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I have been in remission for about 2 years on Stelara. However, I think it has recently stopped working. Previously I was on q4 week regimen, and after increasing to every 6-7 weeks I have had new symptoms. More frequent and liquid BMs, and sense of urgency. Now it's about 3-4 BMs per day. No...

Hi All, I have been in remission on STelara for 2 years. However, I think recently I have had a flare of symptoms (urgency, frequent BMs, more liquid etc). Previously, entocort worked like magic, with almost immediate effectivness. However, now I noticed that budesonide is no longer as...

Yes, Stelara works very well. Also minimal side effects. Luckily, i was able to start Stelara first without trying other biologics. I am glad I did. Hope your Stelara journey goes well. By the way, it takes up to 6 to 9 months to work. Also, you may need an increase in dose to every 4 weeks if...

Glad that you are in remission. However, it seems rather odd that you were continued on steroids and aminosalicylates for all this time if your disease was not in remission.

Hi Ya'll, I am diagnosed with crohn's for about 1.5 years (terminal ileum), likely had it for many years prior. I am thinking of starting a diet. Debating SCD vs. Paleo. Where do I start? I stumbled upon this website, wondering if anyone has any thoughts on this resource...

Thank you Maya for reassurance. I really do hope the sulfasalazine works well second time around. I honestly just thought the stelara was taking care of the joints, since I was only on 500mg to 1000mg daily of sulfasalazine. Now the joint swelling is in full force, so going back on a prednisone...

So my knee swelling was gone for like 9 months. And now after tapering off sulfasalzine my swelling has returned. Really hope that the swelling goes away after starting restarting sulfasalazine.

My knee swelling started again after I stopped sulfasalazine. I thought that the Stelara was controlling the joints, but apparently not. Really hope the knees improve once I restart the sulfasalazine.

It took me over 6 months for Stelara to start working well. My joint symptoms are gone and inflammatory markers are all normal. There was some residual inflammation on MRI, after which I increased Stelara to ever 4 weeks.

Stelara has been working well for me for the past year. I need to get another colonoscopy though because the MRI showed active disease when I was taking every 8 weeks. now I am every 4-5 weeks.

Hi All, I have been on Stelara for the past year and it has controlled my symptoms. I have noticed recently some numbness on my right toe. Does stelara cause peripheral neuropathy? I have been on a very low dose of sulfasalazine (250mg daily), but doubt that is the culprit. Looking forward to...

Yeah, I agree. I think it is both in combination. I am not saying its impossible, but it is VERY unlikely that the stelara alone is what causes the decreased WBC. The mechanism of action of Stelara makes it difficult to believe that it is the main cause. Also, think about your diet. Sometimes if...

I think his WBC is dropping due to the methotrexate, not the stelara. Decrease in WBC is much more common from methotrexate.

SO i just started stelara every 4 weeks. My colonoscopy was normal, but the MRI showed a lot of active inflammation. I've been on stelara every 8 weeks for like 9 months. Today, I had an episode of vomiting and stomach pain. Rather than waiting for stelara to work, shouldn't I be on entocort...

SO it seems that there is still evidence of inflammation on MRI. Weird thing is that my inflammatory markers and symptoms are normal. Colonoscopy was apparently also normal. What do you all think? I am currently on Sulfasalazine and Stelara (switching to q4 week regimen). Is it worth sticking...

My scope showed complete healing, but for some reason the MRI read showed active inflammation. However, my IBD doctor does not believe the MRI was read correctly. I am sorta confused. I do not have any symptoms like I used to either. As a result, rather confused what to do at this point.

I think I lead a stressful life. When I worry, I sometimes feel a queasiness in my stomach. I need to adapt a healthier lifestyle in terms of stress and eating.

I have a tooth abscess, and my doctor recommended that I take cipro. He also said that I can wait a little bit and do other remedies (mouth washes etc). Is there a high risk for taking cipro?

yeah, I am starting to regret my choice of starting on Stelara first. I just thought it would work better and safer, but the more I see my progress maybe I am doing more damage in the long run since it is not controlling it very well. The good news though, is that if the stelara doesn't work...

Very informative responses. yes, it is difficult. The issue is that my inflammatory markers, colonoscopy, and symptoms are improved. However, my MRI is equivocal. I think they will try to speak with the radiologist and determine what exactly is going on. The MRI read is almost identical to the...