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Crohn's Disease Forum

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  1. Jennifer

    My story

    Hello Dunkinidaho and welcome to the forum! That link isn't working for me Trysha. Maybe their site is having some issues right now. Humira has some options that may help: https://www.humira.com/humira-complete/insurance-coverage One of the best things you can do though is have your doctor...
  2. Jennifer

    Last one wins PG version 3.0

    It makes me happy to know that Lily had so much steak to eat. She was so loved. My heart aches for you Cat.
  3. Jennifer

    Seeking suggestions - writing a book for kids with IBD

    This member has been approved by an Administrator to post this message. Hi mganendran and welcome to the forum. Normally something like this would need to be approved by an Administrator but I can also see that you're here as a member yourself and aren't just trying to "interview, engage in...
  4. Jennifer

    Crohn's Disease: Excessive Belching and Bloating

    I agree with Guerrero. Mesalamine meds really don't do too much in regards to treating Crohn's disease because they're topical and Crohn's can affect all layers of the intestines. Those meds are a lot better for things like Ulcerative Colitis. I have a stricture and adhesions from a bowel...
  5. Jennifer

    Do others have a constant cold type virus?

    Could possibly be a side effect from one of your medications. Could be allergies possibly. Do you still have your tonsils? Sometimes even those can make people chronically sick. Mine did but I basically had strep throat often which was made worse when I was on Humira. Meds like Aza could...
  6. Jennifer

    Fistula before being diagnosed?

    You can definitely have something before being diagnosed especially when you have to wait so long to be seen by a specialist. Hopefully either your GI or regular general practitioner will test for any fecal matter in your urine to see if that's the cause which is very possible if you have a...
  7. Jennifer

    Horrible GI Brought Me To Tears

    Since being diagnosed in 1991 I've had both good and bad doctors (not just GI doctors). I left my most recent GI to see one that was closer to me and because it felt like his personal views were impacting my care. So I went to a new GI and I'm on the fence with this guy. My last scope looked...
  8. Jennifer

    Stop pentasa before a colonoscopy gastroscopy?

    No worries, feel free to talk as much as you want on here. :) Yes abdominal surgery is pretty awful. Now days it's mostly done laparoscopically so the healing time isn't as long and I imagine the pain isn't as bad or as long. Mine was laparoscopic with hand assist so I still have a decent sized...
  9. Jennifer

    Stop pentasa before a colonoscopy gastroscopy?

    Well if you can't handle anything past the BRAT diet right now then the Pentasa definitely isn't going to make it so they don't find anything. Sounds like something is going on for sure. I hope it isn't any form of IBD and certainly not cancer. Adhesions can cause problems as well. I have some...
  10. Jennifer

    What is working for you?

    Hi ginger65 and welcome to the forum! :D 6 small meals a day is pretty common. Everyone is different as far as diet goes so you'll need to find out what works for you by trying things out little by little. For me during a flare I tend to go on the BRAT (bananas, rice, applesauce and toast) diet...
  11. Jennifer

    EXTREMELY worried. Waiting for diagnosis.

    Hi Mag3451 and welcome to the forum! :D I saw your other thread where you're asking if it's IBS or IBD in both threads. Honestly we couldn't say. Not everyone who has Crohn's or other forms of IBD have had blood loss. I also wonder if maybe one of the medications you're taking may be causing...
  12. Jennifer

    Stop pentasa before a colonoscopy gastroscopy?

    Hi msbling and welcome to the forum! :D Your scope is in two weeks and you've only really just started taking Pentasa. Even if it is helping I don't think it will be enough to completely heal all of the active inflammation that may be going on before your procedure and even if it did there...
  13. Jennifer

    Life after Resection

    I'm sorry to hear that you're in a flare again so soon after surgery. Also sorry you had to go through another surgery right after. I'm not sure where I would be if I didn't continue medication after surgery. All I know is that none of the GIs I've seen since my resection in 1999 believe I've...
  14. Jennifer

    UNDIAGNOSED?? - be sure to check for dysautonomia/POTS

    Thank you for sharing your story jrd030. I'm glad you were able to get a diagnosis. What are you taking/doing to treat it? Have all of your symptoms gone away?
  15. Jennifer

    Christians!!!

    I don't see an issue with people starting their own threads (you don't have to be staff to post a new thread) related to whatever faith they follow as long as it's done in the Members Only section of the forum and as long as all posts abide by the forum's rules. Since there are so many different...
  16. Jennifer

    Humira - daughter working at Disneyworld for 1 year.

    Medications have helped save many people's lives and do not simply "mask" symptoms. They're used to keep inflammation under control and prevent it. HolisticHealing I'd like to remind you of the forums rules about deterring members from treatment. This is a support forum first and foremost...
  17. Jennifer

    First time on pred - is this usual?

    It can happen. If it continues or gets worse then contact your doctor as it's possible that the dose may not be high enough. You had started another medication at the same time (Pentasa I think?) but it can take some time for these types of medications to start working. The point of the steroid...
  18. Jennifer

    Meds and brain function

    Are there any particular medications you're concerned about? As mentioned above, yes it is possible.
  19. Jennifer

    Pushing away friends

    For my husband he doesn't tend to talk much with therapists so at the beginning he tells them that they should ask him questions otherwise there will be a lot of silence. If you're similar (have a hard time opening up) you may want to suggest the same when you start seeing one.
  20. Jennifer

    Prednisone or Pentasa side effect?

    Prednisone can increase your heart rate so just keep a watch on it especially if you already have heart problems or high blood pressure. This is one of the few medications that you can't stop taking suddenly between after taking it for 7-10 days so be sure to taper off of it and contact your...
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