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Crohn's Disease Forum

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  1. Lady Organic

    FDA Approves Ozanimod for Adults with Ulcerative Colitis

    Great news! Variety of treatments = better chance for everyone to get disease under control.
  2. Lady Organic

    A Crohn's related skin question

    yes really best to take time before switching a medication that works, as changing can create more complications including relapse and no garantee to same response with other medication. Skins issues are often mysterious. The dermo will be aware of possible skin reactions after the vaccine too...
  3. Lady Organic

    A Crohn's related skin question

    I also had a skin issue around both my eyes a few months ago. Thought maybe caused by Humira. It lasted about 2-3 months. Reddish and itchy. It looked to me like eczema which I had a lot of experience with as a child (bilateral on inner elbows and knees, sometimes hands), but never on my face...
  4. Lady Organic

    In desperate need

    Hi, I am sorry for your issues. Going 8 to 12 x /day is important relapse, do not let this expand or cause possible further damage. Contact your GI asap or if you dont have any, go to the ER.
  5. Lady Organic

    Gut inflammation and dietary study

    I have also heard 20% of people do not respond to an anti-inflammatory diet, meaning other variables-factors should be explored. I understand thats my case unfortunately, as I have tried almost all possible food options and restrictions without luck. I think or thought I had a positive response...
  6. Lady Organic

    How likely is Crohn's colitis to evolve into affecting the small bowel

    Its always possible to have isolated episodes in different and new spots. CD is unpredictable and can pop anywhere. Where the disease has started at diagnosis or where it hit a new spot during its evolution will remain vulnerable spots for further relapses. Disease tend to ''favor'' certain...
  7. Lady Organic

    How likely is Crohn's colitis to evolve into affecting the small bowel

    best way to avoid CD moving around is to never stop our medication!
  8. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    I just read you had 2 doses of the vaccine. wow, I am sorry to hear that. This shows the importance for us of testing and if tested negative, wait for a third dose. Its too bad the medical authorities do not take the lead on this matter and at least inform us. I am sure a lot of immunosuppressed...
  9. Lady Organic

    Immunosupression and Covid Vaccine Response

    Only people who received Aztra zeneca in Canada might have a different vaccine for their second dose. :unsure: There wont be any problem getting my second Moderna, the stocks are in. It is just that the organisation is very slow in pharmacies:)
  10. Lady Organic

    Immunosupression and Covid Vaccine Response

    I got my first vaccine last week (Moderna) and was able to get the 2nd appointment in 2 months (better than 4 months) because of the new regulation regarding immunosuppression status in Canada. The pharmacist might be able to get me a better appointment. Problem is pharmacies receive very small...
  11. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    Antibody test not available yet where I live. Important to get the right test, (SPIKE antibody Test): https://www.dynacare.ca/covid19-antibody-test.aspx?lang=en-ca ''What is the intended use of the SARS-CoV-2 Nucleocapsid Total Antibody Test (ACOV)? The COVID-19 (SARS-CoV-2) Nucleocapsid...
  12. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    Hi Joe and welcome, I feel your worries. Its unfortunate for us we have to keep going with so much unknown. Could your GI doctor write a letter for your work? To explain its unsure you are protected because of your immunosuppressive status and that because of this you would benefit special...
  13. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    thank you, DOSE AND ADMINISTRATION ADULT Kidney Transplant Recipients: If azathioprine is to be used, a maintenance adult dose of approximately 1.5 mg/kg/day PO is given once daily. I am not sure how to convert this into purinethol (6-mp) it seems even less than what I take:(
  14. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    thank you, I wish they would give the antimetabolite dosage participants were taking. I have also heard organ transplant patients take higher doses, but how much more? 2, 3 x more? I can only find examples on the web for leukemia and dosages seem to vary depending on stage of disease.
  15. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    yeah you are right, there will eventually be results of studies on combo therapy, soon I hope.
  16. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    I fear the immunosupressant (purinethol) will leave me unprotected after 2 shots. Not knowing if seroconvertion occured for people with our situation is not cool. i'd be happy to return to a normal life (covid stress-free), seeing my friends, not wearing the masks, etc, after my 2 shots, but I...
  17. Lady Organic

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    Has anyone who takes a biologic (Humira, remicade) + immunosuppressant (Aza (Imuran), 6-mp (purinethol) or methotrexate) has had the covid vaccine and had a serology test afterwards?
  18. Lady Organic

    Immunosupression and Covid Vaccine Response

    Thanks. I found this: https://www.canada.ca/en/public-health/services/publications/healthy-living/canadian-immunization-guide-part-3-vaccination-specific-populations/page-8-immunization-immunocompromised-persons.html General principles Several general principles apply to the immunization of...
  19. Lady Organic

    Immunosupression and Covid Vaccine Response

    Great news, the regulations have just changed today in my province in Canada and now include immunosuppressors as eligible to have 2nd dose within 28 days! I booked my appointment may 26th, mid-way in between my 2 shots of Humira. That's the best way right? I'm also taking purinethol. If I can...
  20. Lady Organic

    Immunosupression and Covid Vaccine Response

    ''Delayed second dosing should be avoided in patients treated with infliximab. " I wonder if its to be avoided only because it leaves us unprotected during the (4 month) delay OR - because it may decrease even the capacity to seroconvertion at second dose 4 months later. This unknown part is...
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