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Maya, I'm already on two nausea medications and on the lowest injection possible. There's no where to go in terms of dose and we've upped the folic acid to the max too (I'm on 5mg every day apart from injection day). I've given it a good shot, my quality of life has been terrible and frankly I'm...

I've been on the methotrexate for about 6 months now and I've had constant side effects. My main problems have been nausea, D and having zero appetite. I have tried taking folic acid 6 days a week and am on two different anti sickness meds but unfortunately the D and lack of appetite are still a...

Hello, I just wanted to say welcome to the forum, I'm sorry I don't have any experience with this medication, but I know there are a few people who have been on it. If you have a look at the treatment section, you should find some posts/threads about it from other members, which will...

Hello, welcome to the forum I just want to say how lovely it is to see such a supportive partner, not everyone is so understanding. There are lots of things that your partner may find useful, such as keeping a food and symptom diary to see if there are any specific foods or drinks that make...

Hi there, RA can cause problems in the back, but there are so many forms of arthritis that misdiagnosis is possible, so if she wanted to there's no harm in asking for a second opinion. It might be that your sister has been on other medications like sulfasalizine or MTX but just hasn't said...

Hi everyone, so it's been a while since I've posted anything. The clinics here are all massively behind. I saw my gastro in December and he wanted me back in 8 weeks and I still haven't been seen, so that gives you an idea of how bad things are and there doesn't seem much they can do about it...

Hello, welcome to the forum I'm so sorry to hear you had to deal with that! One of the most frustrating things about this illness is that its completely invisible to the untrained eye. How is your sister-in-law related to you? Is she your husbands sister or your brother's wife? If she's your...

Hello, welcome to the forum, I'm so glad to hear you're in remission, and I hope that continues for a long time to come, but I think people who don't have the illness maybe assume it means everything is fine, which of course isn't true, so I'm glad you've reached out. I can totally relate to...

Hello, welcome to the forum I'm so sorry that your boyfriend left you, but it sounds like he's done you a favour. It's very hard for people to completely understand what this is like if they've never been in this situation but people can at least be supportive and your ex certainly wasn't. I...

Hello, welcome to the forum I'm so sorry to read about what you've been going through, I can really relate to how you're feeling, I was diagnosed at 19 after being unwell for almost 5 years and initially it was all a bit over whelming. It's normal to feel like you don't want to acknowledge...

Imodium is one of those things that works differently for everyone, for me, it means I won't go again until the next day, unless I eat/drink something that usually causes D and then I just have a normal bowel movement without urgency. My IBD nurse advises only taking one at a time, as people...

Hello, Welcome to the forum I'm so sorry to hear of your suffering. No one should be made to feel like they should just give up. This illness really takes a toll and doctors don't always understand that, but I would urge you to try and see someone. That pain could be Crohn's related, but it...

I'd be really surprised if something like this was available with NHS doctor's, we can decide where we would like to be treated within reason but don't get to pick and choose who exactly we want to treat us except in exceptional cases (like if there are only a few with the expertise to treat a...

Hello, welcome to the forum It sounds like your bowel movements are getting more normal, which is a good sign, it probably means you're digesting your food better. Digestion slows a little when there is less inflammation because the body can now absorb more. When you have a lot of...

Hello, A brain lesion is any type of abnormal tissue in/on the brain, which is picked up on an MRI or CT scan. They can be caused by lots of things, including infections and changes in the blood vessels. They can sometimes be harmless or can be caused by something more serious that will need...

Hello, welcome to the forum I see you've already found our LBGT support group. I hope you'll find lots of useful information and support there and on the forum in general. I look forward to seeing you around the forum and I'm sure you'll have lots of experience to share with other members. If...

I understand what you mean, but I also understand what the doctor meant, it's the sort of thing where either way they can't do the right thing for everyone I suppose. They either they do every test they can and potentially put a child/young person through potentially traumatic tests where they...

I have heard of people who have bled everyday, so its not unheard of or anything, but it definitely needs more active investigation and treatment as it shouldn't be allowed to go on for a prolonged period due to the complications that can arise. To be honest I'm very surprised your gi isn't more...

I think it's partly because there are so many different things it could be. When I was younger my peads consultant said that they try to be careful when diagnosing teens because they are very aware they're putting a life long label on you and if theyre wrong it can really mess things up. You're...

I understand. It took me almost 5 years to get diagnosed with Crohn's and 12 to get a diagnosis of arthritis, so I completely get being fed up and feeling like you're never going to get anywhere. Unfortunately there's a lot of people here who have had to go through the same so it's definitely...