Changing crohns

[my little penguin]

We know Crohns changes in kids as they grow

Did your kids symptoms change as they went through puberty?
Did Crohns get harder to control woth puberty ?

Ds is 14.5 and things are changing in the Crohns front
Unfortunately

 

[Jelly loves Peanut butter]

Sorry to hear this MLP! Hope your son is feeling better soon!

 

[Maya142]

My kiddo was only diagnosed at 16, so no idea on the Crohn's front.

But I know from a JIA perspective, that things do change during puberty/the teenage years. Sometimes kids go into remission (sometimes even drug free remission vs. medicated remission) and other times the disease gets much worse .

That did happen with M - from 12-14 her arthritis was moderate, but after that her arthritis became severe.

 

[DanceMom]

A does not have Crohn's...but I remember very clearly what her Immunologist told us when discussing her future. She said puberty would be very telling. Either her symptoms would improve and that'd be a good sign for the future. Or she'd get worse and we'd know that her road will be a difficult one. She's 13 now and her symptoms are definitely changing. Her asthma is more problematic, she has new leg symptoms (her legs have never been an issue) and we've seen some other troubling things that are new as well. Puberty seems to be exceptionally rough for our kids.

 

[Farmwife]

This is happening with Grace and her eds.
She's starting towards puberty (I was an earlier bloomers as well) and issues are creeping up.
We were warned early on it might happen.

 

[Pilgrim]

We're not there yet. C is 9, and H is 7. But I was wondering about this the other day. I was hoping the body would be so busy developing.... that Crohn's might be distracted. Maybe that explains why it's more prevalent between 15-30 years old.
I pulled that out of the air, btw.
What is your ds going through?

 

[Tesscorm]

S was in the mid of puberty when diagnosed so I can't say if it 'changed' other than it may have been a factor in 'starting'.

But, my friend's daughter was diagnosed at 10 years old. At approx. 12-13, she did flare fairly severely with difficulty bringing it under control (ie 2-3 week hospital stay, abscess, possible surgery, etc.). In the end, she did not need surgery. She'd been on only metho up (and steroids, when necessary) until that point. Once the abscess was dealt with, remicade was added and she's been fine since (approx. 4 years).

If puberty was a factor, in her case, it seemed that what had been working before, needed to change but then she stabilized again.

(And, I'm so sorry he's having problems... :ghug: :ghug: I hope a new plan/change in treatment will help quickly.)

 

[awoenker12]

I was diagnosed with Crohn's at age 10 and it was pretty severe almost to the point where I had to be hospitalized. I got a colonoscopy, and afterwards, they put me on prednisone and pentasa. I was able to taper off the prednisone successfully and be on the pentasa for almost six years without any symptoms at all. Not until my 16th birthday did my symptoms reappear, but not nearly as bad as the first time. I am now finally getting it back under control again, but I do believe puberty does play a role in how it can affect Crohns.