles and taking the IVs out. She also does her own blood pressures 🤗 The nurses are demanding she come work there. 😂 Mlp, 😯 no mention of an infusion for the first...

I just got word today that insurance approved for Stelara. :ywow: yup, shocked it wasn't more of a fight with insurance. However, I'm thankful.:kiss: The specialty pharmacy called to start the process of delivery. However with humira I was shown how to give the shot. Is Stelara the same...

Hi, I pray your child has am amazing time at camp. I have a question thro...... Remind me how old your kiddo is and did you have to fight insurance to get Sterala?

My kiddo did!

This is happening with Grace and her eds. She's starting towards puberty (I was an earlier bloomers as well) and issues are creeping up. We were warned early on it might happen.

So no help here. Grace tolerates mtx well but we're upping her dose. So hopefully no issues.

Heard from rheumatologist that he already had it at his office. I was almost tempted to ask for one to get her thru the next months.

She's 74 lbs. I'm wondering if it's easy to get insurance approval at a lower dose. Don't have a clue. Any studies I can link in my email to him?

:yfaint:ustekinumab45 MG/0.5ML Soln Commonly known as:STELARA Just read her portal and this is the dose he's asking for. I'll contact him and ask to clarify why not the 90.

Not sure what the dose is? He mentioned it will be low.

Stellar it is! Insurance battle it will be. :lol: He wants her on a low dose. Upping mtx until she starts new drug.

Poor kiddo! I've had one of those. No fun. I agree with CIC above. Run it by the GI.

Trip canceled. She caught the summertime cold virus. As to the SI joint, mri showed nothing but upon physical Exam she had tenderness in that area. Still does if not worse now. No other testing has been suggested.

There's no evidence of erosion in the SI joints...... Yet. But her rheumatologist is treated her as if it's a possibility because of the pain there. But no dx at this time, thank God! This is why we treat aggressively!

Tomorrow is the big day. We go down to talk about her next options. It sounds like her docs are open to all of them. My question or thought process is, If we went with a drug that treated just her jia, could mtx be enough to keep her Crohn's at bay? Her jia had always been more aggressive.

My daughter got the flu at 3 months old and was never the same. Her Gi symptoms showed then. However, because her smile was bright and her test were normal, no one listened. By three she had stopped eating and pain everywhere. Her first Gi did the scopes and the biopsies showed what was...

Yes 😔 now remember we're not docs but parents who want to help our kiddos. But yes that's very similar to what my 3 year old had but all her test were normal, except for her scopes. It's not uncommon to have juvenile arthritis (JIA) with a IBD. Grace (who's 9 now) has JIA, also. Every kids...

I've heard of it twice on the jia group I'm apart of. One child ended up on prednisone for a bridge therapy and the other ended up in the hospital.😩Hopefully this won't happen to Grace.

Heard from the nurse. Her doc says no new med for 3 to 4 weeks. 😫 I know this is a normal wait but worried about a flare up. Grace is to go and get GI check up to make sure her crohns is indeed in remission. We have to go next week to see the rheumatologist and talk in person about her next meds.