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Crohn's Disease Forum

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  1. Lady Organic

    Does anyone know if 10mg prednisone is still immunocompromising?

    Did they test you for covid at the hospital? Did you received your first Stelara shot while being sick with fever? If I remember correct, the instructions are to wait and postpone our shots when we have an infection, especially fever. There should be a info help line/center in your country for...
  2. Lady Organic

    Notice from Insurance about Switching from Remicade to Biosimilar

    I agree. When this is going to happen with Humira, I am going to ask my GI to remain on it, no substitute. I have heard research so far as shown there are no issues switching, but all of this is so early to know fully in the long run. It can often take a year or more for a relapse in IBD after a...
  3. Lady Organic

    what helped my daughter to be Crohn's disease symptom free

    Hi and welcome! Thanks for your testimony. This water is well-known in Japan. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5037740/ Dr Hiromi Shinya who is (or was) chief endoscopy surgeon in Medical Beth Israel Hospital in NY advocates about this water in his books about healthy (mostly...
  4. Lady Organic

    Possible osteoporosis

    wow, Im so sorry for what you are going through. I can only imagine... Did you take a lot a prednisone since your CD diagnosis? I know prednisone in high dosage, as used in IBD, is terrible for joints and predisposes for osteoporosis and bones issues. GI talks openly to me about this issue when...
  5. Lady Organic

    Thoughts on routine Colonoscopy during Pandemic

    Blood works and fecal calprotectine is what I use for monitoring during the pandemic.
  6. Lady Organic

    What if you need antibiotics while in a flare? Do you take them intravenously?

    Has the ENT proposed anything such as a nasal decongestant and nasal irrigation such as Sinus Rince? You could ask your pharmacist what kind of off the counter you could take and how to take them in hope to clear out a sinus infection without the use of antibiotics and if this could be an option...
  7. Lady Organic

    New to crohns

    https://onlinelibrary.wiley.com/doi/full/10.1111/apt.15097 Managing the adverse events caused by anti-TNF therapy in inflammatory bowel disease from the article: ''Psoriasis is a relatively common side effect of anti‐TNF therapy, with 1.5%‐5% of patients developing this manifestation.24 It is...
  8. Lady Organic

    Secure-IBD Covid-19 data base

    Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients. What is the purpose of this registry? The goals of the registry is to rapidly define the...
  9. Lady Organic

    New to crohns

    I had just replied in your other thread in the support forum, by evocating the link between the new onset of your skin rashes and Humira. Im so sorry for all you are going through, all those new inflammatory conditions (eye, skin, joint), and CD still not under control... after a year on...
  10. Lady Organic

    Need advice please.

    is the eczema better? and the IBD status? I suffered a lot from eczema when I was a child (big patches inside my elbows and behind knees) and then it subsided, a bit on my hands in teenage too. My skin now remains the dry type though and can itch easily if too dry. Do doctors think Humira could...
  11. Lady Organic

    Stricture Advice- Surgery or not?

    great! thats good news!
  12. Lady Organic

    Looking for advice

    according to the CD diagnosis and stricture, this sounds like standard treatments being offered to your son in 2020. Humira is a at home injection and easy to shoot on the belly every 2 weeks. I chose Humira over Remicade main reason for the autonomy it would give me. Self at home treatment over...
  13. Lady Organic

    Blood in stool

    Its possible its related to the inflammation that is not yet fully in remission. Could also be a little fissure or other mechanical issue bc of strain as you mention, a blood drop in the toilet, since he didnt have blood before as a main symptom of disease. The next few days and weeks will tell...
  14. Lady Organic

    Hi, I have Crohn's. Just signed up 120120

    Hi Tom and welcome to the Forum! Glad Humira is working for you and that your are feeling better! be well and enjoy the forums:)
  15. Lady Organic

    16 yr old boy/just diagnosed

    Hi and welcome. I am sorry for your son's new diagnosis and issues. I looked at the recommandations for dietary intakes for teenage boys and I see 2,600 to 2800 calories/day. https://www.healthychildren.org/English/ages-stages/teen/nutrition/Pages/A-Teenagers-Nutritional-Needs.aspx If the...
  16. Lady Organic

    Stricture Advice- Surgery or not?

    What about Enteral liquid diet for some time? https://crohnsforum.com/threads/the-curious-case-of-en-reversing-strictures.85936/ The IBD-AID diet may be of some interest to you in my signature:)
  17. Lady Organic

    Concerned - high FC

    If your Dr think you have IBS, you can try IBS diets such as FODMAPs: https://www.health.harvard.edu/diet-and-weight-loss/a-new-diet-to-manage-irritable-bowel-syndrome
  18. Lady Organic

    Concerned - high FC

    Could your sweating be fever? if you dont have a thermometer, you can get one at the pharmacy and mesure your temperature easily and report a diary to your GP in case of irregularities. Make sure you measure temperature at least 20-30 min after putting anything in your mouth, even water. 1- A...
  19. Lady Organic

    Concerned - high FC

    Hi and welcome to the forum:) Inflammation and pain can occur in any parts of the colon in IBD. Left, transverse or right or all these parts of the colon can be diseased. The colon is a 5 foot long organ. A classic case of debuting or left sided ulcerative colitis can generate pain in the lower...
  20. Lady Organic

    Looking for advice

    Hi and welcome to the forum. Im sorry for you son's health issues. Seems like your son is being given a very good proactive global evaluation so far, thats a good start. A member just posted a research on the benefits of enteral liquid nutrition diet for strictures here (if this was a typo...
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